justine1
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Posts posted by justine1
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I agree with everyone else really. Sam was got his statement in 2010 when he was in year 3,he just started at an ASD unit when we had to move. When I moved there was only one ASD unit nearby which I was not happy to send him to and so he was out of school for 6mths while I looked around. I went to look at a EBD school recommended by the SEN officer,they suggested this because of Sam's aggression, I travelled 45min to see the school. The building was new and clean and the headteacher seemed great. He sat down with me before showing me around and said he could not understand why they sent me to look at his school,he said he has read Sam's notes and anybody with sense can see his outbursts are due to his ASD nothing else,once there are staff who know about ASD he will be okay. He went on to tell me about how it is a common occurance for teachers to get hit,and pupils fight alot,he explained about how the children are restrained and how this would be inappropriate for an ASD child to witness. He said Sam is likely to get worse at his school. I left knowing it was not right for him and was so grateful for his honesty, I did not even look around in the end. If it was left for the LEA they would have been happy to send him there,I don't even think they ever read Sam's file.
Definatley go for ASD specific,thats my advice.
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Have you thought of applying for stat utory assessment,to get a statement? You do not need a diagnosis and he is already on SA+,you can apply without the school backing you (though it does help.) If you do this you will likely get ed psych reports and from behaviour support,these can furthur help your DLA claim.
I would personally persue getting him adequate help in school as it seems they are not following the rules,like the IEP which is supposed to be reviewed at least every 6 months. Once you have done that then think of DLA. The DLA money won't help as far as getting him the help he needs in school.
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oops I was supposed to edit but pressed quote,very tired!!!
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That is a good point. Most of school loo's are little for younger ones,so they look different to the ones at home,some also have urinals and some also have the gap things at the front of the toilet seat. These could be quite confusing especially if your child has onlt recently toilet trained.
Cleaning/wiping is an issue with my son who is 8.5 yrs old,I have tried everything wet wipes etc. Encouragement does help alot but as he gets older thats more tricky as I am not allowed near the loo. But definatley give the wipes a try as they do work for others.
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when my dd was in nursery she refused to use the smaller childrens toilets so they allowed her to use the staff loo it solved her problems.
That is a good point. Most of school loo's are little for younger ones,so they look different to the ones at home,some also have urinals and some also have the gap things at the front of the toilet seat. These could be quite confusing especially if your child has onlt recently toilet trained.
Cleaning/wiping is an issue with my son who is 8.5 yrs old,I have tried everything wet wipes etc. Encouragement does help alot but as he gets older thats more tricky as I am not allowed near the loo. But definatley give the wipes a try as they do work for others.
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Hiya,
This is my first ever post on any forum as we have only recently had a provisional diagnosis my the doctors who r only just sending a questionnaire to school so we r in very early stages of diagnosis so a lot of the lingo u r using is going over my head lol!
