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Titan

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Posts posted by Titan


  1. [quotim name=Miemployment post="341687" timestamp="1361611176]Are you working at the moment?

     

    What do you think of paid employment?

     

    Have youpoverty Hinkseyr ideal career yet?

     

    1 No Im not work

    2 I think paid employment is a fine theory but in practice holds no real value unless you are very well paid and can lift yourself out of the poverty trap thats set for the low paid that they cant work themselves out off.

    3 No and never will.


  2. nobody is taking seriously my concerns regarding a housing officer harassing and bullying my son in burnley

    You didnt give many details referring to your sons situation physical and mental situation so its hard to help with an opinion without knowing more informative that could give a direction to the situation you are talking about.


  3. My diagnosis needed input from my mother about my childhood as well but if you have needs I cant see that its the only way to get treatment or they are letting you down and putting your health at risk. Have you contacted the general medical council on their failure to find out whats the matter with you. Maybe they could suggest something to you or at least look into why the kind of treatment you needs isnt available to you when you desperately need it.


  4. We certainly couldnt do a worse job could we you just have to look around you to see the destruction those in power create and they claim we have issues. If we could work together and they take notice of our needs and others a better place could be created it wouldnt be perfect but would be a start. We all know its never going to happen because those in power arnt interested in us or others in need. If they did they would find the will and the money to change things. At an instant they find money to fight a war but say they need to make savings in the NHS that saves lives. What better example do we need as to their priorities.


  5. Playing with my three cats. (I'm never lonely when they're around, and they happily travel around with me on buses and trains). Acting my age (12ish!) - whenever I can get away with it. Listening to many kinds of music - especially Moldovan/Romanian. Walking in wild places. Beauty in all its forms. :)[/quote

     

    I can appreciate that im one very much for nature and its beauty, im currently regenerating my garden though most of its done now ready for spring. I like pagan music celtic as well and anything that has a vibration of peace and enlightenment. My actual age is 48 but im told I act childish too but as long as it makes you happy who cares lol


  6. I'm sorry to hear this, Titan. For me, I desperately need a diagnosis, and find the waiting very stressful and draining. If your diagnosis has caused others to treat you worse then that's their problem, not yours! Employers have a legal duty not to discriminate against Aspies. It's clear that you need support and you're not getting it. I'm in a similar position, and it's very hard work getting what we're legally entitled to under the Autism Act. No point having this law if it's being disregarded :([/quote

     

    I totally agree it should be adhered to and there are far too many employers that seem to get away with anything they want to. I had a support worker with me throughout the proccess but there appears to be far too many loop holes in the current system but its all over now I just have to move forward now not back.

    I hope your diagnosis goes ok for you and dont let my experience have any impact on your perception of the test. Ive heard of many cases where a diagnosis has changed a persons life for the better after finding out they were on the spectrum so take each day as it comes. I was just the same waiting for my test and it took many months to get there it was a struggle mixed in with anxiety and depression so I have some ideal of what your going through. Nice to meet you here look fardward to many conversations in the threads.


  7. Children definitely need rules the same as children not on the spectrum. Your in the best position to decide what these rules need to be and how to enforce them. The matress for rocking is a very good ideal and having that one place will be of comfort for him I can understand that but all other rules should be followed but constant moderation should be employed as severe stress and anxiets about a situation could instigate a meltdown that will not help the situation. I think your doing fine going by what you said.


  8. I think there are so many portrayals of Aspergers characters that its difficult to get a correct individual that gives a perfect example. Then in real life every Aspie is different you wont find two identical people this adds to the accuracy of fictional charactors as not being portrayed as fact in films or tv shows to those that watch them and have little self knowledge of autism. I think that they do good in showing autistic people but the viewer needs to take it as an ideal of what autism is not take anything as fact. My favourite is Dr Sheldon Cooper in Big Bang as his complete missunderstandings mirror similiar instances in my life but thats just a personal favourite.


