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tjw

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Posts posted by tjw

  2. Posted · Report reply

    hi candyfloss

    my 7 yr old asd son, laughs so much it is great, he also likes to make me and his dad laugh as well, sometimes he puts it on as well we can tell when it is real and fake, but i dont realy care because i just love hearing him so happy, well i am apparently nt and he laughs alot more than me.

    nt is abbrev for normal, if that is what you ment,

    lov xx

  8. Posted · Report reply

    hi mumble

    i must say i think that they were being lazy because i can not beleive you would drain food over clean pots, :shame: or it could be thoughtlessness, when my son was born my dad and stepmom came over from ireland to do the visit and my husband caught my stepwicth :wallbash: opps i mean mom pouring lamb fat all over georges sterlaised bottels, god was i annoyed :angry: so i can relate to your reaction to this :angry: please dont let it put you of doing the cooking that you can do, if you can time it when this student is not in the kitchen and also take your clean pots straight back to your room (if you keep them they) then she will not get the chance to do this again, you never know she may be doing this to get a reaction from some of you who share the kitchen. so carry on cooking :thumbs:

    take care

    theresa

  9. Posted · Report reply

    hi mygifts

    agree with karen, we have always taken the mick out of george, when playing ect and he now has an understanding of kinds about this, but he does check with us if we are joking so not they yet, but i must say it dose not work great outside the house with other people, he thought his daft grandad had a donkey in his garage for ages when grandad thought it would be funny to tell him this, wasnt smiling when i made him take him to his garage to proof it lol, he never thinks people are taking the mick outside the house he says they are being nasty and rude so have a long way to go with the outsiders yet, i think it is so hard for them to tell the difference, my son is also 7 with asd, we just keep trying to let him know when the mickie is being taken,

    take care

    theresa

  10. Posted · Edited by tjw · Report reply

    with my son who is 7 he walks on tiptoes so yes his walk is different and when he runs he looks realy clumsy, so people would pick up on this, hair he has always had loads of it the crown is a double so we always shave it, plus he sweats alot so it helps with his temp, as for looks i dont know he has quite a big head but that could just be how it is, no eye contact is the give away i would say,

    theresa

    great topic mumble

  12. PDA

    in PDA

    Posted · Report reply

    hi westie

    great advise from a mum who knows, and has first hand expereince with pda, i do hope the information you have provided helps others with partners, children who they think may have pda.

    takecare

    theresa x

  14. Posted · Report reply

    The link for SCERTS is http://www.scerts.com/docs/SCERTSJJ_RM.pdf

     

    It works through all the skills needed to communicate including gestures, shared attention, conversational skills, initiating interaction, ending interaction, asking questions, and so much more. Please read it. My son is soon to be starting this. What I like about it is that it lists all the skills, and you identify which ones your child can or cannot do therefore you don't waste time teaching him things he already knows. But you quickly identify where he might lack a major skill that is holding him back in social interaction or learning.

     

    Please remember that we always 'assume' information. So, like your son, my son was 'assumed' to be okay because he never said otherwise. Now that he is beginning to get those skills he is verbalising his opinions and feelings and telling us what happens. He also tells us when he does not understand, or asks what things mean. This morning he asked me "did you have a good sleep." I don't remember him asking me how I felt before. So he is now beginning to recognise that other people have emotions and that they can be different to his.

    hi sally

    thanks for the link, i feel at the moment it is all me doing all the work for school, he has been on sa+ for a yr now and no outside professionals have been asked to come and see george, i have requested to ep on quite a few occations and hopfuly i will be seeing her next wk, i am also phoning all the people i have found on local goverment site including ep office, sen office and act, i no a lady they who is head of dept so will be getting all her input and help, thanks for the pm sally, going to go and make a big list of what i need to do now.

    theresa x

  15. Posted · Report reply

    jsmum so sorry i didnt mean to offend you with the word naugthie that wasnt my intenstion so please accept my appoligies.

    once again thank you very much for your replys and advise

    theresa x

     

    Hi Its just that I have been on the recieving end of other parents too of a child others think just a naughty boy when infact they have special needs, my sons school at the time disregaurded ADHD at the time too, even though he was on the SEN register for behaviour, social and communicaiton needs, my son was often controlling with his peers as he lacked the correct social skills to interact any other way, my son had to be assessed away from the school enviroement for him to recieve a DX of ADHD, when he was 8yrs old, some schools will misunderstand ADHD symptoms as naughty, or controlling or manipulative, ect.... I would strongly recommend that your friend gets an assessment in ADHD, a school is not qualified in dx ADHD, what if it turns out when your friends son does eventually get dx with ADHD in the future and no one listened to her when he was younger.