It's a very long story but basically my son is 10 (yr 5) he is very well behaved at home in general to the extreme that we only went to the doctors in September with the poss of autism (aspergers) he has always been different, he likes music and dancing and needs our attention all the time, gets upset when unstructured/routine things happen, NEVER has friends as he alienates them as he's very bossy and controlling his last school I was in and out every week because they said he was naughty and vindictive and they were concerned with how he played with younger children all the time and believed it was so he could control him anyway long story short we had been trying for no connected reason whatsoever to get him into a music school (this is still a state school) only its set inside a secondary school with only 40 children years 3,4,5,6 so just 2 classes with 20 mixed year kids in, my son is in year 5 of the mixed 5/6. We had to audition to get into the school and he failed twice so 3rd time lucky (3 yrs of trying) he got in hence being year 5, I genuinely believed starting a new school where the children had similar interests etc would be a brand new start for him and all our troubles would be in the past (obviously still not knowing about the asd) anyway the school is 45 mins away so I paid for a school bus for the entire school year as this was always the intention, on day 6, he got off the bus with a huge black eye
I was horrified, the story then came out that my son had approached a year 11 student aggressively because they were tormenting his friend, he then attempted to hit him so was pushed off and hit his eye on the bar on the bus, my son was then banned from the bus for a week, when he was allowed back on he had a key which was given to him for emergencies for his grandads house but as it was new and important he had it out on the bus and was tapping it which was annoying other passengers so a girl that's 2 years younger than him snatched it off him and wouldn't give it back, he got increasingly more frustrated and annoyed and got her round the throat to force her to give it him back, unfortunately this girl has a sister a year older than her but still a year older than my son and they told thereAgents and my son was banned for the rest of the term (I totally understand this as I was mortified my son could do this to a girl and that's younger than him and if I was her parent I would also be complaining) .... The problem I have is that the parents have requested my son does not go anywhere near them AT ALL which means if they are talking to someone he wants to talk to he has to wait until they have finished and come away before he can approach that person!! ... I was really unhappy about this and called it rediculous the school said it was extreme but not rediculous and claimed the sisters are petrified of my son and are having night tremors and crying because they don't want to go to school, I therefore accepted this and encouraged my son to stay away from them, I talked every morning and evening with him b4 and after school to make sure he thought about it etc, he often reported to me they were still approaching him and taunting him that he wasn't allowed near them or they would tell their mum and called him names to try to anger him etc etc until one day my son was witnessed saying something to her he says he was warning her she was making him angry she says he said was going to kill her (no phsical act took place just words and no one over heard so no witness as to what was said) my son was excluded for the day!!!!! ... Mainly because he hadn't stayed away like was instructed! .... (at this point I'm still unaware of his asd so I kind of had to accept that his behaviour was unacceptable even though I thought harsh punishment) ... Then we had the provisional diagnosis which I applaud the school for all the measures they have put in place as they only have what I have told them the doctors have said and haven't even received the paediatricians questionnaire yet! They have got him a councellor, referred him to camhs which I have a date in may, we have been seeing a psych at school and working on an iep (or whatever it's called lol!) he has a t/a to greet him at the beginning of school literally for 10 mins the reason for this is to put him in the right frame of mind for class time so he starts the day happy instead of anxious, ... So I'm sure many of you will be thinking the school have been very good getting all this In place without anything on paper from the docs and I agree 100% he also went on a 3 night residential trip with school a few weeks ago and was reported as being SUPER! I've not had any phone calls at all since his exclusion and his behaviour has been reported as he's doing much better and seems to be really making. The effort, .... However .... On Tuesday an incident happened where he had set up a game in the corner of the playground where he had cornered the are with cones and had some fellow students joining in (which is an achievement on its own) he was happily playing with them and them with he, he thehad to go and fetch something to do with the game from another area of the playground he had been gone all of 2 minutes and when he returned the sisters he is not allowed to go near were inside his coned area talking to the children he was along with, my son saw red and shouted they could not be there as it was his are and his game and not allowed near them, they wouldnt move so he pushed the younger child (she did not stumble or fall over or have any marks it was purely a push and he stamped his feet a lot by all accounts) anyway after school the girls told their mum and she confronted my son outside school and frightened him half to death as grandmas was picking him up this day and was slightly late, he was up in the night shaking with fear and crying and every morning since has been on his guard looking for her car when I dr him off!! The girls normally get the bus that I mentioned before so I very rarely see this mum in question so I went to school first thing wed morning and reported this they said they would look into the incident which they did and what I've said above is what they reported back to me as happeneing so they decided to isolate my son for the day as punishment for pushing her and they openly said if it had been another child and not one of these sisters that the punishment would have been different!! ... So it only do I have the battle of his asd but also the fact that it appears the parents of these sisters will not stop until my son is out of the school and I feel I have no leg to stand on
.... I pleaded with school not to isolate him saying he is well behaved in class and isn't even with the girls as they are in the other class 3/4 he's in 5/6 and that could they not appropriately punish him by him missing lunch break which is when the incident occurs but they said he needs to see how serious it is and that just because he's been well behaved for a while and stayed away from them that he cannot slip back like this plus they didn't do the isolation til Friday when the incident happened on Tuesday which has added to his anxiety and they have said will speak to the mum next week at some point!!!!I guess I probably have a lot of questions but I think one of my main ones really is just what would you do in this situation? Or do you have any advise of who I could speak to and where I can go for support? Or if indeed you think school have handled it correctly and I'm being over sensitive lol! ... I appreciate any advise good or bad at all because like I said at the beginning I am brand new to all this and do not really know a great deal,
Thanks for listening to my rambling I think that alone has helped lol!
