kerrybobs
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Posts posted by kerrybobs
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Hiya,
When we go to visit friends, relatives etc. We get a mixed bag of emotions. If we say we are going out she will pester and pester what time we will be going.
She will go routing in peoples cupboards, fridges, wardrobes. Once she has eaten all she can eat she will get restless and start crying she wants to go home.
She will get quite out spoken and can be very rude and upsetting. She will comment on the person that we are visiting either telling them all their faults ie: big bum, big nose, spots etc. Then she will start on there house. I have a cousin who often goes and buys the same as what I have, Robyn will tell her she is a copy cat and to stop copying her mum. She told my cousin who had just had a baby that she thought the baby was ugly and the baby has big ears. I could have killed her.
When I try and coax her to stay a little while longer she will throw a tantrum and start telling everyone they are nasty. She will then either hit the other kids or starts screaming. When I put our coats on she will then cry she does'nt want to go home and wants to stay. By this time I am on the verge of flipping myself.
That saying " I wish the floor would open up & swallow me" often springs to mind.
Kerry
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Hiya,
Robyn my daughter was exactly the same. She would hug anyone I said Hello to and tell them she loved them. She once had the window cleaner by the leg telling him she loved him all the money in the world. The window cleaner was shouting for me to get her off him as he was climbing a fence at the time. LOL.
She has a learning mentor in school and she has been trying to teach Robyn boundaries. She gave us homework to do with her. It was a number of circles inside one another and Robyn was in the middle. Each circle represented mum & dad, brothers & sisters, nana & grandad, Aunties & uncles leading down to friends, neighbours and strangers etc. I hope this is clear. We then had to go down each circle telling her which behaviour was appropriate. ie: mum & dad = kisses & cuddles friends = hugs etc. It seems to have worked, she does sometimes forget but it has calmed down a lot.
I hope this is of help to you.
Kerry
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Hiya,
My daughter constantly picks up everything from colds- ear infections - chest infections, any virus that is going round. She really gets wiped out. She seems to always get it worse than anyone else.
She has had lots of time off school since September due to one virus or another. I was wondering if anyone else finds this with their As child or is it just me.
Any feedback would be appreciated.
Thanks
Kerry
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Hiya,
I have been away from my computer for a bit, I thought I would pop back and have a look at what has been going on and also let you know how we have been getting on.
Robyn 10, has AS, ADHD and dyslexia.
Got DLA finally,we got low mobility and middle care component!!!!!! YIPPEEEE
We have had a bit of progress.
The school have finally given there backing to Robyn ( Big of them, I know). I have had lots of help from a brilliant lady from the parent partnership, who has been taking me round local secondary schools. Also we are preparing for a statuary assesment.
We have found a mainstream school with what seems like an excellent SEN department. With lots of things in place for Robyns needs. Robyn will visit the school once a week from January through to July of next year, for her to familiarise herself before she starts next September. Also she will be given a time table with the teachers pictures on it.
We are waiting to hear from Autism initatives.
I have been going to a parent help group for As kids, which has been a god send.
Work have changed my hours so I am there 1 week out of 2 for when Robyn gets out of school.
Robyn herself is getting more of a handful as she is getting older. The tantrums are getting worse and because she looks her age now, It can be embarrasssing. She constantly screams and shouts. She is still getting by on 4 hours sleep. She is getting quite verbally aggressive especially to the children around where we live. Then cant understand why they wont play with her.
She also hits her 18 month old sister. She will wind her up so the baby pushes her and then she will hit/smack/punch the baby. This is getting out of hand.
The social worker gave me a social story book which to me was not realistic. Especially as Robyn does not stand still long enough to try and explain things to her. I am in discussion at the moment about whether to try Robyn with a trial of ritalin. Any advice would be appreciated.
There have been some great threads, lots made me laugh. Some made me smile and some made me sad.
I hope you are all well and keeping sane!!!
Kerry
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Hiya,
We had a little yorkshire terrier and Robyn would not leave her alone she would dress it up and push it round the garden in her pram. She would want to take it for a walk then put it on the neighbours wall and drag it.
She would take its dinner and hide it or try to eat it while the dog was eating it. Causing the dog to snap at her she now has a scar on her nose.
We once could not find the dog and had the place upside down looking for it, Robyn was equally worried that the dog was lost.
We went into her bedroom and could hear whimpering, on closer inspection we opened the oven door on her toy kitchen and there was the dog with a number of plastic veggies. Robyn then said aaaarrrhhh there she is, I forgot I was making tea!!!!!!!
