Jump to content

lindy2017

Members
 View Profile  See their activity

  • Content Count

    184

  • Joined

  • Last visited

Posts posted by lindy2017

  1. Posted · Report reply

    Something else i've remembered from back then, is that when we were leaving the house my son used to have his 'survival kit'.

     

    This included a baseball cap to shade his face from the sun and other peoples glances. Sunglasses if he wanted them. Ear defenders from the DIY shop to cut out alot of noise. Something like a small toy he could hold. If he likes music he could listen via an Ipod, or play on his Nintendo. He stayed in a pushchair for alot longer for when we went out because he would get extremely tired and if upset would refuse to walk. We also tried a hanky with a favourite smell on it. We would be quite specific about where we were going and in what order [you can do a picture board]. My son still needs this specific information. So when we go out he wants to know where we are going and in what order. If I am going to the supermarket he wants to know how many things I am going to get and he will get anxious if I start buying things randomly because they are on offer! But now he is older I will tell him what I am going to get, and will add that if I see something else I need that I will buy it. Alot of that is about him trying to work out how long he has to bear being in the supermarket.

     

    Something else i've remembered from back then, is that when we were leaving the house my son used to have his 'survival kit'.

     

    This included a baseball cap to shade his face from the sun and other peoples glances. Sunglasses if he wanted them. Ear defenders from the DIY shop to cut out alot of noise. Something like a small toy he could hold. If he likes music he could listen via an Ipod, or play on his Nintendo. He stayed in a pushchair for alot longer for when we went out because he would get extremely tired and if upset would refuse to walk. We also tried a hanky with a favourite smell on it. We would be quite specific about where we were going and in what order [you can do a picture board]. My son still needs this specific information. So when we go out he wants to know where we are going and in what order. If I am going to the supermarket he wants to know how many things I am going to get and he will get anxious if I start buying things randomly because they are on offer! But now he is older I will tell him what I am going to get, and will add that if I see something else I need that I will buy it. Alot of that is about him trying to work out how long he has to bear being in the supermarket.

    My son now 14 is exactly the same especially how many things i was going to buy ....now he doesnt come with me hardly ever...

  4. Posted · Report reply

    My 13 year old son was very anxious about school .....we now home educate .....happier boy now no more meltdowns......bliss......sometimes youve got to think aout yourself and look at the big picture ................

  8. Posted · Report reply

    It was her way to communicate with you this is how our loved ones do it......i had a similar dream about one of my friends who had died a few years ago i the dream i said 'i thought you were dead she said no look at me ....and she looked well.........i belive in the spirit world .............she knows what is going on in you life and is trying to guild you and reassure you.....its nothing to worry about just a nice thing to happen.......

  10. Posted · Report reply

    Our worst present (so far) from the a cat was a pigeon.

     

    No idea how the cat manged to get through the cat flap with the pigeon in her mouth.

    We had one of the cats come in cat flap with magpie in his mouth my hubby managed to rescue it he was a bit stunned .....talked to him put him in garden then he eventually flew away.......

  11. Posted · Report reply

    Hi, Yes i know exactly what you mean happens to us all the time i have 3 cats and have a phobia about mice.............i rely on my husband to deal with it but i ahve to run somewhere in the hosue for safety and shake.......they havent doen it for a while as weve had alot of rain here in wales for last few weeks........i say the same stupid cat cant even catch it properly and they think their doing good as its suppose to be a Present ..........i even get premenision[spelling] dreams about the cat bringing a mouse in .................lol

  12. Posted · Report reply

    My little girl is almost 6, adopted, birth mum drank with her. Shes a lovely loving little girl, she struggles with school work and is behind probably about a year behind at the minute so not mega amounts. She has poor concentration, her teacher said some days better than others but they think it may improve as she matures, shes fidgety and they also say shes stubborn. If she doesnt want to do something she simply wont do it.

     

    She has a problem with clothes, they bug her and she will only wear a limited selection of clothes. They have to be just right, her bobble in her hair has to touch her head right, her socks cant have bumps in, her shoes must be very tight. She cries and kicks off if something isnt right.

     

    She plays with other children but doesnt have close friends, she prefers playing rough games like football anything she can jump or run about. Sitting and playing quietly is most definately not her thing lol, she doesnt get invited out for tea or anything like that.

     

    Shes rough with our pet dog as well, hugs him but hurts him every single day

     

    She argues a lot, is controlling, very bossy and when she wants something she wants it right away. She asks questions over and over even when youve already answered such as yesterday she wanted her scooter on the trampoline, she asked me and her dad jumped in and said no, she continued to ask me and i said your dad has already told you, she said yes but i wasnt asking him i was asking you so i said no and within half an hour she had asked us another two times.