     

    JsMumxxxx

    hi jsmum

    the boys mum has been round this morning for coffee, and she asked me for my honest opinion about her son i did advise her to speak with her dr about this and asked if she felt they was something not quite right about her son ,she is realy confussed because at home he will sit and watch his tv or read paint for hrs without being a giddy kipper which is her term for him, i did say i find it a bit strange the her son is very controling over my son but not with other children and yes he has some strange ways like mimicing other, he was in a reading group and one of the boys stutters and the next time his teacher read with him he was doing the same stutter, and he has always copyed george like his acent because george does speak a bit different to others he also does georges flapping which george does all the time when excited stressed ect, she has just emailed me to say she has looked up adhd and thinks he may have some traits ,so she is going to see her dr she says even if it to rule out adhd but it will put her mind at rest she nos i will support her all the way as she has done with me and george, but i had to make her aware that her son is making my son very unhappy at break times, if she gets to the bottom of this and it is recognised that her son has a form of something then hopefully she will receive the help see needs.

    thanks

    theresa x

  16. Posted · Report reply

    hi

    firstly thankyou for your advise and support, i did feel alot better after the meeting yesterday, the other boys mum came in with me and she agreed that her child was very controling and asked the teachers if they thought he had any thing wrong with him she asked about adhd but the school felt that her son didnt have this but advised her to speak with her dr if concerned, we spoke about putting a circle of friends around george at break times at the moment they are going to do this with the teachers and staff who on duty at break times, when ipick george up yesterday he seemed happier with breaks because they have spoke with both boys yesterday and told them they need to slipt up at breaks and not allowed to play with each other george cannot understand why but i keep speaking to him about the shelter thing and that he does not have to stand in this.

    sally thanks for your reply george is already dx with asd and is on the waiting list to see if he has dyspaxia he has been on sa+ for a yr now hoping to see the school ep shortly, i am at the moment starting the statement route but that is another story, what you said about the speech problem, i never even thought that he wasnt telling me or teacher due to not being able to do this, the cards you spoke about seem a realy good idea, he would feel better if he could explain things this way, because his teacher did say he never complains are tells her when he is unhappy, i am going to ask for these for him i will get some myself and give them george once we have gone through what they mean, and see if this helps him, i think because he does not moan at school that he is fine, but when i explained that he meltsdown at home due to presures and cannot sleep til gone 12.30 at night (never been great at sleep) she seemed to understand a little bit more so the cards could be a great form of cummunication.

    jsmum so sorry i didnt mean to offend you with the word naugthie that wasnt my intenstion so please accept my appoligies.

    once again thank you very much for your replys and advise

    theresa x

  17. Posted · Report reply

    hi

    been to the school and the teacher has sugested that the other boy gos on a good behaviour chart for the next wk to see if this will work, she also admitted that this other boy trys to control george alot, which does not happen in class because she is they, she also held a staff meeting to make all staff and dinner ladys aware of this problem, and said to keep them apart at all times it worked today, the other boy also came and said sorry to george and said he will stop what he is doing and does not want to lose george as a freind, i have told the teacher i want an update daily on any other events that may happen and this has been agreed, so fingers crossed i hope this will help the situation if not then plan b and that is the naughty freind will have to miss breaks but they dont want to do this as he likes neg attention thats why the chart is the choice, thanks for the replys