She once came in the livingroom inspecting her finger, I asked what was on her finger, she said I think its poo, she had only gone and stuck her finger up the dogs bum!!!!!
Sadly the dog died a couple of years ago and Robyn was uncontrollable, She could not understand that the dog had gone to heaven and was not coming back. She kept bringing her money box and telling us to go and get a taxi and bring her home. No matter how many times we explained it to her she could not grasp it. She would cry in the middle of the night and this went on for a couple of months.
We decided that due to the way Robyn treated the dog and the way she reacted when the dog died, that we would not put her through that distress ever again.
It was a bad experience for us, but as with all As kids they are different and your child maybe the complete opposite to Robyn.
The best advice that I could give is to do a trial ie: mind a family/friends pet and see how they react with having the pet 24/7.
Good luck , Whatever your decision maybe.
Kerry
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Hiya,
Robyns obsessions are as follows:
1) ice
2) cucumbers
3) listening to the same song over and over again
4) Raven, Lizzie maguire
5) carrier bags, handbags high heeled shoes
6) Toilet Roll, tissue, she can make the most lovely things. All barbies and teddys all have outfits made out of andrex. When we go to visit my mum ,she always hides the loo rolls.
7) Masking tape as above.
8)Stones, pebbles, shells and she can tell you a story about each one. She went on a school trip and come back with presants for us all!!!! Yes you guessed it, we all got a pebble each. She went to the gift shop and bought herself an amethyst.
9) collecting magazines and newspapers even though she cant read that well.
10) Phone numbers from adverts.
These are only off the top of my head I could go on forever.
Kerry
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Hiya,
Im from Kirkby, Liverpool anyone else from Liverpool???
Kerry
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Hiya,
My daughter who is 10, AS, ADHD, is the scruffiest person I know. She will just leave anything where she stands. Her bedroom is the worst she has the box room in our house so space is limited but the majority of the time , I cant even get in the room due to the mountains of clothes, toys plus numerous carrier bags full to the brim all over the room.
I have tried putting stickers of knickers, socks etc. on her chest of draws and wardrobe yet they are always empty. Robyn gets overwhelmed when it comes to tidying up, she lacks concentration and has no organisational skills what so ever.so she will end up sitting on the mountain of clothes playing.and we have the tantrums and her favourite saying is ' my brain does not know how to tidy up'.
She will get very distressed and will be crying and talking to herself last week it was ' I dont know why my room is like this, I dont know how to do it, I am going to get a knife and kill everyone in this house'.
I thought I will just do it myself in future. The thing is when it is tidy she loves it and likes sniffing the furniture where I have polished , but come the next day it is like a bomb has hit it. She also likes to rub anything may it be a drink, nail varnish, paints etc on her bedroom window even when she has stood there watching me scrub it off and I tell/ask her not to touch the windows, give her 10 minutes and she is at it again.
I must be the talk of the street me with the dirty minty windows.
Kerry
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Hiya,
Im just after a bit of advice and to see if anybody else goes through this.
It was Robyn's birthday last week and we got her a trampoline, my family came round to see her on her birthday. She got very upset that everyone was looking at her trampoline and that the other kids wanted a go. She had tantrum upon tantrum. She started yelling for everyone to go home, she then sat under the trampoline and was screaming for everyone to leave her alone and go away. This went on for half an hour then she disappeared in her bedroom. She reappeared about 15 minutes later wanting to play. Then we went through the same a couple of times more .
Am I doing the wrong thing in getting together with friends and family knowing she gets so upset. To be honest she would probably pester and get upset if they had not have come. So I cant win. This was supposed to be her special day but she seems not to be able to cope.
Kerry
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hiya,
I can totally identify with Fairys72, Robyn 10, is into girly things in a big way ie: dressing up, princesses and at the moment secretaries. Yet she is always filthy, climbs walls plays in the muck etc.
She will only where shoes when she has to but as soon as she gets home shoes and socks come off straight away.
Kerry
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Hiya,
We got Robyns diagnosis today she has As, Adhd and dyslexia. She is on school action plus and gets 1 hour p.w.
She has had additional support from the learning mentor for concentration, self esteem and confidence.
We have a multi agency meeting on the 21st to discuss the possibility of a statement. But dont hold out much hope as the school wont acknowledge As, Adhd and they will only offer help with the dyslexia.
Hopefully we will start getting a bit of support and understanding with getting the written diagnosis.
Kerry
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Hiya,
I have tried omega 3 fish oil caps and eye q with Robyn 9 ASD and dyslexia. She wont take them Ive tried putting it in hot chocolate, yogurts etc, but she can sense its in there, I have tried her with the vanilla flavoured eye q but she would balk and be sick.
