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Laddo

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Posts posted by Laddo

  3. Posted · Report reply

    So, I guess the Skype idea died?

     

    I think the whole idea has died. There simply aren't enough people interested and no one agrees on anything. Every idea that has been put forward has been shot down by somebody else and no solutions have been decided on. I think it's best to just let the idea die while it still has some dignity

  4. Posted · Edited by Laddo · Report reply

    I like my peace and quiet too but I couldn't live without other people around me so I'm gonna go for the luxury apartment. I may not be always that good with social interaction but I do enjoy it a lot when it's with people I have things in common with.

    There's the career aspect of it, too - many more jobs in the cities than in the country. I don't think I'd cope well with not working, despite having social anxiety

  6. Posted · Report reply

    Hello Waterboatman,

     

    I sorted the camera issue ... it was just a little thing I forgot to check.

     

    I believe you can just "call" contacts without clicking the webcam on, I mean, you can talk on Skype just like you might a mobile phone ... but then I suppose modern phones display faces ... but nonetheless, yes, you can call others without using the webcam.

     

    All the best,

     

    Eustace.

     

    Yes, you can just communicate with text. It can all be quite private

  7. Posted · Edited by Laddo · Report reply

    I know this is not at all helpful, but how can Minecraft have so many issues with rendering? The Source and Unity engines seem to have far less issues with rendering and yet they're far more complicated than a load of cubical blocks with (presumably) 8 bit textures

  8. Posted · Edited by Laddo · Report reply

    Perhaps a skype meetup might be an idea first?

     

    An absolutely sterling idea, Matzoball! :)

     

     

    OK I have setup a Skype account, nothing really could be easier.

    Edit your profile and put your Skype ID in the Skype entry box.

     

    Mine is "soggyboatman", and I really have been a soggy boat man, I have fallen in the canal!

     

     

    I've added my Skype name to my profile too. Anyone can add me if they like, although I'm not great with voice or video calls at the moment

  11. Posted · Report reply

    It probably is all just the scoliosis and I'm just being a hypochondriac, now that I think about it.

    I am going to start a bodyweight exercise routine and see how that fares me. I've pretty much given up on the idea of using weights so this is the next best thing and hopefully a lot safer. I would go swimming more but I'm not the best swimmer and feel like I'd make a fool of myself at the pool. Perhaps I'm being too self conscious though.

    I'm not currently on any painkillers but perhaps it may be a good idea? I do have quite an addictive personality though so it's quite likely I'd end up hooked on them. It's a pain in the bum because ibuprofen and paracetamol do little if anything to ease the pain and morphine likely would become habitual for me.

    I've had physio on the NHS before but have never lasted more than one session - I'm always forgetting appointments :wallbash: I didn't feel like they were really assessing the problem properly though. I wish I could afford to go private

  13. Posted · Report reply

    Do you know if your son is depressed at all Paula?

     

    As an adult with AS and suffering from depression who is in the same age group as your son, I can kind of relate to how he is behaving. Since reaching adulthood I have lost nearly all the motivation I had as a teenager. I've got to the point where I rarely feel like leaving my room too, although not quite to the extent of your son. A lot of people with Asperger's really do genuinely struggle with what seems totally normal for an NT. It's just the nature of the condition, I'm afraid. Chances are he's not being lazy, he's just very depressed and chronically unmotivated. After all, society has little to offer us when it so constantly rejects us. I'm currently looking for work but every time I find a job I think I could maybe do I get knocked by the person specifications - jobs these days are not aimed at introverts. 'Bubbly', 'confident', 'outgoing' etc., all words used to describe the kind of people employers want for employees. It's like rubbing salt into the wounds of those who do not fit into these categories and may make aspies feel weak, worthless, unwanted, not useful etc.

     

    Early 20s is a horrible period for a lot of aspies I think. It's the time when the world expects us to get up and 'do our part', despite there being so many obstacles in our way

  15. Posted · Edited by Laddo · Report reply

    I think you should see your doctor about this.

     

    I get tingly feelings they took an b12 test but came back clear i think because i had started taking a multivitamin with b12 in. things can come into other factors i was surprised . I been quite fatigue and have muscle tight in myself to but i partial dislocate because of my hypermobility syndrome and i have arthritis. The doctor can send u off for blood tests to see whats going on

     

    I had a full blood test recently but apparently the results were all normal. I don't have any diagnoses for any physical health issues apart from scoliosis.

     

     

    Laddo can you say what you are doing to alleviate your symptoms and what else you propose to do next.

    The symptoms you were describing were to put it mildly very worrying.

     

     

    At the moment I'm just taking painkillers (which rarely work - I need something stronger) and trying to stretch the muscles as often as possible. I will probably go to a doctor at some point but I have really lost faith in them over the years. I've been to a few doctors about some of the symptoms but they always put it down to my scoliosis. It would explain the leg issues but not most of the other stuff.