K xxx
Hi
Welcome to the forum. I personally feel the school are being harsh. Was the exclusion legal? did the give a letter exaplaining what happened and for how long he would be excluded,did they sign him out on the register so that it was authorised and did they inform the LEA? Regardless of whether he has a diagnosis or not it can still be illegal if the school have not followed the rules.
Of course if he did make a threat to the girl it is not good and he should be punnished but it still seems harsh. I believe it could be a case that the mother in question is putting pressure on the school to do something,she possibly feels, given your son is older, that he is being a bully,its not very nice but puts the school in an awkward position.
I have been in this situation with my eldest son ( does not have ASD) and my son with ASD. My eldest son had a problem with a boy in the same year as him,the boy and my son were both very bright and I think it was a case of jealousy. The boy is an only child and his parents would come rushing to the school to moan about my son constantly,it was always such petty things,my son has never had a reputation as a bully and is known by everyone as being sweet. However the school still had to act as the other boy was a pupil and the parents made these complaints.
With my son with ASD he got a reputation as a bully when he was about 6,I cannot say I blame the parents as he did lash out and would pinch and bite alot. His exclusions were legal,despite one being before he actually got his diagnosis,it was what I would expect the school to do if roles had been reversed. I did have a confrontation with one mum who decided to give me parenting advice,I was really upset and told her if she has a problem to talk to staff not me as they are dealing with it. I do think the mother is really out of line for confronting your son,she could have spoken to the school and if she wanted to talk to you she should arrange this through the school as well.
Sorry I don't have much to suggest about what you can do other than just keep communicating with the school,keep a diary of all incidents and possibly a home/school diary where the school can inform you how he has been,this will help in the diagnosis and statementing process.
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Hi
Just to let you know the emotions you feel are normal. I felt the same when I got Dan's dx,not so much with Sam because with Sam I did'nt know anything about ASD and I was "pushed" more by the school,it was all quite rushed so did'nt have time to dwell.
With Dan I had read up on ASD because of Sam's dx and because he already had speech(and other) problems for so long I just felt it must be ASD. I don't know what I would have done if they said it's not ASD. I did say to myself before hand that I may be wrong and if so I will leave it at that,not persuit it any furthur but I am not sure if I would have really left it given how much I see him struggle. Though I still give the advice that it is not good to keep "pushing" for a dx for one particular condition it may mean that idea takes over your life and you see things that are'nt necessarily there or read too much into things. It also means you losing precious time with a child whilst focusing on "fighting" with professionals. I would'nt think its worth it. Then again as I say I am not sure if I could do that,really hard!
The good thing(if you can call it that) is that Finn already has a dx of global development disorder, so despite as if he does not get an ASD dx he already has a dx. This will get help at school,which is really important, and when it comes for that help it is very similar to ASD ,if he needs a statement he could get one and even could get to a special provision. Regardless he will be able to get annual reviews,so if no dx now he may get another at a latest point.
Definatley don't feel guilty it's about trying to understand why he is struggling with certain things and thats what a mum does try to help your child.
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Hi
As I mentioned in one of your other posts Sam was excluded four times in about 6mths when he was in year 2. Although I agreed with at least two (possibly 3) one of them was done to push along the statmenting process,I was not that happy about it at the time but the end result was that he did get his stament quite quickly with no hiccups along the way.
So my advice would be to make sure you get all the paper work involved when the incident occurred. By law the school should send home a letter on the day of exclusion,in it should state the date,reason for exclusion(giving the whole summary but excludes names just initials of those involved) the duration of exclusion,return date and time of return as you should meet with the head and senco upon returning. Also keep a diary of anything significant. Try see if his school can provide this letter even though it is late it is still important.