  9. Hi thanks for replies. Yes I think Titan nails it in that having to compete in an NT world takes more effort and is more stressful to an AS person; also perhaps as I'm getting older, the tiredness is affecting me more.

     

    Oxgirl.

    Nothing has changed in the last few months, my hours are still as long as they were 1yr, 2yr, 4yrs ago etc and I cannot afford to reduce them (mortgage, family etc etc...).

     

    Half of me wants to/has to "act" as an NT to get on in this world whilst the other half of me feels "why should I...why can't society just accept me for who/what I am?"

     

    Clearly, being an Aspie is exhausting (for me...)

    Your clearly not alone in what your going through and even though there is as you said little you can do due to your responsibility its good to know there are others that understand and your not on your own and your not being ignored. This is where these forums come into their own purpose in giving support in a way that is difficult to find elsewhere.


  10. There is most certainly life beyond so called death, its related throughout history in many forms since written history began. The best evidence is today though when you experience for yourself these events which cant be denied through evidence. Im pleased to see this topic here and hope to talk to you all in more detail about experiences you have had and your beliefs on life after physical death.


  11. There are a certain number of people around who deny that AS is a genuine condition and think that it is all made up and fabricated. Whenever I mention Hans Asperger's papers they make reference to all the bad things that were coming out of Germany at the time - like eugenics - and how tineffects of 1940s German ideology still has impact today such as the Frankfurt school. How can I convince such people that AS is for real?

    The point is that you cant change peoples minds only be yourself and try not to need others approval to except your condition. In the eyes of the law its a disability and to except your own individuality you need to see they have their point of view be it missguided or not willing to see what it is. You have to find what makes you feel peaceful in your own life I think getting people yo except us is some yearsaway yet.


  12. I occasionally go through long periods of tiredness and exhaustion - lasting several months, but this hasn't happened for some years now. I never managed to get to the bottom of it, but I'm pretty sure is was linked to depression and/or hypoglycaemia.

    My bouts of depression are like that they can last a long time then lift a little for no apparent reason im on prescribed medication but they feel at least to have little or no effect they dont create a constant stable pattern of emotion even though ive been taking them for some time. I was wondering whether or not you have been diagnosed medication by your doctor.


  13. For the past few months, I feel exhausted all the time and wondered if I had diabetes or chronic fatigue syndrome. I ruled out diabetes (HbA1c normal) and am sure I don't have anaemia and hypothyroidism.

     

    I work very long hours in a stressful job. I was listening to a video where somebody mentioned being an Aspie often means playing an acting game.

     

    I have to act to function in a neurotypical world. This must be exhausting and therefore contributing to my constant tiredness and lethargy.

     

    Any thoughts/comments on whether there is some truth to this or am I barking up the wrong tree?

     

    I believe it could be a combination of Both of them really ive never had much energy all my life but think this is linked to the depression I suffer with due to trying to compete in an alien world that I dont understand and a world that doesnt wish to try to understand me and we have to try so much harder than others and in most cases we fail to be let into society which others take for granted. From what you said and as you have ruled out other medical reasons to me it would seem to be exhaustion both physically and mentally. What the answer could be im not sure other than slow your life down and take time for yourself to do more that you want to do and rest its a difficult decision but one only you can make.


  14. Im using the name Titan for now as ive just decided to use this forum even though I joined some time ago. I was diagnosed with Aspergers in July 2013 and it has had very negative effects since then. Ive lost my job and sufferd health concerns with depression anxiety and panic attacks worse than I had before I knew the reason for them. My case has shown that people knowing about the condition definitely change their views from just appearing odd to them to not wanting you around when they find out about the real reasonfor acting differently even within your own family. Ive learnt to keep my problems between myself and my doctor and not to bring them too much into the open. I feel ready now to take an active part in the forum and try to make some friends within a group that wont judge me for being different . I look forward to getting to know people here as time goes on.