     

    Our routine is always the same, everyday so she knows what to expect, if we did say plan to do something and it changed for example it snowed a few weeks ago and we had arranged to go swimming but changed our mind with the weather and she didnt get upset but she asked over and over and over all day about swimming even when we had told her we werent going

     

    Yesterday at camhs, they asked her lots of questions, she sat really nicely and answered them all and they spent some time on their own with her, at the end she said she needed investigating more and they would put together a plan of action, they said she has poor eye contact, is very fidgety and doesnt recognise or express emotion, she cant differentiate between anger and being happy or something like that she was saying. I was actually quite shocked by how much she had picked up in a short time. I never realised she had poor eye contact or that she wasnt recognising emotion.

     

    So i was then wondering whether there was more to it than just my feelings of her having problems with clothes and being hyper or could the clothes problem also cause the poor eye contact, failure to recognise and express emotion?

     

    Ive always said i feel there is something different with her but never felt she could have anything like aspergers or autism because she seems ok. They havent said aspergers its just the eye contact and emotion thing that made me wonder

    Hi, What you just said sounds exactly like my grand daughter shes 5 it was like reading about her......my youngest hes 13 is dx with aspergers and my older 3 have traits .....i have alwyas said she has something ....she had delayed speech which is more inline with autism ....but fidgets all the time cant sit still climbs gets into danger doesnt see it......she is getting extra help at school ...she screams at times when out shopping i think its the noise and lights....i dont see much of her as they live in scotland now....but her mum was jsut the same runs in our family ......

  14. Posted · Report reply

    I wanted to ask can aspergers run in families as iam starting to see my sons behaviour in my hubby so much, he hates crowd's, when in conversation he is so blunt it can come across sometimes as rude, routine, wont accept anyones view but his own,as friends but cant be bothered he prefers his own, mood swings or his just getting old LOL i would love to hear from you

     

     

    HAZEXX

    I would say definately i have 4 children all have traits to different degrees .....didnt realise it until recently ....but makes sense now....

  15. Posted · Report reply

    Hi, We would definatetly not do boarding it would kill us and him........we,re in Wales..............we wont be doing medication.........when we sort out our home situation we will probably have a private tutor for his IT skills as this will be his future ...........same as his older brother......we are happy with the home education route he is a happier boy now due to not worrying endlessly about where and when hes getting taught ...it was rediculous........and i say again we live in wales......................

  16. Posted · Report reply

    It seems your choice is either independent boarding.

     

    Our a mixture of home education and tuition [it can be achieved]. But you would need a professionals' report that stated that what the LA is proposing [was it going to a library?] is not suitable. Or you have to let them try it and for it to fail. Without trying it and it failing you cannot prove that it will fail. But once it has failed the LA cannot just keep offering the same thing that failed. An SEN Tribunal would see things totally differently.

     

    I have heard of other parents doing a mixture of having home education [by a specialist teacher going in], and also doing some things themselves - speak with Network81.org about it.

     

    If you are going to home educate totally yourselves, then you will be de-registering. But also check where you stand with therapies. My understanding is that the LA will no longer be obliged to provide anything, and anything you do get will be typical NHS provision, which may not be enough to meet the childs needs. But whatever level of need is within a Statement MUST be provided.

     

    The whole point of LAs not listening and fobbing off parents is for them to get to the stage you are at when you decide to do it all alone. That is what they want. If you do decide that is the best thing for you and your son okay, but don't do it because you think nothing else is possible - because it is - you just have to go to a tribunal about it.

    Hi, We did try the library for weeks but not suitable ...lots of people around hes got anxieties.....another thing they offered was an empty school....we feel let down and have other big issues going on at the moment andhaving ms as well cant risk making it worse by giving mmyself more stress......

  17. Posted · Report reply

     

     

    How are you getting a draft Statement for a child that you have de-registered [ie. by de-registering you have confirmed that you will be home educating and not returning to school?].

     

    Statements are for schools/LA/NHS arrangements with schools and LA's. By de-registering your child they are no longer involved.

     

    I don't understand what you are doing or trying to achieve?

    Hi, The draft statement has been sent to us we dont see the point in going forward as they dont have anything in our area for our son and they wont give us home tuition back ie in the Home.......i think 1 and a halfyears with messing around going knowhere is enough for us to deal with .........

  18. Posted · Report reply

    Hi, My son nearly 13 is dx aspergers he has been to school since april 2010 long story i have PMyou ....we had to de register him last monday as we dont have suitable schools nearby and he has high anxieities with anything to do with school.......draft statement had been sent to us last week .....but whats been offered is the same thing we had in the beginnning when we first registered him at school...........

  21. Posted · Report reply

    Hi, Welcome to the forum my youngest son is diagnosed with aspergers 7 months ago hes nearly 13 .....his education in last 2 years has been messed up we took him out of school had tutor now we are goign to deregister him .......good forum

  25. Posted · Report reply

    Hi and welcome it is overwhelming my 12 year son was dx aspergers last september my 3 older children have traits as well and grandaughter ......this site will set you in the right direction has been alot of help to me and still is.......

×
×
  • Create New...