bid
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Posts posted by bid
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Greetings, Fellow Uber-Dudes!!
ASM Woman - you will never find my lurex uber thong for I have cunningly hidden it!!!
Pants Woman - Welcome! but hands off my spangly G-string collection. We have already had one unfortunate dental floss-confusion incident!
Now I am off to fight the Dark forces of LEAord, fetchingly clad in my teflon-coated Baby-Doll jim-jam combo!!
Until next time...to Learning Support and Beyond!!
Female Inquisitor
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Hi Bev,
Welcome to our Forum!
So sorry to hear the problems you are having. You will find plenty of help and advice here, and a great place to unload!
Bid
PS If you need cheering up try the Bat Cave topic!!
Bid
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Holy DLA!!
Has someone been rifling through my spangly G-string drawer...I seem to be missing a couple of pairs! Do you know how long it takes to sew on all those sequins by hand??
And the shoe-horn!
Luckily you didn't find my lurex uber-thong (the one I keep for best)!!
But enough of such things...I shall hoik up my chain-mail Wonder-bra and prepare to do battle with the Ring Binder Wraiths. They won't know what's hit them when they have to face my Cross-Referencing, Colour-Coding and Double-Underlining in Red!!
To Learning Support and Beyond!!
(Put the kettle on - I may be some time...)
Female Inquisitor
PS...You'll find some inter-galactic dental floss in my bottom drawer.
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Note to Kris and Elefan...
Perhaps you should send us all to our own topic entitled "The Bat Cave"??
Then poor, unsuspecting members looking to read about the causes of AS won't get a nasty shock!!
Although on second thoughts maybe this explains exactly why our kids have an ASD!!!
To Learning Support and Beyond!!
The Female Inquisitor
(sequined spandex now in its rightful position!) -
Oh No!!
It's Delete Woman!!
Quick Jester, to the Jestmobile and away!!
(a sequined G-string flutters in the breeze as the superhero duo disappear into a cyber-phonebox...emerging as ordinary mortals from the other side)
Eeh hem, I am going to lie down in a darkened room now...
Bid
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(To the tune of Wonder Woman...)
"Female Inquisitor, Female Inquisitor..."
A vision of sequins and spandex staggers forth from the whirly stuff (she has forgotten to take her travel pill and all this twirling round makes her feel queasy).
But wait!
What is this??
Inquisitor woman looks bemused and then embarrased...
Holy DLA!!!
In her rush to don her superhero outfit in the confines of the cyber-phonebox, she has put her sequined G-string on the wrong way round!!!!
This was not what Super Teacher had meant when he told her to make sure she had covered her a**e when seeing SENCO Woman!!
Will Female Inquisitor ever be able to show her face in the Bat Cave again?
Will she ever be able to sit down comfortably again??
Tune in for the next instalment...
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Welcome Mary!
You will find this site is full of great help, advice and support.
I hope you will have some more positive experiences from now on!!
Bid
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Hi all,
Well, I asked my son this question this morning...and promptly dug myself into a bottomless pit!!
His first reaction was to ask if there was a pill, so I started to explain that this is an imaginary situation (and I began to feel things going very, very wrong!). Undetered, I promptly confused the situation more by comparing the question to that old dilemma: if you pressed a button that made someone on the other side of the world die, would you press it? (You can probably tell that this was not my finest hour when it comes to explaining something to someone with AS!!!
) Twenty tortuous minutes later I just begged him to forget everything I had been saying!!Then he had a panic that I was going to put him in a drug trial!! (By this point I wished I had never started the whole thing!!)
Back(ish) on track, I asked him again. He said "no", because everything would change! Then I said what if the pill just took away the bad bits?? "Yes, no, I don't know!!"
After I had tottered off to lie down in a darkened room, I decided that he probably means that he would take a pill if it took away the bad bits, but that he would still want to be "him". Which is what I mean, too!
Phew!
Bid
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Hi everyone,
My son at nearly 15 is older than a lot of your children, and younger than the AS adults mentioned.
If I asked him this question now he would say "yes". He hates having AS. He hates being different, hates being crippled by anxiety to the point of self-harm, hates feeling that he "always gets everything wrong" (his words), hates not understanding what is going on.
I'm not sure what his reply would have been when he was younger, or what he might say when he is an adult.
To be completely honest, at this stage in his life, I would say "yes", too. I would do anything to stop my son hating himself as he does now, and I also find it devastating to catch glimpses of the man he could have been without AS (as I do very, very rarely when we are alone together and he is completely relaxed).
I know what I have written is not how many of you feel. But I can only write from my experience of having to watch my son struggling with AS.
