Hi
I have just stumbled accross this site by accident - trying to find someone else who I can relate to!!!!
I have two children aged 7 and 4, my youngest Oliver was diagnosed with AS back in August. Although his condition has been confirmed nobody seems to be in any hurry to help us? We live in the South West and have been put on a waiting list for the Early Bird Scheme and Ed Phyc to contact but nothing seems to be happening. I am constantly ringing only to be told things are in hand!!!
Christmas has been an absolute nightmare and Ollie has been on constant meltdown for the last week, only sleeping 4 hours per night.
I would love to hear from anyone who can relate to the desperation I am feeling at the moment (thumping head, racing heart,grey hairs rapidly appearing, nails bitten to the quick, do I need to go on!!!)
