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thomastank

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Posts posted by thomastank


  1. Does he tell you these things if you ask him?

    Many people with autism have sensory processing issues and may not actually know if they are hot or cold or in pain. If this is the case, then it obviously isn't a speecha nd language issue, but might be an issue the therapist can flag up.

     

     

    To be honest, if I say "have you got a tummy ache?" I think I am putting words into his head so wouldn't necessarily trust the answer.

     

    He did run through stinging nettles the other day and have a rash up his legs, he didn't say anything until I pointed it out and said what must have happened. On the other hand I think he can feel some pain. When he broke his leg when he was 1, (long story) he started crawling round the hospital and the nurses wouldn't believe that he'd done anything until we insisted he had an xray. Of course we didn't know about his autism then but it makes me think that he has a very high pain threshold. Sorry, just thinking out loud and am kinda off the speech and language topic I started but I'm just trying to piece all these things together and work out who needs to help him in various areas (or what I can do!)

     

    thanks for "listening".

     

     


  2. Hello! My son, HFA, 5 yrs has an appointment at school to see a speech and language therapist coming up. Although his speech is generally good, there are some things that he cannot seem to grasp ie he has never told me he is hot /cold, has tummy ache/headache. Would these come under S&L? Does non verbal communication come under S&L? He also gets he/she/him/her muddled. What other non obvious things would come under Speech and Language? I don't want to miss out on any help if he needs it just because he can hold a conversation if you know what I mean? Hope I'm making sense.

     

    Thanks for your help. TT x


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    Hello and welcome. My son is 5 and has a diagnosis of HFA. He's staying with the new recpetion children too. Second day back today and so far so good, I think he was looking forward to getting back to the routine. Is your son back now? Something that has helped us with certain situations is cartoon drawings, we draw stick men to illustrate certain behavious/situations and show the end result that makes mum/dad/teacher/siblings happy. Does your son have visual timetables etc.? are the teachers understanding?

     

    Take Care.


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    Hi there, I think you should push for a formal written diagnosis if you can. I'm afraid I don't know about Cahms as we have never used them but I'm sure someone will be along soon who can help. As for DLA, she doesn't have to be physically disabled. There is a good breakdown of the form somewhere on the net, it gives you ideas for filling in questions so you can see if you think you might qualify. If I find it I'll post it on.

     


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    Hello, I'm pleased its all good for you. Our mainstream school is great too, I've been helping out there voluntarily when I can as my son's TA's are voluntary too so I feel I am giving something back. I hope your son continues to be happy.

     

    As others have said thank you cards always go down well, especially ones that the kids have drawn, my son took in some fir cones that he had decorated with glitter last Christmas and they went down a treat (or so they said :whistle: ).

     

    Oh, and btw, I'm shy too but find myself standing up for my son more than I would ever do to myself (and secretly fuming about some Daily Mail article today that implied that giving children with ADHD special passes to 'queue jump' rides at theme parks was wrong and they should be made to run around to burn off excess energy!!!! :wallbash: )


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    Hello, sorry I tried to post yesterday and then my computer crashed I didn't have a chance to come back!!!

    My son says the same things in certain situations, ie when he sees a baby, he says "ahhh isn't he gorgeous" and strokes them! I think at some point we taught him that and so he will say it without fail. The parents are always gushing and saying how lovely it is to say that so it just carries on for the next baby!!!


  7. My son Glen who is 15 and is severely autistic, is and always has been very repetitive, are there many autistic kids that are similar? Sometimes Glen is less repetitive than others, at the moment it has increased again. It's always the same things that he says, food items as Glen is obsessed with food. Glen will continually repeat the food items he thinks he is getting today or tomorrow, particularly deserts and breakfasts. Glen is also more repetitive in anxious situations, i.e. School. It would be interesting to hear back from parents with their experiences of their kids being repetitive.

     


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    Hello, sorry you are not getting any further. The NAS have a list of support groups all over the UK, maybe you could find one near you? I grew up in Essex, and my mum is in Suffolk but have since moved to Sussex. Also it might be worth you trying to get on an Autism course to meet local people who might be able to give you more info? Have you got another appointment at the CDC? Did you have any luck with Portage?