    theresa

  18. Posted · Report reply

    hi jsmum

    the other boys mum has asked school if they think something could be wrong with her son and they have told her no, but have stated that the child seems to be very clever at picking up what winds each child up in the class and playing on it they have said that he seems to like neg attention all the time, i am a freind of the boys mum so we speak alot and george and the boy have been freinds since reception they are now in yr 2 but last yr they were in seperate classes at my wishes but they could not accomadate that this yr so are both in same class, but last yr he was the same with another boy who is dx with asd but this other boy would hit him and get in trouble the other boy with asd is georges freind also and the other boy only plays with these 2, other children will not play with him, i no his mum is worried sick and it didnt feel great having to speak to her about her son and telling her i thought this was bullying because i dont like to use this words lightly but in my eyes it is getting to that, and she agrees, we both said this morning that her son seems jealous of george he always trys to hold my hand when he see me so george carnt i dont allow this for obvious reasons, but he also shouts at his mum that he wishes he lived with me, i personaly do think that something is wrong with him but that is not up to me, all i can do is protect my son which i hope i do. i will let you no what is said today at the meeting thanks for your reply

    theresa

  19. Posted · Report reply

    hi

    went into school yesterday to be told of a ta that my son george age 7 was made to stand in a shelter on the playground for the break period by his so called best buddy age 6 he told george he couldnt play with other children and if he did he would get him done these are the words he used and he would use them because george hates the thought of getting into trouble, when i spoke with his teacher she new about this as 2 dinner ladys had reported it, but i dont think she would have told me its just because i told her george had said something (which he hadent but i didnt want to drop the ta in it) she looks out for george, i spoke with george when we came out of school and asked him to tell what has been going on he just started screaming at me no one lisens he wont leave me alone he wont let me play with other kids and hes realy naughtie i dont want to play with him i keep telling them when i asked who he is telling he just keeps repeating them, then one of georges classmates told his mum that this child tryed to strangle george yesterday dinner time and he went and told a teacher but no one has spoke to me about this, i dont think he was realy trying to strangle george but has got hold of him with his neck and this other little boy got upset by this and told his mum who spoke to me this morning about it, anyway i have spoken to the best buddys mum this morning and she is mortified we have arranged to go in to school this afternoon to speak with the teacher she has also requested that her son stays in at break times so he cannot control george because this is what this is all about control, and just by saying to george i am going to get you done is ok i will do what you say kind of thing, i am so upset i couldnt sleep last night and have been crying this morning (not in front of george) because i cannot stand the thought of george just stood in the shelter on his own and doing it, i am realy mad because he did it and didnt tell the other boy no, but i can also understand why he stayed they because he hates the thought of being naugthie and getting into trouble, just had to come on here and put it down in words i will just have to wait and see what becomes of this afternoons meeting, i just feel like it is fight fight fight all the way and i seem to be sapped out, still waiting for ep to come in and see george as well so much going on at minute head hurts, thanks for letting me go on about this.

    theresa

  20. Posted · Report reply

    hi karen

    thanks for that i will look at the site you have given me, i have emailed the nas over on the island but not heard back from them as yet, just trying to get all the info i can at the moment. hi justine you not hijacking we are just going through the same things at the moment and what better place to get advise so welcome and all replys for both of us are greatly received, what county are you going to is it abroad.

    thanks

    theresa :thumbs:

  21. Posted · Report reply

    hi

    just a quick question, we are just starting up the process for a statement for george at school, my question is we live in yorkshire and are moving to the isle of wight hopefully sometime later in the year would the statement carrie over they are would you have to do the whole thing again.

    thanks for any advise you have on this.

    theresa x

  22. Posted · Report reply

    Hi tjw

     

    How are you getting on with your 'long list' of foods your son will eat :whistle:

     

    Our eldest was a fussy eater. When he turned about 13 he had a growth spurt, got hungier and ate more different things. He had always eaten a little bit of each food group tho, so we didn't worry too much about him, and we took the decision not to make food times a battle (after trying and failing to make him eat stuff). One of his favourites when younger was mince, so I used to get all different types of meat minced.

     

    Our youngest has been a very restricted eater right from weaning age. He even only had about half the amount of milk as a baby than our eldest did. He would not drink milk from a trainer cup and I did not want a toddler walking around with a bottle hanging out of his mouth, so he hasn't had milk since his 1st birthday when I stopped using bottles :unsure: .

     

    When he was 8 months old I went to health visitor as he would only eat choc pudding. They said "mix choc pudding with everything". I personally felt this was not the way to go so rightly or wrongly I carried on trying to get him to eat other things. It once took us 2 hours to get him to eat 1/2 a slice of carrot. "He'll eat when he's hungry" they say - my son went 4 days without eating anything, on more than one occasion, and at a very young age!

