Waterboatman
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Posts posted by Waterboatman
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in-the-soup
Multiple translations and lateral thinking, it does look almost like "with soup".
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Safety
There is a rather basic requirement to maintain anonymity for users on this site, mostly to maintain personal safety, it is not wise to handout to unknown individuals the contact details of anyone who could be regarded as vulnerable, its not just your young sons safety it is also mine. For that end this system has "PM" private messages, that in turn can be relayed onward securely to the end user.
To that end, transcribe your young sons letter into the PM system, and print out the replies.
I personally prefer to keep all communication completely in the open, so use a topic to that end, then you can have replies from several of us. I am quite happy to communicate on this basis, or via PM.
Vegetarianism
I am a third generation vegetarian, my grand mother being the guilty one, it was a new crazy fashion of her time, a terrible fudge/compromise between being a Vegan and having an unlimited diet. More care has to be taken to ensure the body consumes what is needed, too often vegetarians are malnourished and suffer the consequences.
Home Education and wishful thinking
I suspect if I had been home educated, I would have acquired useful qualifications, and missed the dreadful boredom of the secondary school system. As it is I left school with three O'Levels, Maths, Physics and Chemistry, acquiring in later years a C&G Cobol qualification and later still a C&G Electrical qualification.
However home education needs individuals who are interested and wealthy enough to do it, I would have failed on that point, for some reason I did not learn to read until I was nine years old! It would have worked if my father had been the teacher, my mother though intelligent, seemed not to be interested in teaching her young son anything. My father and elder sister joined forces and taught me to read, the "Cat in the Hat" books come to my mind. Maybe my mother thought the school would teach me to read?
ASD is largely inherited
My ASD comes down to me from my mothers family, the flexible joints being the most obvious markers. My grand mother could do the splits in her seventies!
The First and Third Ages
It seems that the young get on better with people that are of the generation that begat their parents, its not just those on the ASD spectrum.
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A pen pal of any age and any sex, are you sure?
My handwriting is illegible after any prolonged use, also as my hands are not in a very good state, I must admit I prefer the typed word to the written. At school I was allowed to use a typewriter to write my english essays, indeed I became faster at typing than I could speak, a touch typist, a good start for my computer programming in later years. The school had a teletype console to the Open University computer at the time, I was privileged to see it in use. I also have a problem reading hand written text, even making strange mistakes with typed text!
A good solution to long hair is too just tie it back, although I never did, in my secondary school my hair reached down to the middle of my back, I actually started to tie it back when I started to be able to grow a decent beard, a really pretty colourful cravat. At six foot three, long hair and light weight "Jesus Boots" as they were called, I must have looked a sight. Odd sexuality is fairly common amongst those on the spectrum, and the best artists, engineers, and world leaders are generally a bit weird in some way.
The internet is very recent thing, and I grew up playing with Meccano, Lego and Plasticine, and actually got into the local papers for my prolific generation of clay figures when I was 10 or 11.
A none computer/internet obsessed correspondent really means communicating with a person of about my age, having worked with computers for much of my later life, I really do not want to have much to do with them now, its a bit like photography, when it was film based it was fun, when it became digital it died for me. I was a UNIX techie, Linux while it resembled unix was good, I owned several ".COM" domain names, the internet has changed so much and become such drivel that I rarely do much with it now. This is the only ASD site I visit.
Be careful, I wish you good fortune.
Ian
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Swearing?
Most of that is misapplied descriptives, and honestly at times is the only way to truly illustrate the point, in a way that the other will properly understand.
Excessive pruning and censorship is worse!
Ok remove the truly gross illiterate use of "misapplied descriptives", that I have no problem with. But leave the correct brief common usage and illustrative. Ask the the original author to rewrite otherwise, I have had this interference, and did not appreciate having my posting mutilated.
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misadventure
Good intentions that went wrong, or where doomed to failure from the start.
A misunderstanding of human nature.
All social experiments tend to fail when applied on a large scale,
and some just fall apart regardless of scale.
The saying "KISS" or "Keep It Simple Stupid" applies to almost everything.