  9. Hi everyone! :thumbs:

     

    I have been browsing for a little while and finally plucked up the courage to post...

     

    My husband and i have a 4 yr old son (well, almost 5 ) who is being observed for a possible ASD, most likely Asperger's. His next appointment is in October. He is starting mainstream school in Sept.

    Putting it plainly, it is 'doing my head in'!! Some days he is fine, happy, and some times even finds a little play mate. Other days he is soooo clingy, will cover his ears when in the presence of other children, shout strange words which he has made up himself. He will talk a lot of jargon and won't seem to understand what we are saying / asking him to do.

    I have just deleted the rest of this post... I had typed a hell of a lot of stuff but I feel that all I'm doing is putting him down all the time. I can't do it. :unsure:

    Basically our son is showing a lot of the signs of an ASD and has done since around 1yr old. We're finding it hard to deal with on some level purely because we feel in limbo. I think that when (and if!) he gets a diagnosis we will all find it easier as we will understand why he does the things that he does and be given the advice and support we all need. At the moment, I am not telling him off half as much as I could as I really don't think he understands that some of his actions are 'naughty'.

    I could go on and on and on...

    Anyone else go through this total confusion stage??? He may not get a diagnosis, but we strongly think he will. (see - my head is two and fro all the damn time :wallbash: )

     

    As I know you will all understand, we love our son more than anything in the world and just want the best for him.

     

    Hope you are all having a fun Saturday - we're off the fill the paddling pool!!

     

    Zebedee xxxx >:D<<'>

     

    Hello and Welcome! I can totally identify with you, my son was diagnosed with HFA aged 3. He is now just five and about to go into his 2nd year at school. His (mainstream) school have been brilliant. Limbo land is horrible and it will be much better when/if you get a diagnosis. As Nicky has said, keep school informed as much as poss. When my son started we sent in a booklet about him and the things that troubled him (like your son noise, playgrounds, school bells etc.) and things that he liked/settled him. My sons school had no previous experience of ASD and they have done wonders, Good luck with yours! xx

     


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    Hi, I'm another positive for mainstream (so far!). My son is 5, just finishing reception. He has achieved an enormous amount academically, from not knowing any letter sounds at the beginning of the year to the best reader in the class. Also the highest at 'maths'. He doesn't have a statement but receives a huge amount of support and virtually has his own TA. All the staff have been given Autism training. He struggles socially but is normally taken aside and children play with him in smaller groups. 'Lessons' are also in small groups on ability rather than a teacher teaching the whole class. He will stay in reception another year so to give him a chance to improve his playing skills etc.

     

    He is agressive, hits, kicks and has bitten his teacher on occasions but has improved enormously. I'm not saying he will always be in mainstream, I know he will find it harder as he gets older, both academically and socially but at the moment I am confident he is in the right place. I have a great deal of support from the staff, I work voluntarily one morning, partly because I like it but partly because I can see my son and know exactly how he is getting on and keep the home/school support consistant. Good luck with your school, I hope you are as lucky as I have been.

     


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    Hello, and welcome. I am glad you are getting support from school, my 5 yr old son has a very good school too - his teacher is amazing. I'm sorry about the bullying but as you say, once the other children know more it might make it easier for them to understand.

     

    Hope you find all the help and advice you need here.

     

    Good luck


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    Hi Lisa, Welcome. My son was diagnosed last year when he was 4. I struggle with his behaviour too but he has made huge improvements this year. Have you been told about any strategies to help your son such as visual timetables and giving him more warning when changing activities etc./help on identifying what triggers the behaviour? Holiday's are often harder due to lack of structure.

     

    I don't know if it applies in Scotland but ask your health visitor if Portage is available in your area, it is a pre-school service where someone will come to your home and give you advice, it would be worth it even if you only had one or two sessions before your son started school.

     

    I too was very worried about my son starting school, it turns out that his school is fantastic and his teacher has made it her mission to attend every possible course on Autism to help my son. I hope you are as lucky as I have been.

     

    Good luck, life does (in my experience) get better with time but its a lot to take in at first.

     

     

     

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