taylor

Hi, I'm going to ask my sons paediatrician this Friday for a diagnosis of TS he has been ticking for 3 years continuous . The special school he attends have also written a letter to back this up . They diagnosed him 3 years ago with tic disorder and said he had not been ticking for long enough to diagnose TS . Well now he has . Does anyone know the procedure for diagnosis of TS. Is it the paediatrician who diagnosis ? Or does he need to be referred . He already has a diagnosis of aspergus ADHD DCD sleep disorder OCD .

The school have said that a school trip is not part of the curriculum and that it's only meant to enhance what they are learning in class . Is this right ?

Hi sorry it took me so long to reply but it's my friends son who we and the school think he has ASD . He is compeatly out of control. He gets out of school on a day to day basis and they are talki g about statementing . My son is already in special school , but did attend the same mainstream as my friends son . The school can be quite slow at getting things done . I am in the process of helping my friend getting him diagnosed . He licks cars , bins , windows. Runs into roads he is uncontrolable. The school can't cope with his behavior . They are waiting for reports from professionals before going ahead with a statutory assessment . He is very abusive to staff and adults , spitting at them and calling them names, he screams and is very disruptive . He will think nothing at kicking a teacher or the head teacher. His speech is delayed as well . He has 1to 1 all week at school already but this is still not enough.

Hi all Can you tell me if a mainstream school can refuse to take a child on a school trip. The school do not seem to be coping and are saying that they cannot control him so there for have to exclude him from such trips . Which is a shame as all the other children will be going . We are waiting for a dx of asd . My son is already in special school but my friends son is 4 and already they are not coping . We are also starting the slow process of statementing .

That's great news . A huge weight has been lifted of your shoulders . Congratulations .

Hi Thanks for putting me in the picture. Although I had several dates for tribunal over the few years the LEA backed down every time . My son was not accsessing 98% of the curriculum and the school said its also a health and safety matter that he cannot stay in mainstream . I have never welcomed health and safety until lately . The Kent autistic trust helped me greatly and I can't thank them enough .

Sorry one more thing, because the LEA have always backed down before a hearing date in my case , I don't quite know how the hearing proceeds with its decision . So they don't let you know on the day of the hearing of there decision?

Have you been to a hearing already and waiting a decision ? Or is your date for a hearing approaching ? My son goes to a council run special school and not an independent one . I hope you get what you want for your child. You just have to keep fighting. But you should not have to fight like this when a case is clear cut and the evidence is all there. It needs a school to say "we can't cope any more" well at least it appeared to be like that . I feel like the LEA do not listen to parents , and in truth we know our children best.

Hi I did appeal yes but every time a date was just approaching for the hearing the LEA backed down and I had to do the same for his statutory assessment as well as his statement and changes in his statement and asking for his special school . So all in all 4 times I got a hearing date and each time the LEA waited right up until the date and backed down. I suppose they were hoping I would back down first. So it just goes to show you, keep on trucking!!

Hi I have been a member for a while but never really posted much on here. Just read what people are upto etc. My son has finally got into specialist provision for his last year of primary and just got the news that he will be going into a specialist provision fir his secondary years too. The LEA should have done this 4 years ago . I had to fight tooth and nail to be heard . They did recognise that he had severe needs . I feel that this has damaged him and that the LEA have neglected my son . Is it all down to funding? He has aspergus ADHD tic , touretts , sleep disorder . OCD , DCD . The mainstream school he was attending were telling the LEA they could no longer cope . I spent every waking hour fighting them . Any way I'm pleased to say they have backed down . One thing I have to say is that it has kept ne focused and I didn't get so down with trying to cope with my son . I'm almost bored now that I'm not fighting the educational system. Im now helping a friend and her son to get what he needs as far as a diagnosis is concerned and his education .

hi, and welcome <'>

hi, im not on here very much, but i thought i would have a look. i know i looked at this topic a bit too late, but i get direct payment for my son and get it paid quarterly. its great as it enables me to get a break from my son. i just had a week off as my mum took my son to haven. i saved up my direct payment and used it for a more substantial break.

thanks for the nice welcome. i will fight to the end. i already have his statement but its just getting him into a special school now. all the things written in the statement the school had in place any way, and he is still not coping. i will get what my son needs, they picked the wrong person to mess with. . i love a challenge, once i get my teeth into something i dont let go. i have almost become an expert on the education system and your rights. im sending my appeal off on the 24th of this month, so we will have to wait and see. will keep you posted.

my son suffers from tics like constant throat clearing jolting of the head or shoulders or his arm will suddenly fling out. and vocal tics like humming. after a while you dont hear it any more. it gets worse when he is anxcous or worried. he dont seem to be that bothered about them. but you are right people do say, oh does he swear and i say no, and they say oh! that really gets on my nerves.

its nice to speak to someone who may have simular problems. some times you feel like you are being driven mad. i often find its not my son i get frustrated with , its trying to get the things you want like education and help in genaral. this seem like a great forum for advice and even if you feel like having a rant about what has happened that day. omg i have got so much to talk about.