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Hi
As far as I know,at least in my case,it was more about what the child requires i.e specialist/ASD teachers as opposed to the hours. Sam was 6 (year 2) when we were going through statementing,he already had 1:1 and was only at school 9-12,he was excluded four times in less than a year. So by May(around half way through statementing) the ed psych arranged for Sam to start at an ASD unit without statement because of how serious things were,they said it was very rare.
When we moved I tried him at mainstream again but it did not last....just 3 half days and they wrote to say he was "out of control." His statement does not have that many overall hours,the hours specified for each need is sufficient but I know others with more than Sam who do not attend a special school or unit. Again I think its more about what the child needs and the wording as opposed to the hours....quality rather than quantity. Example would be that Sam has in his statement that he gets access to SALT but this actually is not specific with time but because he is at a unit he gets SALT twice a week,once 1:1 and once in a group, so he is lucky in a sense.I know if he was in mainstream he would not be able to get anywhere near as much support.
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That sounds really good. I gave up looking for someone to care for Sam and Dan,though slightly different in that I needed a childminder/babysitter. I did have a really good babysitter but she was not very reliable. So now my partner has to help while I go to Uni its not ideal but no choice.
I hope your son will get along with the carer and that you can have a break.
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What about children, or adults for that mater, that do not have the mental capacity to understand the concept of having a goal or ambition. How do you measure there success.
Well I am not in that position,so I cannot personally answer that. I mean I was in the position where my son (Dan,HFA) did not talk and did not communicate other than screaming,for the greater part of 3.5years,I felt at the time that maybe he will never aspire to be anything. However I just carried on treating him the same as his brothers,I sit down with my boys everyday and read to them or they read to me,they are given "homework" as the schools do not give them enough(or sometimes nothing at all.) I instill in my children that nothing is free in life,teach them values etc. I guess for me every progress my children(again whether NT or ASD) make is a success in my eyes. My youngest is 2mths old,when she smiled for the first time it is a success,when she will sit walk etc it will be a success,even if she does not reach these milestones on time. So when Dan could talk I knew not to underestimate what a child can achieve over time,small achievments or big achievements all amount to something.
In my case I know I will never be all that wealthy,I have many responsibilies that extend beyond just my children. I have to work hard to support other family members who are not so fortunate to support themeselves, for this I am successful.
My point,as directed at the OP,is never to just conclude that one cannot reach their potential because they cannot talk or walk or whatever it may be. As a parent it is important to support,motivate and encourage children to reach whatever goal they may have. Again it was aimed at the OP.
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Just an update really.
I spoke to the school and they suspect it may be from the noise,he was given ear defenders to use during the science lesson. However it only seemed to improve for two weeks and now(since returning from easter break) he is complaining again.
Today he came in very angry and tearful and its not like him. I keep requesting from the school that an ed psych be called in but it has not happened. I have had no problems with the school,this is the only "hiccup" but they do not seem to be listening.
Just frustrated...sorry.
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Glad things are looking up. Make sure you have everything in writing,most important is his full diagnostic report with a time length to review(4mths) on it.
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I would put as they can be just as successful in reaching their full potential as any other child.
For some children, no matter what, they will never achieve "Success" when measured against the "norm".
In order to measure success you first need to define what success is for that individual..
I did mean individual success or goals.If one of children has a goal to be a doctor and the succeed then they are successful,if another child has a goal to be a binman and they succeed they to are successful.I just know I would not want any of my children (ASD or NT) to not have any goal or ambition,no matter how big or small it may be.
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The point I was making is not aimed at this particular case but the fact that I think it is important that we apply the same criteria to teenagers with AS as we would in general life to others. I think we are often very quick to judge individuals with AS yet there seems to be little in the way of this sort of judgement spread out through mainstream society. A lot of us have very strong ideas of right and wrong and see things in black and white terms, in contrast society as a whole often takes a very flexible attitude which in the main I find is about serving self interests. In reality none of us are perfect.