Hope you have better luck than us.
Kerry
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Hiya,
Robyn 9, has always been a hoarder, she has an obsession with carrier bags!!! she fills them up with eveything from toys,food,ornaments and the latest one is scented candles. If you cant find anything you ask Robyn and she will go and get it from one of her many carrier bags. After a scour of her bedroom I found handbags, shoes and a bedroom lamp, none of them were ours she had taken them from many of our neighbours houses.
The latest one is stones they are in the carrier bags, school bags,lunch boxes, pockets, jewellery boxes etc. She said they her 'lucky,lucky,lucky stones' I asked why they were lucky she said ;coz they lucky,lucky,luck nice'. She piles them on the floor and tells you why each one is so special. (after the 10th story it can get quite boring, but she cud go on forever). She had a glass stone and she said this was her favourite, I thought she would say because it was shiny etc. But no she said ' If you place it over a word it magnifies'!!!!
The other obsession she has had since a baby. ICE if we go out say to mcdonalds her sister will have a meal Robyn will ask for a cup of ice. She is often in the freezer scraping the ice off with her teeth. She once got her tongue stuck!!!! I had
to pour warm water over it to release her. She licks the freezers in the Asda. The psychiatrist reckons this is a comfort thing for her as she has sensory
problems she does not feel the coldness like we would she just feels the melting of the ice and it must feel really good to her.
Put it this way I spend a fortune on lolly ices and ice pops.
Kerry
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Hiya Suze. I live in Kirkby where do you live? Robyn was diagnosed in November
I got some leaflets through this morning from the Knowsley Parent Partnership I have tried ringing but it is an answer machine. I got in touch with the education office to see if I could get a taxi for Robyn but because her school is more than 2 miles away and there are schools close to our house that Robyn could go to, they said she was not entitled as I was sending her to a school of my choice. Also she needs a statement. The reason Robyn is in this school is because it was by were we used to live. It is a lovely school. I was going to change her when we moved but I visited the schools by our new house and was convinced it wouldnt be the right environment for Robyn so I kept her were she was. I have to pay for a taxi for her to get to school and her sister has to leave her school in another part of Kirkby to go and pick Robyn up. Robyn is just not capable of making her own way home she would either panic, go off with someone or end up somewhere else. I work funny shifts and dont drive so it is awkward for me to take her.
I know what you mean about arming yourself with all the information you can gather. I did this when we were told she had dyslexia. But this Aspergers is making my brain turn to fuzz, because it is so complex. Because I feel Im not getting much support from the (professionals) I did not realise it was going to be such a battle. I get the impression from the school that I am wishing As on my child. As I told the senco if she is right about Robyn not having As then I will be the happiest person in the world.The consultant has a son with aspergers so he knows what he is talking about, seeing the traits at home as well as in his profession.
Thanks for replying to me
Kerry
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Hiya Bid,
I hope so too. Thanks for your kind words
Kerry
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Hiya
Im delighted for you
Kerry
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Hiya
It is so frustrating at the moment because of our senco (who is deputy head) she said that due to me requesting to see the ed physocologist and not them , she said I will have to wait, she will add her to the list for next term but advised me Robyn is not guarenteed to see them as the school already owes them hours.
I could relly kick myself, when Robyn was in the reception I went into her class to help out for a few weeks. When I sat with Robyn whilst she was writing I noticed that when she spelt 'and' she actually wrote it starting with the d-n-a but when you read it, it was and I mentioned this to her teacher she said she was intelligent and was playing with the words.
Her behaviour has always been a bit off the wall.
I got a letter to go in and see the school nurse when Robyn was 7. She thought Robyn needed glasses as she had failed the eye test. As her sister had been through this and wore glasses for 4 years and finding out she had never needed them in the 1st place. I thought were not going through this again. SO I went in and advised the nurse that she could not read, she said yes but she is 7 she must know the alphabet. I told her no, I then went on to tell her my concerns about her behaviour. She said she did not feel this was appropriate behaviour for a 7 yr old and got me an appointment to see Ed physcologist.
When my partner found out he went balistic saying there was nothing the matter with her, he said I was making mountains out of molehills. He put me on a guilt trip and I cancelled the appointment (stupid I know).
I then was getting quite worried as she still could not read even toddlers books. She has a very short attention span so I put it down to she will read when she is ready. I had mentioned my worries to each teacher that she had and was told not to worry she was doing fine.