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Thinking back to my own childhood, I think I too must have been a bit of a nightmare.
From an early age I just walked everywhere, my father was in the army, so these places where around army camps and the family housing near them.
West Germany was fun, I was four to five years old, the army base was across a farmers field, a new building site was not far off, and woods to wonder in, my father got his car stuck in mud looking for me, I was hiding under a table when he came home. I wished I was a deer as they did not have to get dressed.
I too have written on walls, sometime in my early teens I wrote all of my accounts in a code I had invented, and wrote something I thought was important in broad marker pen on my bedroom wall, father not pleased with that effort, it got painted over with gloss paint!
Telling an untruth is rather easy, and very useful when working in technical support, something I did for nearly twenty years.
I loved drawing, design, as a free hand artist I am completely useless, but with drawing aids things can really come to life.
Knowing when one wants to pee is a hard one, I used to use timing, that is twenty minutes to hour after drinking I will need to pee. Sensory information is rather unreliable. Being fit and the simple fact that much of the water is reabsorbed, meant I was able to go long times, without a pee. School toilets especially boys toilets are vile places, a girl took me into the girls toilet, what a difference.
I am almost 55, and until early this year diagnoses free. Worked for much of my life, ended caring for my mother for the last five to ten years of her life, post 44 and a nervous collapse I was not in much demand by anybody else. This body gave pretty much its all and a bit more in everything I did.
Take heart, your monster may turn into something more useful.
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Still Alive
Bother
Oh well, maybe next time
Whats this?
Last Friday the paramedics were in attention again
"111"
Chest pain, really serious, certainly I was told
"if it gets worse, call 999"
result
EKG showing nothing,
"Perfect says the machine, says the paramedic"
?
Yep, they can show something is happening
But NOT that something is not happening
wonderful
?
Opiates used to treat pain are also stimulants, especially when used at the doses needed to just deal with pain.
The worse the pain the more of the the opiate is needed or more often, as with me, a 100 ml bottle of 10mg/5ml lasts just a day and a bit.
Silly me had a new pain, it seemed to be just a variation of the ("The Wall", my normal chest pain), I called the new pain "The Tadpole", as it was that sort of shape, its head below "The Wall" and its tail wrapping around on my left side, and sometimes my left arm, hard to tell really with everything else.
Now, I find "hospitals" a frightening prospect, and every time I decline.
A worried paramedic, saying I should have called my doctors, as it was during the day and on a Friday, yet him calling them, and finding why I called "111" and not my doctors. My regular doctor was on holiday, and the Locum prescribed another bottle, as I was using my last, (I still have not used it, the new bottle that is), the paramedic was around for quite a while, waiting for the Locum to call back, not good really.
I carried on with the morphine, until the bottle was almost empty, deciding at that point to stop, as it was not doing anything for the "The Tadpole", I had to wait about 12 hours before I could sleep, and then slept for a day and a bit.
It has taken really several days for me to recover and realise what happened.
The best way to deal with pain, is to try and avoid what causes it.
For me
Avoiding travelling in vehicles, as the vibration causes a lot of pain, so no more days out, except very locally, and if possible only as far as I can travel in my wheelchair.
Avoid unnecessary movements, I have moved my food and water next to my bed.
Though one must still get some exercise, that is my carer taking me out for a trundle, me propelling myself as much as possible, with helpful pushing on inclines.
My carer comes in 6 days a week for one hour a day. That costs all of my PIP and a large chunk of my ESA Support Group. I have to be very careful about expenditure now.
I am better, yet still a lot weaker. My power assist wheels on my wheelchair, really need the push from my carer, even on a gentle incline. The "Free Wheel" helps with ride, much softer even over what passes for roads around here. I have to use the roads, cars seem to want to live on the pavement! The road is far too dangerous a place to leave a car it seems, so they are left completely blocking the pavement! Grrrr.
I am in pain again, its inevitable, but I am not taking anything, morphine will just make the "The Tadpole" worse, it comes and goes, as does "The Wall", and not forgetting that drifting focus to remind me of everything else.
I am seeing my regular doctor next week, should be interesting.
