KezT
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Posts posted by KezT
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thetrainline.com works it all out for you & tells you the times & prices available too:)
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hmm, but parrotting IS typical at 1-2 years old
it was only in hindsight that we realised he pretty much only had to hear a word once before he had it, and much later before we realised he ddn't necessrily understand them all in different contexts 
so all hs records show age appropriate (or advanced) language skills, hence the AS dx....I do still think it is the right school, and I think they will have the necesary support in place, We have already discussed break-out spaces and people, social time support, classroom transitions etc. The statement only specified 10 houes 1:1 (plus all PE classes whic will be 1:1 by definition within the Statement) which we said would not be suficient and they assured us they would be fine with as there were spare LSA/TA/mentors knocking around to sit in whenever necessary.
I guess it will be a `matter of suck it and see when he actually starts...
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well we got the Statement, with the school I wanted named
We chatted to the SENCO at the open evening, then arranged a proper meeting with SENCo and his new LSA to discuss DS's needs & go through his Statement.
They have been great, and have vsited him at his primary school several times, then he and current LSA visited the new school together.
Today he went to the new school alone and met with the new LSA again & his tutor.
He was only there for just over an hour.
They have decided that perhaps he may need bit more support than they had envisaged "he is a bit more challenging than some of the other ASD boys we have had".
I DID tell them that he has severe ASD. I blame the ###### dx of Aspergers and the widespread belief that this means his difficulties are mild
I can't wait for the whole word to dissappear!!! This is precisely why I always use the term ASD rather than AS 
Just because he could parrott words very young does not mean he has a mild ASD!!!GGGGGRRRRRRRRRRR!!!!!!!
I really want him to stay in mainstream school - he OUGHT to be able to get through his public exams (GCSE/A level) at the appropriate age, and I just don't believe the one special school in my county will be able to accomodate that, and I am absolutely against the idea of him boarding anywhere if there is any possibility of hi staying at home.
On the plus side, I guess by the time September rolls round we'll be at the 6 month review stage, so the new school can look at adjusting his Statement (is that how it works?).
I thik perhaps we should rrange another meeting with the SENCo and talk through his needs gain.....
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How about volunteering to coach/teach at his tennis club? It's somethig he loves at a place he knows,andmost clubs are happy to take on & train up volunteers - Tenis even has some funding to do so
And, as he would need to be CRB's,he wouldn't be allowed to be alone to begin with (and good practise means he shouldn't be on his own at all) so you or one of the "old ladies" could stay with him to alleviate his anxiey.
It could lead on to paid coaching work, or just give him the confidence to get out and look a bit more....
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Do you have a record of a time that you called or a name? I always try to keep a record of this now. Can you prove that you called them from your phone bill info.
I made an official complaint (dwp gave me incorrect info and so I was underpaid) and they did pay up (but it took several years for them to sort it out), so I presume they had a record of that telephone conversation. I have had to complain many times to various departments, but usually over their incompetence. I do tend to back up any phone calls with something in writing.
It was three years ago! I only have a very rough idea of when I called, and as it was from whatever PAYG mobile I had at the time, I can't even remember what number I called from! I distinctly remember making the call because it was freezing that day
but can't prove it, and they just say they don't have a record of me telling them, and they can't be wrong in their record keeping -
I am having an issue with the DWP over some carers allowance I was paid a few years ago.
I was overpaid a reasonable sum when I started working. I phoned and told them I was working, but they didn't stop the payments. I am currently repaying them the overpayment, but they say that they do not have a record of that phone call and therefore I have committed fraud
When I suggested that perhaps they did not record it, but I did make it, and that every company
has ocasional "glitches" they responded that they have "NEVER" received any complaints about the non-recording of information, and that "NONE" of their employees have ever had it raised as an issue. Also that their computer systemis aparently infallible
So out of interest, and as I don't believe that every employee is perfect!!! I was wondering - has anyone ever had to give the same info more than once/chase up the DWP/made a complaint? I could do with a bit of evidence to avoid a criminal charge of fraud
Thanks loads
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MIne go back today - I'm sending in his trip permission with an IOU
The bonus of livng on the wrong side of the tracks is that the school isusually pretty understanding
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Hi, I am new to this forum.
My son has recently been diagnosed with dyspraxia and being on the autism spectrum.
He keeps doing 'silly things' like dropping toys into places you can't get them out (like down the back of the radiator) or throwing pegs over the garden fence.
When I ask him why, he says that his brain keeps telling him to do these things and that he cannot ignore his brain. As he is always glaringly honest, I know he is telling me the truth.
I don't know if this is connected to the autism or the dyspraxia.
Can anyone relate?