Bid
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Hi All,
I read the article in the Daily Mail today...I found it very scary, too. The important thing about all the existing screening tests, as far as I understand them, is that they are unable to predict the degree of disability. And when did we all suddenly have to be "perfect"??
Anyway, I think we need more support and resources, not more screening tests!!
Most (all?) of our problems have really come from the endless battle to get appropriate help. That's the main cause of stress!
Perhaps if our society gave more validity to the lives of people with special needs, and their families, we would all get the help we so desperately need without the soul-destroying fight.
I think that even the help that is available still largely expects the person with special needs to fundamentally adapt to the "normal world"...especially true for people with ASD.
Rant rant!!
Bid
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Hi Carol,
I am Bid, who recommended this site to you cunningly disguised as "mother"...
Jester is my husband, and he just likes playing with the emoticons!!
Anyway, we are both really glad to see you on this site!
Bid
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Hi,
I have been amazed at how many people think one of their parents might be AS. I thought I was the only one! Once my son was diagnosed it became clear that my father has AS.
I have never thought MMR caused my son's AS, as he showed signs before he had it...although I believe the strain of MMR he had (he is 14) was subsequently withdrawn.
Like other people have written, my son was also delivered after a long (30 hour) labour, and was "grunting" when he was born for which he received oxygen and intravenous antibiotics.
He reached all his developmental milestones early or on time, but always had poor eye-contact.little symbolic play,etc, and just a feeling of being "on the outside looking in".
Interestingly, two of my younger children have severe, multiple food allergies with the youngest being treated at GOS for bowl problems which thankfully he out-grew at 18 months.
From reading other peoples' accounts there does seem to be certain recurring similarities with all our children or families as a whole, e.g allergies. Personally, I feel that there is a strong genetic link, and I do wonder whether that gives a susceptibility to ASDs which can perhaps be triggered by some trauma - difficult birth, MMR, etc.
What does anyone else think about a link with atopic problems as part of a possible susceptibility to ASD?
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Hi,
I have had DLA for my son since he was 6 - he is now 14.
I have had brilliant help over the years in filling in his reapplications from our local Special Needs Health Visitor (even though he is too old to come under her care anymore).
I would say that you have to describe in minute detail the worst-case scenarios every time. And don't forget the things you might take for granted, e.g. still having to clean your child's teeth,say, or still having to cut up some sorts of food for them,etc. All the time you need to state that what you have to do every day is far more than you would for a "normal" child of the same age.
Last of all, I would definately advise getting your child's paediatrician to comment and sign the form.
Hope this might help. Keep trying...I know how awful the whole thing is(we actually lost his DLA and my ICA at one point when he was 7 because his Social Worker at the time tried to help by claiming the highest care element for him!! We did finally get it back, at the highest rate, but what a nightmare as we really depended on that money!).
Bid
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Hi Elanor,
My 14 year old son was presribed Lustral (Sertraline) nearly a year ago, after his anxiety levels had become so aute that he was seriously self-harming and had developed motor and vocal tics.
He was started on a tiny dose, and this was increased until we were happy that he was much better and not showing any side effects.
His self-harming behaviour and tics have been dramatically improved, although they still happen a little when he is very stressed, but before it was nearly all the time.
His consultant also carried out various tests to establish his mental state before the medication was started, and when these were repeated after 6 months there was a marked improvement in his feelings of anxiety, anger, self-esteem, etc.
So, I would say the Lustral has helped my son, but it is carefully monitored, and seen as a short-term help, hopefully to be reduced after his GCSE's.
It is a daunting step to take, but sometimes our children do need medication to improve their quality of life. Above all, don't feel guilty if you do choose to try medication - we are all just trying to do the best for our children in incredibably difficult circumstances.
Good luck, and I hope you find the help you need.
Bid
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Hi,
I have a 14 year old son with AS, ADHD, Dyspraxia and possible border-line Tourettes.
Bid
The Batcave
in Off Topic
Posted · Report reply
ASM Woman, is there no privacy in this Bat Cave?!
Sigh...maybe I should revert to my M&S magic tummy-control pants. Although it would take a heck of a lot of sequins to cover a pair of them!!
My main concern though, is that there has been no mention of my super-hero sustenance of choice, viz...RED WINE AND CHOCOLATE!! Never mind tea and biccies, without my staple foods of Super Strength I can feel my powers beginning to fade...
Save me , fellow super chums...
Female Inquisitor sinks gracefully to the floor, inadvertently revealing the hiding place of her lurex Uber Thong!!
Will the other Super Dudes save Female Inquisitor?
Will ASM Woman take advantage of her colleague's indisposition to pinch the mighty Uber Thong to use as a catapult??
Tune in for the next exciting episode of The Bat Cave...
(the series that replaces Friends and Sex and the City!!!)