    I thought the symptoms were quite worrying too. It sounds a lot like MS but I'm concerned I'll go to the doctor, tell them I'm worried I may have MS and they'll just act patronisingly and say I shouldn't look up symptoms on the internet.

     

    These are most of the symptoms I get:

     

    • Often feel tired and can get quite worn out from little exertion at times while I can keep going for hours at other times
    • Bouts of nausea and very occasionally vomiting. This seems to come and go for a few days at a time
    • Visual disturbances - blurred vision, mild 'swirling' patterns in vision sometimes, floaters
    • Tightness in most muscles and discomfort/pain in upper and lower back, neck, shoulders, upper arms, chest and upper legs
    • Frequent tingling sensations in legs
    • Arms and legs get pins and needles easily after being under pressure for only a few seconds
    • Brain fog - makes working difficult
    • Memory problems
    • Mood swings
    • Bouts of unexplained anxiety feeling. By this I mean what seem to be many physical signs of anxiety even when my mind is totally calm and rational
    • Bouts of unexplained depression. Usually I try to rationalise these feelings but somethings they really do seem to spring from nothing
    • Chest pains

    Any tips on how to get the doctor to take me a little more seriously? I don't feel able to talk to any family members about this as I don't want to worry them

  19. Posted · Report reply

    ^This has made me think that perhaps any attendees with their own transport could assist with people who either have mobility issues or find public transport very stressful? Perhaps all attendees could chip in for petrol costs for the drivers?

     

     

    If people are thinking about safety, then a daytime meet in a place like a coffee shop in a town or city centre might put them more at ease

     

     

    Yes, a public meeting place is essential. All meet ups would have to be during the day, too

  21. Posted · Report reply

    Laddo, I assume you have told your doctor.

    It sound like your muscles are in spasm, the only thing ibuprofen is good for is that sort of thing, it does nothing else for me. Also you did say some time ago that you were not eating much, undersize muscles are more prone to that sort of thing.

    A note of further warning if your back and neck muscles are undersize and going into spasm then it is possible that your vertebra may become non aligned, leading to real problems, not least pain that makes a spasm feel as nothing. My neck went that way! I think my sisters back also went that way as well.

    What to do, well thats you me and everyone else in this situation, get out and about and get fit, easy words, doing it is another thing altogether I know.

     

    It may be as well that you have spotted this whilst young, you still have elasticity, it starts to go after 35 years, a physical routine you can keep, low impact to protect joints, non jerky to protect still weak or injured muscles and tendons from damage.

    Do you have access to a swimming pool? I think that is the best way, and a way I could use if I could get to one. You may feel ok on your own, I do not anymore. I am terrified of people now.

     

    I'm quite active at the moment and stretch daily but it doesn't help. Lately even a little exercise leaves me feeling sick and drained though.

     

     

    have u noticed any other symptoms with muscle tightness ?

     

     

    Quite a few, although I'm not sure if they're related. I get quite a lot of tingling feelings in my arms and legs and my legs 'go to sleep' and lose feeling with only a little pressure put on the nerves. I quite often get brain fog too when I get the pain and tightness, sometimes with visual disturbances.

     

    Today it felt like my back was on fire - the pain ranges from a dull ache to burning

  22. Posted · Report reply

    I have often heard that pain is a common feature of ASC but I was wondering what degree of pain is usual. I get a lot of fairly bad pain throughout my body and many of my muscles are often tight, despite my stretching several times a day. I also put the tight muscles down to anxiety but now I'm not so sure. I can get flareups of tightness and pain regardless of my current mood.

     

    Does anyone else get this, and if so, is it related to ASC or something else? It may be worth noting that the pain and tightness is most often throughout my shoulders, neck, upper and lower back, legs and most recently my chest.

  24. Posted · Edited by Laddo · Report reply

    The Child Protective Services page of the Kansas Department for Children and Families website says this regarding the matter:

     

     

    When a report of child abuse or neglect is made, an initial assessment is made to determine if Child Protective Services should become involved. If the report meets the criteria for agency involvement, the case is investigated by a social worker or special investigator. Law enforcement may also investigate if a joint investigation is warranted. If it is determined that a child is unsafe, then a recommendation is made by Child Protective Services or law enforcement to the court regarding what action should be taken regarding the child's safety.
    So it seems that the state does consider whether removal from the home will be emotionally distressing for the child.
    I do agree that police are often lazy, but I don't think they are in this case.

  25. Posted · Edited by Laddo · Report reply

    ... except that I'd say "I think that they may be doing the right thing..." However, "doing the 'right' thing" when constrained by finite resources, may be very different to 'doing the right thing' in a moral sense. It may in fact be morally wrong - and damaging.

     

    What is more morally wrong though, allowing a child to continue to be abused or placing them in protective custody for 24 hours until more appropriate services become available? These type of things often simply cannot become immediately available

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