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Sally your last sentence is true until they leave. I have learnt that Services change all the time and managers and staff come and go. It is so beneficial to have someone looking out for you who loves you and will keep these providers on their toes so to speak x

Hi Jeanne how is Glen? Has he been to the dentist or had his eyes checked yet? I would think these are the most important things to get done asap so at least you can eliminate pain as a factor for the behaviours. Maybe it hurts Glen to go out as light can have a negative effect on sensitive eyes, just a thought. Hope he has settled more, x

Hi Jeanne, I wonder what made him decide to act then at that time in the car, or what that trigger was? If only you knew eh! I do hope everything has settled down and Glen will soon decide to get out and about again. It does seem like the home is trying hard. Heres to peace x

Hi Jeanne could his weight gain be a side effect of the medication? What is Glen like without any medication ? It is good to hear the meeting went well and Glen was happy.

Hi Jeanne id wait until his inflamed tooth has gone down, his filling filled and his eye checked. When he is pain free it could make all the difference to Glen and they have no reason not to start attempting to get him out again, let us know how it goes x

Hi Jeanne this could explain it , at least you know now. Did they say what they will do about a wisdom tooth coming through, do they leave it or take it out? My son has same happening and dentist seems to think if there is enough space for it to come through,to wait and see.

Hi Jeanne, I think the most important thing is making sure he gets his good eye re-checked at the appointment, as you say you think he has been hitting it, if just to be reassured. If it means drugging him to a point of sedation to get him there it has to be worth it. Will the care home do this?

Hi Jeanne, the eye specialist must have previously checked his good eye. Did they say that it was Ok? I was worried about this too, as my soon also attacked his good eye but eventually gave up. ( I was told at the time that it is very very hard to detach your own retina and that the bad eye had probably had this weakness since birth). When is he having his good eye checked? This autism is Hell

Jeanne, just brilliant news that Glen is happy again. May be his eye has stopped bothering him so that he is able to be more settled. Its great you could see him, what a relief, x

Course we can xx I hope your lovely lad soon settles again

Im sad to hear about Glens eye sight, the same happened to my lad. The eye specialist said not to repair it because it had been like that for a while and other problems can occur later on with reattached retinas, like cataracts. I wonder if Glens eye could have been been bothering him for a while. It must be as irritating as hell and unbearable to live with. Our poor sons they really really don't deserve any of it. x

Hi Jeanne I am very sorry to hear this It makes me want to cry. My son had an episode like this about ten years ago, I stupidly tried to intervene and was bitten badly and I was petrified he could kill himself. He attacked himself violently. He was put on high dose meds after that. I am always wary but It didn't happen again thank god. I am sure it had everything to do with his eye problem that he just could not cope with the discomfort. I really feel for you and hope this was a one off. Glens care home sound excellent. x

Hi hsmum how horrible for you. Teenage years seem to be so tough for our kids. My son had a psychotic episode around 10 years ago, ( in my opinion,brought on by his retina detachment that literally drove him nuts). If you decide on a treatment and assessment unit It will depend where you live but please read and avoid this outfit http://mydaftlife.wordpress.com/about/

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That is good his eye will be checked. I too, don't know what bothers my son, the first things I do are check for any pain, ie. toenails, finger nails, insect bites, mouth ulcers, foot blisters, etc even an itchy head could start him off! My son is also anxious at the moment and your guess is as good as mine! Fingers crossed it all ceases and they can go back to being happy once again, xx

Jeanne , how is Glens eye, can you be sure it isn't uncomfortable or niggling him at the moment?

Yes Jeanne I agree. My son was much better in himself when he left school and all pressure was off, he is 26 now. I never thought hed be able to learn anything as the right environment and approach was never found. He then had a series of different workers and agencies taking him out and about each day, to cafes, parks etc , until he started getting highly highly anxious again. Then I found this college that uses makaton, has some structure, but in a relaxed and respectful way and its been working.( so far). The one thing I can think that has made the difference is that my son is better for only a few hours, part time, anywhere than all day. In the past once lunch was over in the afternoons hed get very highly stressed, like hed had enough. But then gawd knows Jeanne, I could be wrong, as this is only through observation as it is impossible to know, as he is unable to have a conversation or tell me anything. Just so pleased I can drop him off for a few hours a day and not worry, x

That is so very good to hear Jeanne. Yes, my son is doing fine. The past 4 yrs hes been going to a specialist college for a few hours each day. He does life skills stuff , using the ipad to choose items when shopping and cooking, visiting garden centres etc and has travel training. I still cant believe how lucky we are ( internet search) at finding this college, it really is a one off.x

Aw Jeanne this has brought tears to my eyes. You and Gen deserve goodness , so happy for you , xx

That's good Jeanne

Hi Jeanne, the home sound very good. Do you think it is the new medication, the home, or a bit of both that has mad all the difference to Glen?

Glen sounds very much like my son. He is also an observer not a participator. I would say leave it well alone if he seems happy and content. With my son it can be the build of people putting pressure on him that then leads to very high anxiety levels and self injuring, even people keep asking him questions or getting him to get involved with stuff when he doesn't want to can trigger him off. Maybe wait till hes been there six months or so.

Jeanne that is Lovely, I love good news. long may it continue

Hi, yes I agree with this, no pressure is good! A slow start to the day can be the right thing. My lad goes to college in the afternoons 1-4pm and this is fine with us. I am remembering the days when he had to be up and out by 8am for the school bus to take him to his special school.. how stressful and pointless it all was. A relaxed way of being has to be better for anyones mental health. Heres to late mornings

My son has had phases in the past of deliberately wetting and soiling himself and then as if by magic reverts to using the toilet again. No one knows why, only he does. I have sometimes felt it is a reaction to something he doesn't like, so he then has to do something worse than what it is he doesn't like. i.e wetting /soiling or self injuring. Not nice but im sure it will pass, just try as best as you can to ignore it .