How old is he>
It could just be that he hasn't grasped the concept of cause and effect yet - we all like to drop things down deep holes/post items through small gaps/watch items splash into mud etc, but most of us learn really young that if we drop our favourite toy down the drain we do not have that favourite toy any more, so we're better off not doing what we want right now, in order to keep what we want in the future. That is realy quite a complicated concept when you think about it!
Make sure you explain each time that you can't get it back, and therefore he can't have it any more (do not replace the lost item). Try to be patient rather than angry, and hopefuly he'll slowly learn not to do it any more (well. at least until he finds a NEW place to drop/post/splash things.....)
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I've still not had any money taken - getting a bit concerned now - I was sure the Judo heats would be under-subscribed
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My sense of smell seem to be at odds with others. Things that other find pleasant smelling, I will often find repellent. For example to me most perfumes, deodorants, air fresheners just have a horrible chemical smell.
that's just sensible - pretty much all perfumes are vile (and I'm NT).
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FWIW, "sensory isues(which can form part of an ASD dx) can be hyper or hypo. Or in some cases, both - my son is both auditory hypersensitve and hyposensitve, being hyper to high pitch and very bass sounds and hypo to background or white noise.
Anosmia is not that uncommon and can be due to a wide variety of reasons - from very short term (colds), medium term (injury) or long term (nuerological or physical). I was asnosmic for two years as a teenager due to a nasal injury and although it affected how things tasted,it didn't make me lose my sense of tatse - it was just different.
I didn't realise how much I'd lost until I got it back though - your sense of smell is something we take for granted. I still remember the day the bandages came off and the smells all around me that day:)
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As some of you know my 5 yr old son is in the process of being referred as myself and thw school suspect he has Aspergers.
Well over the past month his sleep has become very unusual.
Even from a baby he has always been a good sleeper.
It has now started where he seems to want to fall asleep during the day. This is very unusual for him! Then at bedtime which is 7.30pm he keeps saying there is a little person in his head that wont shut up and he cant get to sleep! Last night he finally went off just before 10pm!! Not great because then in the morning and at school he is grumpy!
Baffled.com!
That's almost exactly how my son described what was happening to him a couple of years ago. After some serious worrying, we workedout that he had finally developed an imagination*
He had never "imagined" anything before and couldn't understand what all the pictures and conversations etc in his mind were 
It just took some explanations, and practise and learning how to block out periphery information as much as possible, and after a few months he went back to sleeping really well again
*I have to admit, watching a two year old shout "verrrooom" while flying his aeroplanes around the room is so very cute, but watching a 10 year old do the same is incredibly annoying. Poor DS
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I applied for Olympic tickets the day before the deadline a couple of weeks ago. I applied for a range of events - about 24 tickets in all at the lowest prices and mostly stuff my son would want to go to, because I thought if I went for a spread I'd have a better chance of getting at least something. I have technically spent about £450 - which I can just about manage although I would prefer not to spend that much so I'm hoping - like a lot of people I expect - that I won't get all the tickets I asked for! According to a Which report one woman has potentially spent £22 000!!
.Trouble is, Visa will take the money first and then tell you a few weeks later what you've actually got. I think it would be better if they first told you which events you had been successful in and gave you the option to accept or reject the tickets. That's what they do at Wimbledon. Until I know, I have to do a delicate balancing act to keep enough money in my account just in case - as they could take anything between £0 and £450. It's like gambling and I don't gamble!
Anyone else in this position? What did you apply for?
K x
I did apply - almost as soon as the website was open - but only for the tickets I actualy want to buy!!!
why apply for tickets you don't really want? If you realy want to see a specific event, apply for tickets to that. If you're not too bothered, apply for what you'd like best and wait for the second round to get others if necessary.
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I can let ou know what we are doing at te momnt for DS's planned transition from Primary to Secondary.
We had a meeting with the SENCo & his planned LSA at new school today, ready for him to start in Sept.
They have already met with all relevant professionals, his current school head & SENCO an had copies of his statement and all reports. They were also involved in writing the SA+ paperwork ready for next year.
Next week they will go out to his current school & chat to him in a safe environment for him.
They will do this as often as necessary until he feels safe with them.
Then he will go with his LSA/SENCO to the new school and meet up with the new SENCo/LSA/Tutor in their environment.
He will do this as often as he needs to until he feels safe with them.
We will have fully written reports of each part of this process, and have direct email/phone nos for qeries.
Once they have observed him a few times, they will work in partnership with us & current school to write his IEP for Sept.
He will then join in with the normal year 7 transistion process, which is basically one or two visits to the school, a tour of the classrooms and a open evening with parents.
