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lindy-lou

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Posts posted by lindy-lou

  4. Posted · Report reply

    Justamom >:D<<'> The ###### mothers are the ones who DONT worry!!your doing your best and being a great mum,dont base anything on what someone who doesnt know you thinks,sometimes professionals always want to blame us,saves them having to think of a deeper reason!!Just means they dont understand ASD's and need a way to get out of its complexitys,if its any consolation i am too protective of India for her own good at times,but if we dont protect them than no-one will do they.

  5. Posted · Report reply

    My mum was diagnosed with an overactive thyroid many many years ago when i was about 8,she had to have radiation treatment and they gave her too much and ended up making her severly underactive,eevn now she suffers because of it,they cant seem to get her thyroxine levels right and she has recently been diagnosed with fibromyalgia and thyroid problems seem to go hand in hand with that.

  7. Posted · Report reply

    Im surprised that so many of you say the same things about your children,i dont know why im surprised,i think sometimes im thinking in my head is this ME??have i made her like that?does she do it because i let her??But the thing is she is the 3rd child not the 1st and i know i havent purposely allowed her to rule what happens,and even if i did i know i cant control her doing things like having to park next to a silver car,having to go to pump number 4 at the garage etc..

     

     

     

    Hi lindy-lou,

     

     

    He would also insist on the same cup, plate, shoes, etc... he has great difficulty with flexible thinking

    and this is something that his school and us are currently trying to work on. He actually let a child

    have the 'blue' cup which he normally insists on, and he had an orange one :thumbs: big thing for him!

     

    I dont think your little one is trying to play you, I think she is developing little rigid routines to keep some

    sort of structure over what can seem a very confusing world.

     

    Sending some of these >:D<<'>

     

    It's not easy.

     

    Brook ;)

     

    Brook i think your right,i dont think she is trying to play me,i do think these things are incredibly important to her and i had to laugh about the blue cup as she NEEDS to have the red cup at school BUT she wont say that at school but then she comes home and has an absolute breakdown because she never had the red cup at school!!Ive told her teacher but ....well thats another story :rolleyes:

     

    I think that by doing this like you say is her way of keeping control in her world of confusion,i would hate to be ruled by the need to do these things,it mustnt be a very nice way to have to live must it :(

  11. Posted · Report reply

    thanks jb,it does help to know that im not imagining this!!sometimes i wonder if its just me,i find it so hard living by this dictation of where im allowed to walk,what side i have to be on etc etc,i know it is a control thing and i find it tough to be controlled in this way,i wouldnt let anyone else do it to me,but my knee high to a grasshopper daughter manages it perfectly well!!Its the consequences of getting it "wrong" that i find hardest,sometimes i dont know whats right and whats wrong and that something that was right is now wrong.ARGHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHH :wallbash:

  12. Posted · Report reply

    we were supposed to have a psych appointment in march...never came.

    then it was may....never came.

     

    rang 2 weeks ago,was told soneone would get back to me....never have.

     

    rang again today,was told pysch was in a meeting til lunch,she would ring me as soon as she was out of it....still waiting :whistle:

     

    Im undecided as to how much of it is testing the boundaries as kids do,but ive also been told not to think about part of her doing what NT children do,i have been led to believe that i should think of her every instinct being AS,so im not quite sure how to think on that score,i will say though that she is my 3rd child,and my 2nd daughter was very challenging (and still is to some extent) but not on the scale,or same sort of scale even,as what India is.

     

    Thanks :)

  14. Posted · Report reply

    Things having to be done the India way,is quite frankly making life very difficult,the main problem is there are certain things we know have to be done a certain way,but other stuff gets made up as we go along,sometimes i feel like she is just trying to play me iykwim?

     

    we are having an opposite problem with sleeping,whereas before her operation she would be going to bed at 7-8pm and then up at 1-2am and up all hours,we now have her not going to bed til 10-11.30pm,then she is sleeping through but we are not getting any chance to recharge batteries,anyway...

     

    last night she got put to bed at 8.15 pm,she stayed there until 9.10pm when she got up claiming she couldnt sleep,she got put back to bed at 10pm and i fell asleep around 10.15pm,i woke up to her trying to get into bed with me,she managed to kick my (sleeping) husband in the face and he woke up and shouted at her,she was upset by this but i told her it was too hot to sleep in my bed anyway and i took her to her own room,she wanted a bottle of milk and was crying and upset but didnt want me to go and do it,so my hubby came and asked her for the bottle which had a dribble of milk in it,so he could make her a new one,she kept saying in a minute in a minute,so he just took the bottle from her,this resulted in the biggest screaming heebie jeebie fit ive ever seen,she repeatedly went downstairs and begged him to take it back upstairs so she could carry it down the stairs,but it was already being heated up and he didnt want to do it,ive never seen a child so distressed about not being able to carry something downstairs at a specific to her time,i had to just leave her to cry herself to sleep in the end,she was so upset,she wouldnt drink the tainted bottle!!

     

    This is pretty much how my whole day goes,having to do things to Indias order,im not allowed to walk down the stairs in front of her,i have to do everything right and not left first,she has to stand,sit,have her cup to the right and not the left (right is good left is bad) every single person who leaves my house has to do the goodbye routine,if they dont then im left with a screaming sobbing mess of a child,and then i feel resentful towards them for not just doing it!! :wacko:there are so many other things that we have to do it would take me all day to list them but you get the gist of what i mean.

     

    so anyway.....does this last forever?will i always have to live by these rules?fair enough if thats the way its going to be then i can prepare myself for it but if it gets better at least i know there will be some relief one day,i know no-one has the answers i need but it helps just to have wrote that down.

     

    thanks x :ph34r:

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