Just some personal thoughts, it is a forum after all.
My own view is that I treat all four boys the same,so if Sam or Dan (who both have ASD) miss school OR if Josh or Eli(both NT) miss school the same rules would apply. As I mentioned on another post I have the same expectations from all my boys,maybe its unrealistic but thats how I do things. I cannot treat them differently it would not be fair. Society is not fair and I want my boys to be prepared for the big world not sheltered because they have ASD,whether its good or bad I cannot say but it is what it is. We cannot change the greater society so we have to adapt and adjust to it.
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That was weird - Justine1 and I must have some sort of ESP going on LOL
Really agree with your method
I use the same for my son.....well actually for all my boys'. Sam's school do the same so quite effective as its the same discipline home and school.Love the idea of a contract and definatley a good idea to implement a timetable,both for normal school days and those days when he does not attend,also weekends(though its tricky when you have lots to do.)
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well so far av managed not t give him the x box and will try my hardest not to give in until he attends school. the last time i tried this the stand off lasted six weeks without him goin t school and therefore not having the x box and every day was a living Hell. smashing up furniture. threatening his brother an sister. waking them up in the night purposely. school mentor was out to him. attendance officers. even the police! to no avail. unfortunately i gave. in in the end so the six weeks ov Hell were for nothin!
I don't think he should have a complete ban but just during school hours. Does he have a set duration for playing x-box? If not maybe set out one,say 1 hr 4-5pm then break at teatime then maybe another hour later on(depending on behaviour) if he knows when he can use it and that it will be removed if he does not listen then it will be mor eeffective as he knows what to expect. Then say during weekdays from 9am-3pm he cannot use the telly or xbox. Just an idea.
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I am not trying to be provocative here but make a point from an AS perspective in general terms.
' In the real world he cannot just constantly call in sick when he has a job and sit at home playing games or watching telly all day. '
In the real world people play games all the time, and I am not talking about computer ones. If they have been in work every day for a large block of time they often think if they are feeling a little down I will ring in sick, I could do with some time by myself, I have earn't it. I worked with a teacher once who never took a day off all year but would be sick for two days when the All Englan Lawn Tennis Championships were on at Wimbledon. This continued until one year she was spotted on the highlights show on centre court. She was repremanded and asked would she have been given unpaid leave to go they said of course not! She never went to Wimbledon again but was off for I guess around 20+ days a year after that, funny how these things work. I am not saying who was right or wrong just using a real example.There are also many other people in the real world who ring in with a 'sicky' at the first sign of anything like a cold just in case it turns into something deadly wouldn't want to pass it on. There are also sections of the real world who perpetuate the notion that it is a cardinal sin to take some time off no matter what the reason may be. In the real world we all play games with each other and try to strike a balance.
I am not saying that in this instance he should have gone into school or not. Just like other sections of the populace, members of the autistic community have a wide range of personality traits. For some slight stress levels are possibly a very good reason to take a day off, other play the hero and battle through the stresses of daily life often paying a heavy price for doing so. But as with illness stress can be dehabilitating and sometimes we are the equivalent of being ill.
I everybody had a similar personality type we would find it easier as a society to strike a balance as to what is acceptable behaviour whilst at the same time maintaining our rights to individuality and personal freedoms. Because we are different this will always be a difficult area as such we often have to make our own decisions in life and live with the consequences I think that is a lesson we all have to learn.
Just a few thoughts.
Well clearly from your example it is not the right thing to do. Yes people take a sicky but he is still a child and should be taught its not the right thing to do,when he is an adult and decides to call in a sicky that will be his decision and he will face the consequences but right now its his mum that will have to deal with the LEA as he is not de-registered from school and from the OP's posts he has missed school on quite a few occassions. I also feel that a compromise was made in that the OP said he can go in for just 2 hrs but her son went back on the agreement by refusing to go.The OP then allowed(not that she has much choice) her son to stay home on condition he does not play games which is reasonable IMO.
