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justine1

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Posts posted by justine1


  1. Thanks unfortunatley the boys have an xbox and my partner has a playstation so it would be a waste of money if I got a wii as well. I may get an exercise bike,where I live the cheapest gym membership is £25p/m,so I could get a very decent bike for the same cost as an annual membership.The gym is very conveniently located behind my home and on my way to work/placments however it is all about time and I definatley won't have time to go to gym,I would love to though as I think its more motivating when you know you paying for something each month you more likely to make use of it,unless you super rich of course.


  2. I think the odds of having ASD and OCD are equal to that of someone without ASD (NT) having OCD,the difference is someone who has gone to get a diagnoses of ASD may have been assessed or just given the dx of OCD at the same time,or following the dx. Whereas someone who is NT may never be assessed for anything and as such may assume the behaviour is "normal" I know plenty (at least 15) people who display many OCD symptoms but may not have enough to get a dx or just may not wish to have one if its not presenting a real problem in their day to day life.

     

    Also many of the OCD symptoms overlap with ASD behaviours so it may also be hard to distinguish whats what. My eldest son is a bit OCD but he is NT and one of my ASD boys also has symptoms but the other does'nt, so as I say I think the odds are the same.


  3. Having five kids and uni to attend I don't have much time for gym. I would love to go. I had my daughter 6months ago and was jogging everymorning for one hour for just over 2mths and was great. I lost my "baby weight" but now have put weight back on. I want to be size10 currently on the cusp of 12/14 and weight 67kgs,not happy at all. I just do calorie control at the moment which has kept me at the same weight for three months better than gaining it I suppose!


  4. As some my know I have four boys,middle two having diagnosis of ASD. Eli is my fourth son and had a few complications at birth and suspected hydrocephalus at 2 weeks old. He was being monitored by a HV up until age 2.5 when we moved and has not been seen by anyone since.

     

    He is due to start full time next week and has been seen by his teachers who have said the speech may be delayed. The great thing is the school he is attending has special provision for speech and language as well as physical disabilities so I feel quite lucky and hopeful that they will pick up on any delays.


  5. My ex husband (father of my four boys) is like that with our eldest son,Josh(almost 12). Josh is NT but gifted and is very opinionated. Myself and everyone who has met my ex strongly believe he is jealous of Josh and knows he is likely to be more successful,an alpha male thing I guess. Prehaps in your achievements he sees his failure and has resentment.

     

    Never let it bring you down.


  6. I would go for reins,as mannify mentioned.Only that I am guessing he has been out of a pushchair for at least 7mths(given you have a 7mth old) I worry if you get him back into a pushchair he may regress and end up in a pushchair for longer than intended. I did use a pushchair with Dan until he was almost four,I to had a double buggy and so he sat in that. It was an effort to push around as he was heavy,despite him being underweight,however in my case I did not push him around due to safety alone it was due to joint pain,which I now know is hypermobility.

     

    Sam,who also has ASD,has issues with running off he always has done and is 9years old now,whilst he still does it he is more street wise now. I personally think if you can rather explain things to him with pictures about safety and do role play in the garden of how to walk safely,try do some short journeys as practice with the reins and reward the good behaviour. I always think if a child is capable of walking why take that away? The pushchair will solve the immediate problem and make it easier for you but what will it solve long term,what age will he be when he learns how to cross a road safely? Just an idea.


  7. Thee best advice I can give you is to put aside you worries about autism,look at what he can do rather than what he can't and teach him things just like any other child. I have two boys with ASD,their development differed so much and they are two very different personalities. Dan(6) did not talk in sentences until 3-3.5 years old,now he does not stop talking. He used to have huge eating problems to the point where he was constantly fainting and his skin was almost tansparent,although he still has a limited diet he does eat far better since starting full time school. Its all about perseverence and consistency. Read to your child,talk to your child it may seem as though they are not listening but believe me they are absorbing everything!

     

    Its only when they are in year 1 that its much clearer where the difficulties lie and much easier to get the help as you will have more backup from teachers. Just don't do so much research that you forget the basics of being a parent.