  15. hi..i have just copied this post into this part of the forum just in case someone else reads it..thanks..Hi..I need some help..My son who is 23 has lost all his benefits...as I write this I have just sent an appeal form in for him... he hasn't been paid any benefits for 2 weeks , they have stopped his ESA and housing benefit...he has no money for food or rent, we have had to pay this but don't think I can for much longer......I have rung the help line and they have said there's nothing I can do, they need his appeal pack before they give him anything back...My son has diagnosed High traits asbergers syndrome. I have a report 10 pages long from his clinical psychologist confirming this....last year the benefits agency took his ESA away... just like this, we appealed, sent a report from his consultant and the decision was overturned..... that was in August 2012...they asked for him to return again for another appointment only 8 months later and did the same again...he saw a DWP doctor who stated in her report, that he could speak clearly, operate a dishwasher and had good eye contact so he was fit for work.....they have stopped it again......I have been back to his clinical psychologist who was appalled and has written me an in-depth letter....my question is..is this illegal to put my son through the appeals process so quickly after winning one only in August 2012?? who do I complain to? I have written to the local MP and London but have heard nothing.......what can I do?He is currently in a bad way and very stressed..his flat is is haven and I don't know what will happen if he losses it..... he has thretned to kill himself only last week..im distraught....please help...Kat.

    I'm so sorry to hear of this appalling treatment but its becoming all too common these days thanks to this horrific government. I'm afraid I have little idea of how to help as so far at least I'm one of the lucky ones who has managed to hold down a job. If I find anything out that may help will post it here. I guess you could ask for a mental health assessment if he has threatened to kill himself and present this or if they claim he is fit for work they could be doubting your doctors or consultants professional diagnosis because if he put his symptoms and ability a of the diagnosis on an application form that would show how much help he needs. Not much help I know but will keep looking and if anything else comes to mind will post. It.


  16. Hi Titan

     

    Welcome to the forum. I'm 40 and self diagnosed. Unfortunately, I haven't as yet got (and may never get) a formal diagnosis.

     

    Although everyone with an ASD is different, there are also a lot of things we have in common. It can be very helpful to find out what you can about the condition in order to understand your own difficulties and past experiences better as well as recognising your strengths and skills! I personally found Tony Attwood's 'The Complete Guide to Asperger's Syndrome' a good 'starter' book to read.

     

    Lynda :)

    Thanks for the advice there will have a look at the author and have a look at the book it sounds a good place to begin. I don't think there is a lot of help for people even after a diagnosis but I feel that to know for sure will be of great help for me. Some people don't need to know I mean I know I have it but there's part of me needs that confirmation for peace but everyone's different.


  17. Hello there

     

    Yes it's very important to give as much help and advice as possible its good to have an account of behaviours and specific needs and requirements. I was never diagnosed and had a life that I never fitted in and had lots of problems that I couldn't ever sort out on my own. It's good your doing so much and getting a lot of help and advice its invaluable. Life can be good and doesn't have to be as bad as mine and with the help your getting your child will have a good life. It's important just to be how you are don't push too hard as it was trying to be what I couldn't be that caused all my problems well most of them.


  18. Whilst I lack an official diagnosis, I have always got into trouble for being too honest. I'm forever saying inappropriate things about myself and other people. Luckily my family half expect it :) Outsiders just think I'm aloof and sarcastic.

    I would say that your just being honest. People have to except that mistakes are made and being truthful is the best policy. The only people that can't benefit from the truth are those that really do have bad things to hide or embarrassing things they are ashamed of.


  19. How can telling the truth be wrong in any situation. Social skills are important but is it important to tell lies to somebody just to fit in. I believe the truth is the truth and if anyone can't tolerate that they have to look at themselves for the reason.


  20. I'm new to the site, I'm undergoing a test for Aspergers I'm currently on the waiting list but they tell me it could be up to three more months to the evaluation. I'm 46 and have suffered with many problems throughout my life and it appears this syndrome has been missed by my doctors over the years. I'm on the sick at the moment but hoping to return to work soon. I'm looking to get to know a bit more about Aspergers and make some new friends here as well. Look forward to getting to know you all.

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