paulathomson
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Posts posted by paulathomson
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Hi,I would also look at the ofsted report for that school on how well they are with thier sen practise as a senco doesnt have to be qualified in that feild. I torn mine apart regarding taking child out of school and went to an tribunal after a year of fighting and won the whole year backdated money with a sorry from the tribunal too.
hi i have had a look at the ofsted report but i cant find anything about SEN practise...and the report is quite old 2005 so they are due for another one soon...i do know that the previous SEN said there was nothin wrong with my son's speech and after a full language test was found that he was behind by over 4 years...from this year there is a new SEN...but to be honest i dont think that there is anyone in the school who has an idea about ASD's...because when i try to explain anything they look at me like i have two heads!!!
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hi,
i have just received my written statement from dla confirming why ds was refused dla for a 2nd time and now i am going for an appeal...one of the main reasons that he was refused is simply that school said that when he goes on school trips he has road safety awareness and that in normal school day he has no more supervision than anyone else...
he has only been on one school trip last year...probably a good day...how can that equate to him being road safe for the other 364 days... as far as the supervision in school i have already sent dla a copy of two lots of minutes taken from school meetings i have had with multi-agencies where it confirms that he has extra supervision during playtimes and lunchtimes....
dla have no mentioned or taken into account ds's anxieties within the home...the routines...his communication difficulties etc....ds is multi-dx'd with hfa/add and expressive and receptive language delay...he is due to be assessed by ed.psych on 11th march..
can anyone give me some advice because i think im going to lose this battle unless i get some ideas....
i dont know what else i can do to prove to dla that what the school have said is distortion and that i am telling the truth...
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i had my ds on concerta aswell for about 3 months but i had him taken off it because it made him ''hysterical''..he would be absolutely petrified of the slightest thing...things that he would not normally be afraid of. and you could literally smell the fear coming from him...he was on it as dx'd with asd/add.. so for the add...but i found it also made his obesseions worse and just generally his behaviour was worse...even though his concentration was great..
i now refuse to give him any meds for add...just manage with omega 3... and his anxieites are not as bad...
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when i asked for a review it was because my ds' school made out that there was nothing wrong with him...said he has no behavioural problems, has road sense and his communication is average..they also said he haas no additional supervision at school..
the extra docs i sent were from the school meeting minutes in which it states the extra supervison they give him..stategies to help his communication and writing. plus isent letter from the education dept confirming his 1-2-1 social skills at school and behaviour worker coming to my home to do social stories...
when i first sent in the dla claim i sent all copies of all speech and lang reports.. reports from the consultant who diagnosed etc etc...
plus now he is being assessd by ed. pysh too....
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hi all,
after my son was refused dla the first time i asked for a review. i told the dla i have more documents that may help and they said that i would have time to get them in before another decision was made. this was in dec.
i got a decision saying that he had been turned down again but gave no reasons as to why.
i decided not to pursue it any further until last week when i spoke to the barkshire autistic society. i have since asked dla for an appeal and they have sent me the forms and i have sent them back.
anyway..i phoned citizens advice who are going to help with the appeal but asked me to get a written statement from dla why he was refused a second time.
so yesterday i phoned up and dla are going to do this for me but the lady also told me that some new documents have come in in jan and the decision maker is looking at them... these are nothing to do with the appeal.
she thinks that maybe a reveiw was made without my new supporting documents being looked at...
so im hoping that all will work out....if not then i still have the appeal to go through...which i am very nervous about....anyone else been to appeal...?
many thanks paula
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well after all that waiting dla sent me a letter saying that i cant get dla for my ds and its baecause the school report said that he has no behavioural difficulties , can dress himslef, can follow instructions adn has road sense... how would the school know about his road sense?
i have phoned up and got the explanation and have immediately asked for a review...i am not surprised by what the school have said in the slightest..i requesteda copy of the report from school...
funny enough i attended a meeting this morning at school with salt and they have seen my ds and said his langauge difficulties are complex and they cant help until they have new speech and lang assessment - last one only 6 months ago- and they have asked for ds to be assessed by ed. pysch too.. i
i am so cheesed off at the school and dla...i sent documents to dla confirming that the school do think my son has behavioural difficulties because they have him under behaviour support team and he sees a lady once a wekk for 1-2-1 social skills. plus also his school report states that 1/2 times a week he refuses to work....
what happens now? do dla ask school for another report... they didnt even get in touch with the person i put down on the form to contact which was his consultant...a person who recognised his difficulties and not the school who have no idea what it is like to care for a child with asd...