     

    He used to gag and choke on bread when weaning. We found he could manage scotch pancakes, and over the years have gone thru all bread type things, scones, muffins, rolls, pitta breads, toast. He currently, age 13, eats cheese on crackers (Cheese Melts), pizza and pizza-style garlic bread, roast chicken, roast potatoes, yorkshire puds, raw carrot, peas, he's just started eating burgers in a roll (chicken or beef), and yes he eats crisps, biscuits and choc. He knows he needs to eat more healthily and he asks to try things occasionally now. In our son's case he needs to feel in control of himself, it does not make him feel more secure if he feels we are dictating what he does. Educating him about healthy eating and him coming to the realisation himself that he needs to eat more healthily appears to us to have been a more mature way (for him) of approaching the situation.

     

    I have had a doctor look me in the eye and say "Well if you bought fruit and vegetables and had them in the house and he saw you eating them, he would". I obviously look like some slob who lives on takeaways :angry: .

     

    We found involving our youngest in food prep made him worse. Seeing me preparing food, handling it, etc (even tho I had washed my hands in front of him) was disconcerting for him. He worried about soap and germs getting on the food. When he knew food grew in the ground, in DIRT, it made him feel disgusted!! So be very careful if your child is concerned about germs etc. :oops:

     

    hi thanks for the replys just an update realy on what has happened over the last wk, well george is now on carrot sticks :rolleyes: which is a great result he will also have apple bags but not the grapes and a banana :thumbs: i am so happy about these small changes he will only eat 3 carrot sticks a night but hay that is a 200% improvement, what i did was chill out about the whole eating thing i didnt give him a choice i just put these foods at the side of his plate and said if he was happy ro try them that is ok if not we can put them in the bin, the beans went in the bin asap but the above he tryed and like to a degree, but i explained that all food didnt have to taste great ok was ok we have also given him cards num 0 to 10 and he marks the food out of this which can be a bit confusing when he gives the food a mark of 100 million but it also makes us all laugh and brings a bit of fun to food times, all the advise on here has been realy helpfull and i would like to thank you all for this. i am now tyring to put these new foods into his packed lunch which has not change in 2yrs he takes dry toast and wosits with a yogurt and a biscuit but so far the carrot sticks have come home never mind i will keep putting these in and i am sure one day it will be an empty lunch box. i have involved george in food prep b4 and he is not happy about this due to dirty hands, he will now chop food for me as long as he dosent have to touch it so my mushrooms look like they have been slaughter haha but at least he is getting near food, he is not good with dirty hands i have the higene gel in place for him because his hands were getting sore from having water on them all the time always washing them so i dont push the dirty thing with him school was amazed this year because he did a finger painting but they did say he keeped washing his hands bless him thats my quick update for now but once again thanks for all the advise

    cheers

    theresa

  23. Posted · Report reply

    hi

    got george back to school today and he was kicking and screaming all the way they but he had to go he has not been at school for a mth now he got swine flu just b4 school broke up so had an extra wk then, so his routine went and then he didnt want to go back said he was very clever and didnt need school just picked him up and he had a fab day was in the snow when i turned up doing snow angles bless

    theresa

  24. Posted · Report reply

    My mum sent me out to get, pickles, branston and bread stick. I came back with Branston, Pickles, and french stick. When got home mum said ' K you have got bread sticks and not French Stick' , i didnt understand what she meant i didnt understand the difference. My literal mind when mum said french stick thought a picture that look like sticks and not bread.

    hi st123

    i can understand how this is confussing, but a little tip from me is that breadsticks come in boxes mainly and french bread is in clear wrappers i remember lots of things via the packeraging, hope this helps a little but it was a mistake and french bread is lovley

    takecare

    theresa

  25. Posted · Report reply

    Thank you both.I forgot to also mention that I had cut my finger on Monday got two stitches :tearful: So I do feel little sorry for myself.Good to have a moan on here.Tanks again for listening!

    hi justine

    you are having it bad at the mo hows the finger hope it is healing, the washing machine is another problem but proberly better getting it repair have you seen how much laurnderets cost wow got to say bd made me laugh with the barrel joke never heard that one b4 cheered me up hope it did the same for you

    takecare

    theresa

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