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tjw

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Posts posted by tjw


  1. hi

    i go on all school trips with george and his school, they invite me free of charge on trips, it is mainly to make sure he is ok with travel and any new enviroment ie pantomines are out of the question last year we had to come out after 10 mins but must admit school were very good offered to pay for taxi for us, i wouldnt let them, got to say i do enjoy these trips it is nice to see how he interacts with other which i must say is limited.

    theresa


  2. hi

    had our second meeting this wk with cahms it went realy well, they did more with george this time telling him storys and getting him to answer them in his own words me and hubby just sat they and listened it was realy an eye opener, they said he answered the questions like a child would if they had asd and she thinks he has got traits of adha, she said that he is a realy well behaved boy haha we are just having a few problems with sch ed psch he says it is not his job to do an assesment so cahms are figting with them at mo, they had a big meet on wed and fetch this up so i should here more next wk on this, she says he will proberly have a dx within the next six wks which has supprised us a lot, that is if the consultants are available, so thats my news so far. hope all is going well for you sharon.

    take care

    theresa xx


  3. hi sharon and nicky

    well it went realy well, they are looking into adha,asd,dysexia and dyspraxia wow it seems a lot, they have booked us another 3 app all in march, also we have got to have a school ed psch iq done asap lots of forms for school to fill in and just the one for us at present with about 110 questions on it, but the whole thing was realy quite relaxed and calm, george seemed to be ok flitting from one toy to another in the space of about 10 sec haha but at least she saw him as he is, i feel loads better now that the 1st app is done she is also going into his school to assess him there but i have warned her he will no who she is so she is going to see if one of her collegues will do this as it would distract him to much, he never forgets a face or anything for that matter lol

    thanks for all your support so far with this i hope i can still come to you for advise and a moan sometimes and that works vis versa, advise i am not to confident giving i dont feel i have enoght experience for that but moans i am good with and chat.

    thanks again

    takecare

    theresa xx


  4. hi sharon

    sorry not been on for a couple of days, yes george can count but when it comes to the 30-40 ect he will say 2010 3010 cannot get his head round it to just say 30 or 40 also he will not say 15 or 17 at all his fav counting is counting backwards he loves that and can do it from 20 excluding 15 and 17, george is also jumping off furniture and beds he thinks hes a wrestler most of the time and counts you out when trying to make him stop, he can also be in peeps faces butting in constantly and if you just nod an answer he will turn they faces to him and make you say the words. i have had alot of hearing test done and they is no probs they just over sensitive, george not doing stats this yr because they keep him in a lower class this year due to him not being up to grade he is the oldest in his class but he gets on better with children younger than him he likes to take care off them bless him, i hope all gos well tommorrow for you and mellissa will post and let u no how it went for us.

    take care

    theresa x


  5. hi sharon

    george is 6 also, we live in rotherham yorkshire, when george first went to school in fondation his teacher asked me if we could refer him for assesment and put him on the speacil need reg due to him not learning ect also would only stick to certain things they gave him the sand and water area as his calm place due to him freaking out a lot, he did not mix with other kids, any loud or strange noise would also upset him, i knew from an early age that something was a bit different with him he didnt speak till he turned 3 yrs old and even in his high chair he would line up his food and eat it in a certain order now he is a complete nitemere with food will only eat dry food no sauce on any thing actually at the mo he is only eating burgers nothing else so he has to have vitamins, he got the star of the week the other week for writing to try and encourage him but he can still only write his name which is very baby like reading he is still on tricky words ie his her the ect but has very good memory so reads from that and the pictures, anyway going back to to school refering him we waited for about 8 mths then was told it would take another 2 yrs so i went to my dr and he got us refered faster hence monday,he has been a bit of a terror this week but we are going to the picture today to see bolt he has been twice now to pics so this is an improvment with noise levels for him, he seems to be accepting noise a lot better now, it seems to be just a certain level like in supermarkets refrigderation low hum noise hurts his ears. i only have george does mellisa have brothers or sisters.

    theresa x


  6. Hi i think the first one is the hardest i went not so long ago, i was on ffwd speed trying to get all the info in the lady kept telling me to slow down i was like sorry all the time. On the first visit they talk to you but they also watch your child at play, to see if they play or do any eye contact. Melissa did her worst when she went in totally ignored the lady, once eye contact and that was only to glare at her, she played but all of 2seconds a toy so basically ransacked the room which is what she does at home. The first visit was to see if i needed anymore visits and to see if i needed referring to anyone, which i am now going also on Monday 23rd for a 3rd appt, they have been quite quick as well 2 wks in between, i am also being referred to a parenting clinic to help with her behaviour, she isn't naughty she just is defiant. I said at the last appt that i think she is on the spectrum and she said but she is social and imaginative, i said yes she is a dog, tiger, dinosaur, horse, bird but she doesn't really play with toys, and yes she is social but she is ott, but then i found the pda and that is Melissa to a T. My appt is at 11am what time is yours? Good luck and take lots of notes i did, she kept them and is taking photo copies and giving me them back next time, she said she likes it then nothing is forgotten it doesn't matter if there are loads mine was like a mini booklet, and i still have more to go in, i just took the major stuff. Sharon x

    hi sharon

    our app is 10 0clock, thanks for giving me a run down of what may happen, i have copyed my notes as jsmum said to do so got them ready also got school report that they wrote on behalve of george so will take that in as well, george is also defiant at mo and keeps lifting his hand up to slap me but seems to have second thoughts about it when he sees my face but the hols are never a good time, took him to a big pizza place today and he kicked off because his 4th peice of pizza had too much cheese on and, when he gos into one it is like he is not listening to me anymore and i have to just wait for the calm, came home and watched wwe for an hr that is the only thing he is in to, i hope all gos well on monday for you let me know how it gos.

    theresa x


  7. Take a photocopy of your notes, or write down your concerns in a formal dated letter and request that remains in his records, at least then you have passed on your concerns from day one and if for any reason you need to go back to this particular appointment you have the evidence and because you have raised your concerns it is enough to ensure he gets his needs met.

     

    Good Luck.

     

    >:D<<'> :thumbs:

    JsMumxxx

    thanks jsmum, i will do that and ask them to put on file, i am glad i posted 2nite about this because its the things like that that need doing and i would not have thought about it, so thanks for your reply and advise.

    theresa x


  8. hi

    i have now received a date for george to see someone at camhs on monday 23rd wow i dont know how i feel about this now after all the time waiting to see someone, i feel very nervous and shaky all the time, i dont no what to expect, but have got all my notes together because i know i will just forget all when i go to see them, will keep you posted on how we get on.

    thanks for reading my post

    theresa xx

    ps sorry mods if i have posted this in wrong section

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