  8. This sounds so familiar to me...sadly. Sam loves being outdoors and loves to try and make friends with people in the area. Last summer was our first summer in this house and I let him play out front,with his older brother,he soon made "friends". Firstly he would constantly come in getting ice lollies or sweets and give them out to everyone. Then one day one boy in particular hit him on the arm with a metal pole (like that from a rotary clothes line) I managed to get the pole and was fuming. I didnt let him out for a week and when he did go out I told him to play with these boys who are brothers. Soon they had taken liquitabs and had some sort of "water bomb fight" with them. I took my boys in and then a few minutes later there was a knock on the door my eldest answered but I was right next to him in the kitchen,the mum of the boy had come over yelling at my eldest about how they ruined her daughters shoes etc,I asked her why she is shouting at him and why could'nt she ask me and she got really bitchy. I then said she needed to watch her kids more as her son had hit my son with a pole. Anyway since then my son fears them alot.

     

    He says they are all racist(he is mixed race) and when we go anywhere he has to wait for them to pass by our house before he goes out. There have been negative comments made,under her breathe,by the lady to all of us...including my partner. The irony is my home is one of just three in our street where the/my children have a curfew and bedtime. The lady in question allows her daughter age 6 to roam the streets as late as 10pm. One night a group of them came into my garden peering through my living room,Sam was so upset by it all. We are meant to be moving soon anyway and really hoping not to be here for another summer!!


  9. My son,now 6 but was 4 at the time,was referred before his diagnosis. We went as a family for the first appointment she wanted to see the dynamics,the relationship he has with me and his brothers. I was then asked a few questions whilst they drew pictures. After that it was decided they could not help me as they firmly believed he had ASD and they generally only deal with children who have mental health problems or troubled background. I was referred to the development centre where his brother had a diagnosis and he to got a diagnosis.

     

    Hopefully it will be beneficial to you both.


  10. Hi

     

    I have been in this situation a few times in the past,and agree with what others have said. Firstly you have to try and diffuse the situation before it esculates,you know your child best so I am sure you may see signs of anger,my son sucks in his cheeks then I know he is going to hurt someone so quickly take him off to his room or quiet area. Another thing is you have something to work with in that he was crying and apologised that is a good thing as he understands he done wrong,I am not so fortunate with that my son has to be forced to apologise.

     

    What consequences does he get for his actions? Like sanctions,no telly or games etc. Also if the 6 year old has done something its a good idea to give them both a punnishment it has to be fair. After an incident wait for everyone to calm down and then discuss what happened and how everyone felt,prehaps you can make picture of happy,sad,angry etc (paper plates are good as faces) that your son can use to express himself. Teach him that when he feels angry he can take time out in his room or maybe place a beanbag/chair somewhere where he has a chill zone.

     

    As for parenting classes most people who have had a dx for their child have had to do one or more of these,whilst it may appear silly they can be beneficial and if nothing else prove that you are doing things right,just from experience.


  11. Confused?? In your previous post you said "no such thing as anyone with autism and learning disabilities" but I have just said(and you appear to agree) cerebral palsy is a learning disability and there are a number of paralympians with this disability.

     

    I also don't quite understand what you mean by "paralympian with ASD who has a physical problem" ??? If the person has a physical problem therefore making them physically disabled then they would more than likely be trying out for the paralympics based on this as opposed to having ASD. As LancsLad pointed out why is it that someone with ASD cannot be in the usual olympics NOT paralympics? Unless they have LD which would be treated as a separate disability in any case.

     

    Just to add it is perfectly possible that there are indeed olympians and paralympians that do in fact have ASD but either do not have a dx or just chose not to make it public,if you think of the sheer number of athletes involved it would not surprise me.


  12. I look after my five children. Work 15 hrs a week,go to uni or placements or essays which take up to 37.5 hours a week. Sometimes do housework, sometimes cook,sometimes do the gardening. I visit my father who has COPD,once a week and go to have coffee with my brother,who has had three strokes,once a week.


  13. I agree with Robert. As part of the dx process both my boys had their hearing tested and was done at the development centre where they were being assessed. The staff are trained to deal with "active" kids and they can take breaks if need be.