As I say at 14 he should be learning life lessons and I personally believe his mum is doing the right thing and reality is one cannot always use their ASD/depression/anxiety as an excuse not to go into work,thats not an opinion just fact.
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Honestly you did the right thing. It is hard to do it but important that he knows if he is going to be home he needs to do some form of work that it is not a day off. In the real world he cannot just constantly call in sick when he has a job and sit at home playing games or watching telly all day.
My ASD son age 8 also throws things when I remove something as a sanction,things get broken quite often and he has very loud scream,which means neighbours have complained. However I know I am doing the right thing and sometimes he just knows when he has done something that he will be punnished so now he will go to his room and have a cry instead of throwing things.
Of course its important to find a solution to the problem,and you cannot drag a 14 yr old to school. But while he is at home try and print off work from online for him to do at home or ask the school to provide work legally they should do so as he is registered there,even if he won't do it at least you have given him something to do. Explain that everytime he is at home he is not allowed to use games or telly. Even when my boys are home due to illness I don't allow this because if they are thruelly ill they need rest so they remain in their bedroom until 3pm thereafter they have their usual telly/game time.
Keep on at the GP to push your camhs appt. forward.
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Hi welcome
I have four boys(from previous relationship) and a little girl with my new partner. My eldest Josh is 11 NT but gifted, Sam 8 ASD/Aspergers, Dan ASD/HFA and hypermobility syndrome and Eli 3.5 NT (though very hyper active,had speech delay,just waiting to see how he gets on when he starts school.)
Gone through statmenting with Sam in 2010,took greater part of 10mths to get everything in place,he now attends an ASD unit attached to mainstream and does well.
Hope you find all the advice and support you may need.
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Hi
Yes definatley get it in writing and when he has been to camhs get anything they say in writing to,it really helps when getting any support he may need. I was a single mum with my four boys (2 have ASD) for over three years and although I now have a new partner it does not help in that he is not their dad so he does'nt feel he can discipline the boys and does not help with the day to day stuff,he is more of a friend to my younger 3.It is very hard going. I know very well what you say about his father as my boys' dad will not accept it either.
I think given he is missing out on his education by missing school or doing reduced timetable it may be worth trying to get a statement,now would be a good time as he still has a few years left of school if you leave it longer he will give up altogether. Have you sat down and asked what he wants long term as far as goals/careers and also why he does not want to go to school? Maybe you could look at other schools or options for him,look into it first and then talk it over with him. There are ASD units attached to mainstream,which is similar to what his school offer now,in that it has a smaller class size but the difference is the staff will have some knowledge of ASD and how to deal with behaviour and get your son to work positively. There are also specialist schools,which many focus less on academic and more on life skills,these are few and far between and often you would have to go to a tribunal. Lastly there is home education,which would mean de-registering him,it will only work if you and him are well disciplined and structured,that there is a clear line as to when its hi school work hours and "home" hours and what he should do during these hours.
Speak to camhs when you go they may also have suggestions or point you in the right direction.
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hi thanks so much for you msg, yes they have said he communicates very well non verbally, and has a good understanding, and i notice everyday he is understanding alittle something else. we havent had the full report yet, i had alittle chat with the assers, and i got the gist of what they were saying but we do have a big meeting just to confirm there thoughts, just waiting for that too. yea the speech therapist told us to use simple signing with him just afew words so we do that.. im just so desperate for him to talk, because the older he gets i just worry now.. i so hope he is like your kids and it kind of happens over night. sometimes i talk that much to him im so tired at the end of the day. He started preschool jan, two days a week and they are happy with his progress he babbles more and is more interative with the children. did you watch the show the other night about autistic kids, im so worried after watching this show that my son will perhaps get worse with things or not talk at all, or are they really servere? do your two autistic children have a bright future do you think? again after watching that programe im thinking if harley is on the spectrum how bad is he, will he be able to do normal things work ect.
Yes I watched the programme,there is a thread for it under general discussion,you will see mine and others opinions.