I do not expect to ever get any support from the local council, at least one person who is currently being seen has to die, before there is any prospect of moving up the list. Thats this year, next year the budget will be yet smaller, so the "part time" OT covering the south of England, will only be able to deal with the paperwork involved with removing people from the list who have died waiting.
Humour is at least with me, I have called the "Tadpole" "Kermit", when "Kermit" grows up, I will croak.
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I am using almost all my PIP to pay for five hours of care per week from "Blue Bird Care". First session this last Thursday, leaving me in quite a lot of pain, my sister did a "Blue Badge Shopping" on the following Friday, I was already in quite a lot of pain and taking Tramadol, quite weak, I no longer care about the pain,it helps.Thats a gap of at least two weeks since my sister had seen me last.
I think now in reality, there is no point in me moving. Morphine will replace Tramadol from Tuesday. I am now largely house bound and will need aid in going anywhere. There are children playing outside, that seems to help my humour, wild flowers growing in the unkempt front lawn, birds busy in their lives.
I used to be suicidal, now that I know that I am dying I am not suicidal, funny, really is it not?
Frankly if you know me and you want to park somewhere difficult, you can use my "Blue Badge" so long as you take me with you. My wheelchair control may be a bit erratic and you may have to push.
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I will be 55 this year, housing options that where not available or affordable before, will be possible.
So yes I would move, and quite likely will, if a suitable place can be found.
I will register my interest in moving with "Housing" possibly next week, although the coming elections will likely cause disruptions, so it maybe better to wait until the dust settles.
If a really good place existed somewhere else then that would be an option.
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With reference to running a profitable company, we may be good at managing ourselves or whatever we are good at, at the moment. Its "Emotional Intelligence" or understanding and managing people, the other half of the company must be good with people and can be your chaperone. As I said, "marry your manager".
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Controlling a profitable company, needs more then someone with a diagnosable Aspergers can provide.
Marry a manager, at least be cosy with who needs to manage your time is a must.
I have always been what I am, diagnosable. I tried self employment, IR45 or taxation changes, messed that up somewhat. Elderly mother/parent needs full time assistant?
I ended up driving my mother everywhere and being her support, up to her death.
Office environment, are you trapped in a "Job Centre" or "Call Centre"?
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What sort of work do you do?
I used to do telephone and on-site support, noise can be a problem when trying to write computer programs.
Being tense and annoyed makes irritants worse, I have a rarely seen temper that can be angry enough to threaten violence, it does not help.
Have you tried ear-plugs? I know they are of limited use, I have used locally produced noise that I could stand to blot out that which I could not.
Having an "Aspergers" diagnoses can lead to more trouble than it is worth, it could make getting another job more difficult.
Forget about legal protection and entitlement to services, its not worth the paper its printed on.
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Forgive me, I am late to this, just why do you want a diagnoses? I lived most of mine without one, and most people on the spectrum can live quite happily without one.
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Cynical me now afloat.
The "Housing Association" has put me into almost completely unmodified/unadapted bungalow and is asking the council to pay to bring it up to spec. A spec that is suitable for a disabled wheelchair user. They could get a higher rent or even sell it.
The council paid official is saying "no way", we are not paying you to improve the rental possibilities of your property.
I am stuck/trapped in the middle.
I
was waiting for August
yet
I
am not
going
to
pay
for
these
improvements
either
!
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Sense
of
humor
has
surfaced
feeling
better
.
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Visited
by an OT and my housing officer from Sovereign
smoke and mirrors
will anything
happen
?
I feel sick
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Out of Morphine
it was a trail dose
Tramadol
is spiky
Slept a bit
herding thoughts
just had breakfast
feeling a bit better
still frightened
If
I
could still walk
I
would
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Morphine still talks
I am frightened, really.
I really am bad at handling this sort of thing.
If I screw up this I could be homeless and alone.
Not the place and time to say this
but I am frightened
and
I
am alone
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Bullying can be a life long problem. If it is then something is very remise with the victim.
With the young its important that older more capable people sort the problem out, what ever the cause or provocation.
Parents can be at fault for their children's suffering, simple stupidity, intelligent people can be stupid as well.