     

    As for communication,speech is not the only communication tool are you using other ways to communicate or teach him to communicate? My two with ASD are very different,Dan who has HFA could not talk until 3-3.5 years and still has speech difficulty(though he does not shut up!) whilst he could not say many words clearly or at all,and no sentences,he was able to try other ways of letting us no what he wants. He to would cry and scream but generally was due to frustration. Just remember although the speech is not there his mind could be working overtime,my son was absorbing info all the time and still continues to do so. So keep teaching him various things,read to him etc it does work!


  14. I am very fortunate to live 10min walk from where it all began and indeed I do work/placements at stoke mandeville hospital including the national spinal injuries unit,I have met a few of the paralympians and other fantastic people.

     

    On tuesday I took my boys to see the torch event but Sam lasted just 10min,too many people,so took three back and went with just my eldest Josh. It was so great. There were people of all backgrounds singing and dancing. They had various special schools,or adult services involved in art/dance and a choir that had two people using touch talk (not sure exact name..what Stephen Hawking uses to communicate) to sing,it was so emotional. Yesterday we also had a free event at the stadium and there were events like football for visually impaired which people could try...whilst being blind folded.

     

    As for people commenting about LD at paralympics I did see on the news one mum whose son has cerebal palsy,physically he is able but does have LD and competing in the paralympics. Also there are various categories within the paralympics so I do believe they do take LD into account,and disabled people can also try out and compete in the olympics,as has been proved by Oscar Pistorius,who also competes in paralympics.


  15. I thought not everyone with ASD is the same?? I have two boys with ASD one Aspergers, he cannot make social observations instead is taught social rules etc however his brother dx'd as HFA does/can make social observations,ok he may not always apply what he observes but he does comment on things. So I do believe school helps both boys either learn or observe social skills,whichever way you look at it.


  16. Hi I just had one fitted almost four months ago,after having my daughter now aged 6mths. My story is....my eldest was conceived on the pill(Diane) I was on antibiotics and was not informed it effects the pill (I was 17) I then got pregnant on the injection (which caused vomitting and nausea) when he was a year old but miscarried. I then came to the UK without my husband and so didnt need contraception. When we got together again we planned a baby and I then had Sam. I went back on the pill but once again got pregnant and had Dan. My relationship was getting worse (abusive/controlling) and I was trying to get out, two years after Dan was born I left only to discover I was 5mths pregnant and had Eli.

     

    I remained on my own for three years,when I met my new partner we went to the family planning clinic together had checks and I went on the mini pill (I was told due to my brothers stroke and my dads dvt I could not take the Pill) I got pregnant after just two mths of being together...we used condom to!! Big shock as I was finishing first year of my nursing. Luckily I was taking a year out to sort Sam schooling. Anyway I am now back on my course and so needed something reliable....that I didnt need to remember to take...didnt like the idea of the coil so opted for the implant.

     

    Since I got it I get moody,annoyed over simple things. I am similar to how I was when pregnant which is very annoying. I then got the heavy non stop bleeding so went back after six weeks and got another mini pill which stopped the bleeding. I have really bad acne like a teenager. I have put on weight to cause the implant/hormonal change has caused cravings and hunger that I dont usually get,its awful as I had lost all the weight after my baby and it took just 6weeks. I feel nauseas alot and other symptoms. Part of me wants it out the other doesnt as I cant see an alternative and dont want to get pregnant!


  17. Its a broad question as many factors would need to be considered. Like the school the child attends...special school will offer alot more than a mainstream, it depends on the child..what does the child want(if they are able to express this) for their future and what will the alternative be.....not just meeting their academic needs but also social needs,whilst some will say who cares but the more you isolate yourself the more difficult basic communication will become, one may not achieve that much socially from primary to secondary school but I am certain many times it would be more than if parents were to try meet this need themeselves...unless they have a good group of friends already.The character/personality of the child also plus a huge factor I am lucky in that both my boys are not shy to voice their opinion if someone is bullying them they will let someone know and are not afraid of anyone really.

     

    Personally I feel my boys will get far more out of secondary school than if I was to home school. Social skills are not just learnt from groups or friends its picked up from observation to,whilst there are many youngsters I would not with for them to copy there are many positives that outweigh this.

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