lisac
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Posts posted by lisac
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It could be . My son gets into negative rituals/patterns of behaviour. For all we know, it could be something that triggers it off and then they wont leave it alone . They 'have' to do it . Or it is a reaction to something internal . If only it was the positive behaviours that they wanted to keep repeating !
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Any ideas how to contact Phoebe Caldwell ?
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Jeanne, my son gets very anxious when he is in discomfort/pain. At the moment he's anxious /pacing up and down (with force ) and kind of moving his right arm about , i suspect its because hes been leaning /propped up on his side in bed , which now aches, i might be wrong though. My guess, which is all it is, is that Glen is in some physical discomfort somewhere which may be intermittent. Thank god for the internet, seems you are doing all you can, x
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Jeanne , im as baffled as you . He seems very precise in the way he eats and appears very sensory . Maybe he just does it as some kind of ritual . I dont think anyone could tell you why he is doing it . If you ever get any clues or suggestions please let me know , x
p.s Have his teeth been checked , can you be sure he doesnt need a filling, that could be causing him discomfort?
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'so I would suspect his physical health before his mental health'
I would say this too . However, I know from experience how reluctant health proffesionals are to investigate anything physical in people with severe learning disabilities . Ive asked before for a kind of body MOT for my son ( under sedation) yet no one seems to take my request seriously. I dont quite know why this is . I suspect its to do with sedation /they think its a minefield/ or dont want to be held accountable for anything, not sure.
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Jeanne, you could try putting a pillow between himself and the wall if he's hitting his head on the wall. The only thing that worked for my son was completely ignoring it , ( any remark or intervention made him worse) as i once got in his way trying to stop him and ended up bitten to buggery in A & E . A large dose of Risperdal and epilim ( for mood control) was what ended that awful phase, it took away the aggression and made him sleepy .Sometimes safety has to be priority, hope the day improves not much fun i know, x
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Not an ideal way i know, but when my son is in the bath and laying in bed i brush his teeth standing behind his head , like the dentist does . I can get right to the back , the only thing is, he'll swallow the small amount of toothpaste but at least he has clean teeth , x
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I think the OT will measure and then supply a helmet. Would he keep it on ? It never worked with my son , he'd unstrap it , take it off , place it down, then hit his head on the wall, x
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Well if he is that unhappy , its got to be a positive thing . I guess after the assessment it will be getting the meds right for Glen ? Lets hope you get some answers . Risperdal, i found about 5 days to kick in , x
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Glad you got some meds sorted . The most Risperdal my son has been on a day is 4.5ml ( when hes been really bad) . Remember you dont have to make any rash decisions re the residential mental health assessment ( wondering why my son was never offered this , ive never heard of it before) A psychiatrist once looked at my son and diagnosed psychosis on the spot! The Risperdal alone may very well sort your son out , x
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Jeanne, the respite sounds a good idea. Sometimes just a change can alter our lads behaviour for the better. Ive often dropped mine off at respite wondering how on earth they'll cope when he's been really really challenging and been waiting for the phone to ring all weekend, yet when ive picked him up, he's been fine! Sometimes we can get caught up in negativeness which maybe your son has done, sort of like a habit, and this may break it, so you may not even need to use the meds yet ( if you get any) . Let us know how you get on , fingers crossed for you, x
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Jeanne , ive been there . Medication ( Risperdal and epilim for mood control) was a life saver for all of us . It doesnt have to be forever , and if it makes him 'reset' and takes the edge off his aggression it is worth asking for . Once he is calmer you can gradually reduce it . Poor you , its horrible , good luck for Fri, x
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How is he with blood tests? If he isnt going to oblige, a visit to the gp is generally a waste of time . Youre probably just having a run of bad luck, hope he feels better soon, x
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Jeanne I give my son 'build up' or 'complan' meal replacement milkshakes , once or twice a day ,they are nutritionally balanced .
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Im so sorry to hear that . I could say 'what a suprise' but I wont . You know the truth Sally. Write to your MP, involve him/her, they will investigate . You've nothing to lose , x
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I know
. That's how it makes me feel . My son's been similar for a week. I wish I had a solution. Oh to read their mind ! If only . All I want is for him to be calm/happy . Its getting me and his sister down now . I have psychiatrist coming tomorrow for yearly review and im going to ask for some extra/different meds . No advice just massive hugs to you , x -
I suspect youre feeling is right Jeanne . I could have typed that a few years ago !
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Jeanne , i think it comes down to how good/generous your social worker is .
He can indeed have both . The two are seperate , in our case anyway.
I have direct payments for my son Monday - Friday as he has to have something to do during the day. Social Services have to find somewhere or something for your son to do during the day. It was the only option, as he'd been kicked out of his NAS Day Service. He cant work, a day centre would have been no good, and there are no local colleges willing to take him as they are geared towards the higher functioning person. He also goes away for respite to a residential house every second weekend. That doesnt come out of direct payments, S.Services pay for that direct. I think you will have a community care plan that the social worker does with you and id ask for everything, get it all written down in there.
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Yes Jeanne amd Melow my 22 yr old son is the same. Once out of the school system there is indeed nothing . He attended an NAS Day Service for the first year and a half until they kicked him out for pinching others.
We now have direct payments where i employ two people to take him out swimming /cafe/ shopping centre/park a few times a week . It gives us both a break from each other . He has also recently started at a college one morning a week ( Orchard Hill in Wallington) so it is not totally hopeless . Keeping my son happy is the main aim.
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Really feel for the mother. Must have been absolutely desperate to hurt the child she undoubtedly loved. Just how desperate must she have been to even contemplate that sort of death for her child? Imagine the depth of sadness, hopelessness and feeling that you imagine yourself that totally alone.
Remember reading some ago of a mum who jumped with her son from a bridge. At the time life here was unbearable and I could totally understand why and wondered how much more I could take?
Thankfully life got easier and continues to be, but I won't forget and could never judge anyone who couldn't take anymore.
If people dont understand then lucky you!
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I agree . She could have called SocialServices or the Police .
In utter despair desperation and frustration, like water dripping, she may have 'lost it' or 'snapped' . At that moment she may not have been thinking rationally and just wanted it to stop. If this is the case she has my understanding. Some of these kids will push the patience of a room full of Saints. I have at times been called an 'angel' and a 'saint' because my son is able to kill off anyones spirit . It can be a souless futile existence worrying and caring round the clock. The care SServices provides is rarely appropriate for those with more complex autism . Id hedge a bet that her life was one long miserable worry and when all school or respite seem to do is complain about your child , 'what is the point'? is a daily thought .
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Well i never knew that .
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"I've found that what works in the end with *everything* is no pressure."
How true this is .
Glen hitting his head
in General Discussion
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Just to add, could it be something like acid reflux ? This can affect people throughout the day . You could try something like Gaviscon , it wont harm him , and at least rules that out ?