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dippydawn

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Posts posted by dippydawn

  1. Posted · Report reply

    Hi

    DLA has been claimed, what a task those forms are. I did write everything possible in worst case possible with letters and reports etc from professionals to back me up. ds was awarded middle rate of dla which is better than nothing! Thanks :D

     

    try claiming DLA.when filling in the forms write down everything in its worst case scenario.i cant work for te same reason and manage to get DLA at the higher rate.

  2. Posted · Report reply

    I used to LOVE cabana's, and I do remember 54321, loved them too, and Stripers, 4 kinds of flavours chew bar thing!!! what about walnut whips but with coffee cream inside??? Can't get them now, also PROPER bonfire lollys that were in a foil cup type thing, could be used as an ashtray after the lolly had long gone???? And i remember polo's being 7p poer pack, thought it was great!!

     

     

    try here

    sweetie link

     

    or here

     

    sweetie link 2

  3. Posted · Report reply

    My younger ds was in the same boat. He was always picked on when he went out to play with his so called "mates" mainly because he had an obsession with cloakes, he wore one for about 6 years!!! Honest!! Because he looked so different he would obviously get picked on. I spoke to other kids parents an explained about asd, but don't think it did much. Kids didn't change much at all. They came round with a pitiful apology which ds accepted readily as he was desperate to play out again....only to be picked on and bullied again. Ds couldn't understand how the other kids could be so hurtful while being sorry for hurting him the time before. I got him a mobile phone, a godsend actually, he uses it all the time. I got a very old fashioned one, quite large purely so no one else would want to pinch it off him as any kid wanting the latest things wouldn't want to be seen with such an out of date phone but it works and that's all it needs to do for us!

  4. Posted · Report reply

    Hi

    Thanks for your reply, it's good to know we're not alone out here!!!

    Sorry to hear that you didn't get any help with the forms, could you not ask dwp for a reassessment and get someone else to do the nasty business of form filling for you? I know how hard they can be to do, as well as my 18 yr old I have a 14 yr old who was dx autistic when he was 3 so it's always funa n games at our house!

    Thanks again, Dawn B)

     

    Hiya Dawn,

     

    I'm in the same situation as your son it would seem. For the previous 22 years I have been in education and finally gave up trying last November 2 years into a degree that some day I'm hoping to finish. I'm 23 and at the moment I'm out of work. I've been out of work now for almost 9 months as at the moment finding a job and holding down a job is too much for me to cope with. I do have other medical conditions that are contributing to this so I'm hoping once I get those sorted out, hopefully before the end of the year, that then I can start looking at going back to work again as I only get �312 a month in benefits and can't afford to move out or live an independent life. Apparently I might have been able to get more money from the DLA aspect of my benefits had I had any help in filling out my forms only I was told this by a family friend after I had received no help filling in the forms and didn't know I could actually have any!!! GRRRR.

     

    I've found that the more I keep going back for sick notes the longer they write the sick note for. This last one was for 2 months. Perhaps you could ask your GP to extend the sick note to 6 weeks or something to begin with and each time you go down mention increasing the length of time? Sorry it's lame advice, it's all I've got.

     

    Though I have to admit that I couldn't even get a sick note for Aspergers, my sick note is for depression. My doctor doesn't even know what AS is to be honest and is a bit of a wally so this was the only way I could get round it. I also have to put myself through seeing a psych every 2 months just to keep up the pretence that I'm seeking treatment for depression so that I can get the sicknote.

     

    You're right, it's daft, a waste of time and extremely complicated but so far I haven't found any other way round the problem :-(

     

    Emily

    xxx

     

    Welcome to the forum btw, any other advice or opinions you might need I hope I can be of help because I'm kind of close in age to your son and was also only diagnosed last December. But I have made huge strides since then and haven't had hardly any problems with my family or being out in public places this year, the meltdowns and outbursts have all but disappeared because now I know what I'm dealing with so there is a silver lining I promise!!

  5. Posted · Report reply

    :D Always trust your instincts. Gut reaction is always correct! My ds went to mainstream primary and did very well. When time came to choose secondary school I must have visited a dozen, mainstream and special school. Was immediately drawn to the special school but didn't follow my instinct as thought wouldn't be doing him any favours as he'd done so well in mainstream up to that point. Choose the best secondary mainstream school, he weent there for 6 weeks and all hell broke loose. Ended up giving up work and taking him out of school all together. He's now in a special school just out of our area but within a week of getting in there was so settled, calm, not anxious or aggressive. What a relief! It took nearly 5 months tho, so wish I'd gone with my gut to start with....learning curve for us all i suppose! Good luck!

     

    Hi all going to visit another unit tomorrow to see what it is like for L

    It is attached to a mainstream school bit worried bit concerned worried if it is not the right place for him to go will have to look outside my areas

     

    sorry just rambling with nerves with all that is going on :blink:

  6. Posted · Report reply

    My 18 yr old ds was dx aspergers this summer. He isn't working (too stressful) but has finished 2 yrs in college. He is now claiming benefits for himself ( a big task that's finally sorted) but he has to get a sick note every month from our dr to send to dwp to continue to claim benefit. He can't claim JSA because he's not looking for work. Can't claim incapacity because he's never worked and so hasn't paid enough on his stamp to get it, so is on IS. Why does he have to get a sick note??? Surely a diagnosis is enough proof that he is aspergers and always will be, he won't grow out of it!! Is it just me or are things too complicated? Has anyone else come acoss problems like this???

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