With both my boys I have high expectations despite their diagnoses. They have an older and younger brother and they do not have autism so I try have the same rules and the same expectations from all four of them,I don't think it would be fair otherwise. I strongly believe that if a child has the right school/education and the parents are committed to helping their child be all they can be,by structure,consistency,setting goals,having consequences and rewards,as well as patience and understanding,then they can be just as successful as any other child.
generally parents want alot for their children but whether they have autism or not who is to say these dreams we have as parents are the same dreams our children want or whether they are even realistic. I know I want all my children to work/study hard,to get a job no matter what it may be, so that they hopefully will not live off the state. I know it may take longer for them to reach their goal but feel it is possible. I am 29 yrs old and although worked since age 16 I am only now able to study what I want and working very hard to get into the profession I love,so I can show my kids its never too late.
What Chris mentions is quite true in my case as well,because my boys generally do well at home and school it would not be that interesting if they were on telly,so the kids they show on telly are often to get people to watch,it is not to say its "put on" but it is the very worst cases IMO. Like the "outbursts" shown are said to happen X amount of times and everyday. I cannot say the same for my boys,similar outbursts may happen prehaps once a week. They are very energitic,Sam stims alot which is noisy and can be distarting if we watching something or doing work. Dan is just everywhere does not sit still so it is exhausting trying to prevent him from hurting himself or others when he gets carried away as he has no concept of others/objects around him. They both have trouble eating,though better with age and both have sleep problems(though different types.) So as I say it is so much more than just the speech. I think its great that your son is improving at pre school/nursery and I am sure the more the hours increase and with him getting older he will continue to improve.
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Mel is right. Just be very careful about the words you use and don't make any accusations merely state what your son has told you. Does he have a diagnosis and/or statement? Prehaps if he does have a diagnosis you can ask the school to get some help through autism advisory at the local SEN department/council. They can give advice on how to manage your son's behaviour. Also if he is getting any snaction you should know about it so the best thing would be to start a home/school diary where they can write what kind of day he has had. Any incidents should be loged in the incident book at school,you can ask to see it. These can help if you do go down the statementing process.
Remember he is young and can over exaggerate and prehaps if he is unhappy may be trying hard to find a way out. I do think what your daughter said may be true as my eldest son witnessed many times the staff removing Sam from the hall during assemblies,because Sam would resist it probably looked like they were harming him but I do think they had the best intentions he could not cope in assembly and also distracted or even hurt others.
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Hi
I would say that given you are being seen every six months do not worry too much. The more you dwell and read and watch on these things the more it plays on your mind. I would focus all your energy into helping him communicate,has the speech therapist given you things to do at home? If not maybe google things you can do to help him.Even if he cannot communicate verbally at this point there are all sorts of ways he can communicate,so maybe explore these options as it will help both you and him feel less frustrated.
Did they give you full reports from his assessment? Maybe you can read through and highlight things that may concern you,if there are any. This will help when you go for your next appt. Also make notes/keep a diary on other behaviours. At the end of the day ASD is not just about speech it is so much more than that.
My son who got diagnosed age 6 had very good speech he could talk very well age 2. It did not always make sense but he knew many words,lots of complex words,and could pronounce them clearly. Then my other son with a diagnosis could not speak,would babble like your son and also scream alot,he started "talking" age 3 just out of the blue,but only started properly age 4 and even now that he is six his speech is unclear at times.
My last son is almost 4 and he also had same trouble with speech,he came on really well when he started full time nursery(age 3) and again almost overnight he was talking. He had been to two different childminders before that who both thought he may have ASD as he never spoke a word and never interacted with other children. He does both now and I am not too worried about him now.
So as I say just hang in there he is still young and may happen very soon. Just keep talking to him and helping him learn,even though he cannot talk he is observing and absorbing everything.
Not sure what to do!
in Education
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I suppose it depends on how long it will be until you move, if it is within the next 6mths maybe you can wait until then to complete both DLA and start the statementing process. Only trouble is the new school will not know him that will and he will need new IEP's etc,so probably another 4-6mth wait. So that will be almost a year. Some of the other suggestions are very good so just keep trying.