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I have to admit, I almost NEVER click linkies - no idea where it is taking me to, and I don't like that. Hence why I often quote snippets from articles and then leave a link to the same article
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Thanks BD - that kind of makes sense.
I can't watch the video's because my computer is both exctremely slow and has no sound
If I REALLY wanted to, I could steal DHs comuter, which is fast & loud (how like a man!), but I've never felt the need 
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Just wondering if anyone can explain why it is that images are disabled on the site, yet apparently it's OK to inbed video images
I can't watch the video's, although I am sure they are all perfectly appropriate
But it seems a bit silly that I can't show a poster but can sow a video..... -
I have voted no to AV because I think it is too complicated and people will not understand how to vote. In some of the exit polls in countries that use AV, many people were unable to remember how they voted. There are many parties and I think people choose a favourite and maybe a second best too, but would probably just allocate the remaining numbers randomly, so counting anything beyond second choice would be pointless.
I would support electoral reform, but I don't think AV is the answer.
I think even the unwashed masess are mostly able to count to four! If you ask the least educated idiot on the street which are his four favourite football teams in order, he'd manage that, why not do the same with political parties?
Plus, you don't HAVE to put 4 choices, you can just give one!
It is sad when some people think that "others" are too stupid to understand something that they can grasp quite simply
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Vote NO!!
Bid
Why?
At least I gave a couple of brief reasons
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Hi Kez,
Image posting is disabled on the forum. You have to copy and paste the url, then it works. All fixed now.
In the interests of balance, do we need a "No" poster as well?
I always do vote but I haven't a clue what I think about all of this. Can I vote "Don't know" as my first preference, "yes" as my second and "no" as my third??
K x
you only get to state your prefrences in order under AV, so you have to vote YES today in order to dothe above in future
Interesting, if a little late, publication of the main NO capaign funders here = seems to have an AWFUL lot of peers, tory's and hedge fund managers on it. I'd be tempted to vote YES just to annoy them
Of course, the YES campaig was funded too, although by a much wider range of people and a lot more charities/organisations -
Melatonin is not "usually for kids" - in fact it is only licenced for adult use, which is why it is so difficult to get a prescription for children out of a GP.
It's definitely worth talking to yor doctor about your sleep issues and see what they say. They definitely should not dismiss you, although they may suggest relaxaion techniques or other sleep therapy before medication
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My son was also very resistant to the idea of wearing glasses and moaned about it hurting his nose, ears and side of his face! But we insisted, and over time he got used to them. Now I can't get him to take them off
But he was younger....If he doesn't really need them yet, I wouldn't worry too much. His eyes may stabilise very quickly. Or, ifthey do deteriorate, he may decide that giving glasses a go is worth being able t see/stopping the headaches!
Or, if they stabilise, wait until he is old enough and get them lasered - it works out cheaper in the long run, and is sooooo much beter than glasses or contacts. I had mine done 20 years ago and was delighted. My eyes started deteriorating again a few years ago, and I'm trying to find out if I can get them done again....
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The longstanding joke about the 'don't knows' getting in will no longer be a joke...
Mind you, if they have to explain it using 'do you want to drink beer or be stuck with coffee?' slogans, then I guess we've reached that crossroads anyway!
I quite like the poster, but the reason I'm going to vote YESis because I vote ever single election and every single time, I may as well just draw a big dildo on my ballot [paper for the notice they take of what I have to say
Unless you live inone of the few marginal constituencies, AND vote for one of those parties, it's prety pointless voting under FPTP.At least under AV I can vote for who I actually think will do the best job, rather than having to vote against who I think will do the worst one, which is what we have to do under FPTP
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OK, so we've got the statement
WE've got the (mainstream) secondary school we wanted
They've already allocated an LSA trained and experienced in supporting ASD children
Now we have to manage the transition..... just looking for any advice from those who have been there before...
I am arranging the first proper meting with the new SENCO - just me and DH to start with, before DS joins in the visits. I was thinking we would probably go through the statement, and discuss any specific issues/management techniques etc. Is there anything I need to specify, bring up or discuss do you think?
thanks
Behaviour and balance
in General Discussion
Posted · Report reply
we all "Act" out roles throughout our lives.
Personally I have to act pretty hard all the time at work - I find the rules there totally opposite to most of my personal beliefs and "normal" way of beahving.
I spend quite a lot of my time at home "acting" the role of good parent. Most of the time I feel like giving them a slap round the face, scream very loudly & lock them in their room - but I act the role that I know is required of me and try not to do any of the above...
The question is whether you can act the correct roles in the correct situation? The thing about ASD is the difficulty in recognising what role to play.