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if you go to the army website..and look under careers there is a section that says which disabilities prevent a person from joining...AS is not one of them...maybe this is a technicality that your mp can use...
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Hey guys,I wanted to join the army but I was refused on grounds of my Asperger's Syndrome, I wasn't even offered a medical.
I have really mild AS, when I was young I was a little terror, but since I have gotten older it's worn off a bit, what with all the affects of maturing and all.
I've seen countless examples of people who have AS within a military service who have excelled in their jobs. (No doubt their either didn't know about their AS or they lied on their paperwork)
Can anyone offer any helpful advice? I've already initiated an inquiry with my local Conservative MP (They support the Army more than Labour or LibDems
) who has taken it up with the shadow Defence Minister and my medical details have been made available for all of parliament to see. 
I have also taken it up with my doctor and he has quoted a price of �400-�800 to see a specialist AS adviser to either try and un-diagnose me of AS (�800) or analyze my suitability for the army (�400). Which you've got to admit, is a pretty hefty price.
Thanks for any info you can provide!
i would have thought that this goes against disability discrimination act....dont think its entirely legal...there are plenty of jobs within the armed forces that are as routine as a civilian job...i think that maybe going on operational tour might pose a problem for someone with AS...but that is only a might..not everyone is the same. personally i think that the structure of the armed forces might be an ideal situation for someone with AS..everyone knows what they are ment to be doing and when...
i think you did the right thing involving your mp...is there any reason why you have to disclose you have AS? my hubbie got refused entry to army 3 times..in the end he lied and got in and has been in ever since...he gets fantastic bi-annual progress reports...so whoever refuse him in the beginning was not justified in doing this as he has provedto be an excellent soldier...
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bottlebank
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i had this too and went on two parenting courses...
my advice is to ask to see a different consultant...
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im originally from up north.. but now im in camberley surrey...travel about because we are military..
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ooh i love putting the tree up and the bit i hate is taking it down because the room looks bare withour it...i love it in the evening when its all lit up and sparkly
i dont put it up though until about 12 days before xmas but i have just ordered a christmas hits cd so that me and the kids can get singing for the whole of dec
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I have been reffered to a consultent bout the asthma as I have had 6 admissions to hospital this year when I have been away from home and not even one mild attack at home!! This was confussing all the doctors so this was the reson for the refferal. Anyway saw him and he dint have many ideas either so I got sent for lung function tests and allergy test (horrible I tell you!)On Thursday we went back for the results found out I am allergic to tree and grass pollon. This would answer the attacks while away (normally in a field!) but I can go camping with family fine!
He said it must be panic attacks then and not asthma!!! He said if I am getting overloaded during the day then I am going to bed with this on my mind, giving the reson for waking at 3am stuggling to breath! Now getting refered to physio to get tought breathing excersises and letters to college and scout leaders asking that I not be put under so much pressure on camps and be given hour or so in the evening to cam before bed!
Anyone else have expirence with Panic attacks as it seems it may be AS related by getting overloaded with information during the day, at home if I cant cope I loose it but when away I feel I cant for fear of being thought a weirdo! Theres no winning here!
i am currently off work sick with panic attacks and they are a horrible horrible thing. i have had panic attacks for 14/15 years and have learned to cope with them. but i am also waiting for a referral to see cpn to get cbt.
i think some of my panic attacks start with sensory difficulties- noise, and sight- am this is one reason why i am asking for adult as assessment because i think that they are linked in some way..
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Ouch!
Parents need reminding of this too, when they get irritated that we are not all full of in depth knowledge about the variety of children that we get in classes. So next time we don't spot, know, instantly understand, give us a break!
Back to the original post;
i thought that in the original post the lady has a dx for her child and has informed teacher of dx.. but teacher is disputing it...i think this is the source of most parents irritation rather than teachers lack of awareness...
i have had similar problems at school with one teacher who refused to accept my childs dx..and i was very irritated indeed..
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well ladies i havent laughed so much for ages...this thread has had me tickled pink...oh i do love these funny threads....mumble you are so funny...
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another thing to bear in mind is that if you do not ask for support no-one will offer it...sometimes if a parent doesnt know what their child is entitled to they wont ''put you in the know'' ..so to speak..so find out everything you can...
i fought for a whole year to get my las support because he is high functioning and the school would not believe me..they wouldnt even give him an iep.. although once he was dx'd and i found out lots of information about what support he is entitled to ..mainly from this forum and NAS...i insisted on him having support and now he gets it..