Bulling occurs simply because the "victim" differs and can not defend themselves!
If you are the parent, ensure that your child blends in or can defend themselves, or both, it helps a lot!
If all else fails with the school, try another, or home-school, do not expect anything from the state, your child is your responsibility no one else's.
I know morphine speaks for me, but I am angry, I hate stupidity, parents putting their children through hell, simply because of political correctness or some other nonsense.
Get this through your thick heads, your children are your responsibility! Thankless as it is!
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Hum OK
Both elbows will bend backwards, the right more than the left.
With a bit of practice I can still land both palms on the floor. Before pain relieve fails.
Have just tried little fingers, left hand goes furthest, actually I can get the neighbouring finger to go a bit further, thumb is very strong and well, can brake things.
Pain is in all my joints, especially if i have tried them.
Joint pain is in all my wrist/ankle joints, followed by by all my knee/elbow joints, followed by all my hip/shoulder joints.
I played with Plasticine as a child, I have very strong hands. My flexibility is in my major joints. My nephew can do all the hand things. Mostly if it shows in our family its the major joints. My maternal grandmother could do the splits in her seventies.
My father was tall and thin, considering his age and upbringing. He was also flexible and strong. My mother considered "Mensa", actually both where bright, she being stronger in all ways.
The genetic "thing" that makes us is a double edged sword, either to success or problems. Make what of it what you can.
I think I score 4, I do not know how I would have scored before.
Major joint dislocations are my right hip and left shoulder, since time I can not remember.
Other side is less mobile and seems to be oriented differently, yet is still more mobile than others?
Result Tramadol and Morphine, morphine is softer.
Morphine is in my blood now, yet I will not sleep, its better to not sleep "with" than tramadol. I simply can not sleep with this, I am too alert!
I would not sleep anyway, I have two people tomorrow visiting, one from the council and one from the housing association! The "End Of The World" or "What"? They are both female, and are both likely to consider me to be a complete waste of space and time. Hardened soured females tend to have a low opinion of males. Where is the shotgun? That is for me by the way. Or them to use on me. Please.
Reader take heart, morphine talks here.
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Hum
The above links viewed, a diagnoses is unlikely to ever be found, my doctor concluding that there is little point in any more visits to consultants especially if they are some distance away.
I have done heavy manual labour, putting on working weight quickly. I have always been flexible, one foot in the trench the other on the side, scraping and tossing out the soil with the shovel in one smooth motion.
If I hated the work, I just worked harder. I did a variety of heavy demanding manual work in my twenties. I even broke the crank on a bicycle, I always wanted a faster gear. My brain being used more from my late twenties onwards.
I stopped driving as late as mid 2012, giving away my last car. Walking became an increasing problem six months to a year later.
My joints and heart? have always been problematical, there was always a way around the problem. Diet does help a lot, being a vegetarian bordering on being a vegan did cause un-nessessary problems.
The base problem? is genetic, it shows up, with the classic flexibility in my family, though mostly without major issues.
Fifty onwards is a problem for everyone, our lives catch up with us with a vengeance.
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I can remember my teenage years, its a very confusing time, rapid growth, raging hormones. And yes I became more aggressive, I used to be bullied. I grew to six foot three but I am a very gentle person really and have never hurt anyone on purpose, being aggressive was preemptive bulling prevention.
Someone strong who will not break or leave is important in everyones life, my mother who in turn I cared for up to to her death was my anchor.
There is no right way to raise a teenage boy, or girl.
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Yes
I have been ill
a tendency to think
I am right
even when I am wrong
condemning others
for their beliefs
when
we all have our problems
and
I am not unique
.
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I am afraid we are own worse enemy.
What ever we do is wrong or goes wrong.
It does not help that we tend to be ignored,
and when not ignored lied too.
When all contact seems to doomed to failure,
becoming more of a recluse is the result.
Failing bodys fail more quickly,
more powerful pain medication,
helps to speed the decline.
One word association
in Off Topic
Posted · Report reply
semaphore
Or lost in translation or transmission in the FOG, a bit like communicating with others on this site sometimes.