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hi everyone,
well yesterday morning i went along to the doctors and the nice doctor wjo i ee said to me straight away that she could see i was getting worse (probably on account of me being in a scruffy tracksuit which looked like pj's
)i sat in there and told here everything that i have been keeping back and i cried and cried...how embarrassing. i also told her about my situation at home with DH...he can be horrible sometimes and walks out often..last time he had me served with eviction notice...i told her i was afraid to leave permanently becaue i only have my mother in salisbury and that would be the only place i would want to be re-housed because i need her support...and im afraid that the council will turn me away for help...despite my mental health problems and my DS's difficulties.
anyway she was lovely, gave me some tissues and said she would phone the mental health team to speed things up. i also told her about getting assessment for adult aspergers and she said ok...
well i felt like the whole world lifted off my shoulders when i got out..i felt so much better.
thank you for all your support..hope fully now i can getthe help and assurance i need....
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Dont know where to start really but I met my DH when Marcus was 4 and he never coped well with his ASD from the very beginning but things got slightly better as they got used to one another and Marcus settled into new school etc. Then 3 years ago we had twins which was wonderful obviously and Marcus adores them both. However as predicted Marcus behaviour deteriorated rapidly due to lack of routine in the house due to 2 small children and this has only got worse as thay have got older. This is made worse by husbands attitude towards my son, He is the type of man who believes that children shouldn,t interfere with life too much and should do exactly as they are told. As we all know this doesn,t work with any child let alone an ASD child. He constantly criticises Marcus when he isn,t doing things as he feels they should be done (he does this with me also but I tell him to get lost). HE is a bit of a control freak who likes things neat and tidy and organised and makes no allowance for anyone elses needs but his (he is an only child). Things have got really bad Miles and Marcus constantly bicker and when Miles is around his behaviour is dreadful, it is occasionally when he is with me but significantly worse when Miles is around. Marcus refuses to stay at home on a weekend when I am working. Miles openly admits he doesn,t like Marcus and has said this in front of him. I know you should maintain a united front in front of children but I find myself siding with Marcus as Miles is so unreasonable and makes no allowances for ASD at all saying he needs to be stricter as it is more important he learns how to behave appropriately. I am finding myself disliking my husband and have threatened to leave but he says he will just keep the twins and I can,t face that happening even thogh I do all the child care most of the cooking and cleaning. I can,t help but feel if Miles was more tolerant we would have happier children. Any tips for saving my marriage.i am so sorry to hear that you are going through this...i am going through exactly the same thing at the moment..my dh has done my head is so much that im on the brink of a nervous breakdown...the bet advice i can give you is to get some professional help while you can...anyone talk to doctor or relate...
hope you get ome help..i truly do feel for you as i know what im feeling now must be similar to how you are feeling and that is hard...
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Hi.I know you should not have to go back to your Dr but it may be the best option.Do tell the Dr very clearly what you have written about your previous anxiety 8 years ago.
They should regard you as a priority.
If the GP has said that the referral will be done on two occasions and has not done anything you could make a complaint in writing.If you do not get a satisfactory response find out from the Practice Manager or PALS what the procedure is.You should not have to complain but sometimes it is the only way to get people to listen.
Karen.i dont really want to rub this doctor up the wrong way as she is the only one at the med centre who is any good. it was her who listened to me when i took my ds...and consequently he has been dx'd.. without her help i would still be going round in circles.
i think i shocked her when i went the first time because she asked me ''how long has this been going on..the anxiety'' and my answer was '' since i was 19.''
i dont think she was expecting that. but from there i told her all about my history of anxiety..im feeling a bit better now thanks to everyone on here...hopefully i can keep it together during the night because i wll be awkae for most of it..going out to the dcotors is an ordeal in itself..
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hi thank you all for your replies..
my gp did give me medication but i am unable to take medication when i am ''unwell''...all part of the anxiety and phobias etc etc..so i cant take the things that will make me better..which was why i was supposed to be referred for cbt.
the woman at mental health was less than helpful and as she was quite stern with me im not sure i want to see them now. there is no point pouring your heart out to someone who has a swinging brick...
anyway...the crying is over and anger has taken over..i have made an appointmnet to see gp tomorrow morning at 9.30...if they wont help me then i'll ask to be signed on to go back to work even though im in no fit state because sitting at home waiting for help is making me worse when the help isnt being delivered..ive waited nearly two months already..
i have no real support..my husband doesnt really understand and says things like '' dont be silly'' and my mum lives 2 hrs away.
i am getting irrational though and yesterday just wanted to take off somewhere and leave...with the kids of course...i dont really know who i can get support from..people dont understand when you say that you cant take the medication...
i have been like this about 8 years ago and again the right help wasnt delivered...i ended up completely housebound and ss got involved as i was struggling to look after my children..obviously i do not want this to happen again and this is why i have asked for help now before i get that bad...
lets see what tomorrow brings..but i shouldnt really have to go back to the doctors..ive been back twice since she made the referral..
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hi i was wondering if anyone could give me some advcie on ehat to do next...im in a right state..
6/7 weeks ago i went to see my gp for my severe anxiety as it is making me agrophobic...so i got time off work..and she said she would refer me for cbt.a week later i had a follow up appointment and she told me that she has referred me to cpn for cbt
2 weeks later i went back and saw the locum and got another month off work and he confirmed that my referral had been made.
i still havent had an appointment so on fri i phoned the mental health team to see how long i would be waiting.. they said they have no record of me..and to phone the gp and get them to re-send the referral.
so i did..they said they would get back to me and didnt. so this morning i phone gp at 9 and they sadi the same that they will get back to me...but havent.
i called mental health again because i want to see if they can help me anyway...the duty cpn has just phoned me and said that thye cant help me without the paperwork and i have to go back to thte gp...
well i cant stop crying..firstly because i hate going out the house and also because i am losing control and am not functioning..only going out to take kids to school and thats an ordeal..i am scared that i will lose the plot completely and end up on a psych ward and no-one to look after my kids...
i dont want to get that bad...what do i do...anyone?
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i have all these issues with my lad..he refuses to do written work...and he doesnt particularly like reading either..with his homework.. which is work that he hasnt completed in class...i have to help him. i do this by reading what he has to do and break it down into small chunks..i will suggest ideas and he will choose which he wants to write and he will write them.. and i help him with the spelling.
but i also have to help him with his maths and other things..not because he cant or refuses to do it but because he doesnt always understand what he is being asked to do.
again the teacher says more or less the same thing..''you have only written 1/2 lines and its not enough''....when will they ever listen. in the meeting i had with school and senco etc i suggested that his written work is to be broken down into small chunks and the behaviour support who were also present recommended to senco that they use cartoons and storyboards to help him...but im not sure that this has been implemented...
all i can suggested is to help him as much as you can by doing english in little bits and like someone else said..let him dictate and you write and then he copy after.. or try and get him to suggest ideas with you and choose the best ones to write...
im sorry my advice isnt very good...hope you get some help for your child soon...
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Just a thought...it could be that the teacher's forms are correct as they see him, because a lot of our kids do 'hold everything in' at school and present quite differently there.Bid
yes you are right.. but what surprises me is that the same teacher has filled out one form on won day and on the next day has written a report and this is the complete opposite of what she has put on the form..contradicting herself.
two separate teachers have done this very same thing.
plus his new teacher who has 'veriifed' everything i have said.. has also contradited herself on her parents evening document which i have a copy. on a paragraph at the top of page it says that ds can listen and follow instructions perfectly and then further down it says that he has difficulties with this and is now his main target for the year !!!
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last year i spent the whole of the year trying to get my sons teacher to 'see' what i could and help me get him referred for a new speech and language assessment and aslo assessment for attention deficit. the teacher said there was nothing wrong with his speech nor his attention span and put this on behaviour checklists.
so i get salt assessment by getting anti.. what do they find? my son has speech age equivalent of 4-5yrs when he was 8.5 yrs...4 years behind. how teacher missed this is beyond me especially as he has stammer.
anyhow as you know he was dx'd in sept with AS, attetnion deficit and also expressive and receptive language delay. ok...just when i think its safe to go back in the water....
ds has appointment at cahms to see consultant again on weds. his new teacher was asked to fill out behaviour checklists for attention because last teacher only completed one...and her opinion if iffy.
so new teacher must have photocopied and give one set to ds's maths teacher. both have filled them in and returned to me today.
his previous teacher..scored him nearly all 0's on the connors and occassional 1. the new teacher has scored his mainly 2's and a 3 on same connors scale.
his maths teacher has also followed the previous teacher ( but they are quite often seen together so that makes me suspicious, but new teacher has come from another school this term)
i just knew i was right all along...i am going to photocopy these docs before handing over to consultant.. might need for future use..
Do I have any rights??
in Help and Advice
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i would put it in writing to the school and ask for copies of his school file under freedom of information act..or get in touch with the ed. psych and ask them to ask for copies ...