We got her report through from her year 4 teacher and we were delighted with it. We went in to see the teacher and he said he had been worried about Robyns progress for a while (nothing was said in the report) I should add. There was a teacher from the local special needs school waiting to speak to us she advised us that this was the fourth time that she had tested Robyn (all without my knowledge)
She said Robyn had been borderline on the 3 previous occasions but now the curriculam had changed she was finding it hard to cope. She said she had the reading age of a 6 yr old. She said Robyn was extremelly intelligent as she had managed to bluff her way to this stage. (she didnt bluff me).
Thats when she was diagnosed with dyslexia.
Robyns behaviour was still up the wall at home.
I had been suffering with depression and had been to the school on several occasions they advised that Robyn was really good just a bit immature and went on to tell me it must be something at home. (making me feel worse). I had been to my GP a few times as well and they put it down to phases. I finally went to see GP about myself and broke down I told her a few things about Robyn and she advised she didnt feel it was right so she reffered Robyn to Alder hey.
I thought we were going to be told she had ADD then he told me aspergers. He said mild autism, adhd and damp (not much of this is mentioned). I was numb as I hadnt a clue what aspergers was and when you hear autism you fear the worst.
Because I have gone about this externally (thru the doctor) The school is being very awkward. As I said before because she has come on with her school work they dont feel she will get a statement. Also they wont back up the diagnosis, as she does not present any traits in school totally back tracking what she has told me previously about Robyns behaviour.
At this moment in time my head is everywhere. I feel alone, unprepared, unsupported and helpless I feel I havent got the knowledge to help my daughter.
It is encouraging to read other peoples experiences.
I am now being pressured by my parents to take Robyn out of the school but I am afraid of jumping from the frying pan and into the fire. I dont want Robyn being dissrupted, taking her away from all that she knows. I have decided when I see the consultant on the 2nd I will just have to wait and see what he says and see if he will get in touch with the school. If by easter there is still no support for Robyn then I will consider looking at other schools
Any replies regarding this would be really appreciated.
Kerry
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Hiya
When Robyn went for her appointment at Alder Hey they took blood. Last week we got a letter from our Gp asking us to bring Robyn in. The blood results showed she is anemic (hope ive spelled that right). She is now on medicine. She has always had a pastey complexion from a baby. Her sister is olive skinned and looks like she has been on holiday all year round.
Iwas really interested to read this. Nellie what would we do without you.
kerry
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Hiya Suze,
No Robyn has not got a statement she is on action plus. They have said coz she has come on in her school work it is highly unlikely she will get one. They also say she does not show any as traits!!!!
You are so lucky to get so much time allocated to your son. Robyn gets 1 hr p.w. from a teacher from a special school. She also gets 1 hr p.w. with the learning mentor. There is a classroom assistant who has been with Robyn since reception so she helps Robyn out in class.
Robyn is now in year 5 and I have been worried for when she goes into year 6 and has to sit her sats. They have said they will give her longer. I feel she will find this extremely difficult as she can barely read and if she is able to read it she does not understand what she has just read.
How did you get a statement???
Kerry
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Hiya
I think their could be a number of factors.
When I was pregnant with Robyn 9, As, Adhd &dyslexia. My waters broke at 26 weeks, I was given steroid injections to stop labour. I had 2 lots of this. I had to go for doppler scans every week to measure the water round the baby.
I was started off at 35 weeks and had a 3 hr labour, it was a dry birth (very painful)!!!! She was born weighing in at 4lb 11oz. She didnt have to go into special care (thank god). We had a nurse from special care coming to the house every other day. They commented that her head was very small !!!!! I mean what can you do about the size of your head????? (nothing)
As a baby she hated being held and did not like kisses and cuddles. Yet she was walking by 8 1/2 mths and talking by 12 mths she was into everything. Very stubborn and did whatever she felt like doing. She was completely different to my other daughter and I just put it down to chalk and cheese.
Anyway Im rambling here!!!
My mother-in-law is a manic depressive, and since the diagnosis of As I would say Robyn's dad shows traits of As and so does his mother. But my partners nephew has dyslexia and behavioral probs so I dont know if he has As too???
I was worried about the MMR. As Robyn was developing early (but when I think about it she was already showing us her quirky little ways).
Kerry
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Hiya,
Today I got in touch with Robyn's senco (aged 9, As). Yet another brushing under the carpet.
Apperently Robyn was on the agenda in a meeting for kids with sen's.They have decided that because Robyn does not present any Aspergers traits in school (bearing in mind she has only taught 1, other child with this), she feels it is a home issue, also her dyslexia is their main concern.
She has backtracked on everything she has advised me in the past about Robyn's behaviour. As far as she is concerned she is a loving, affectionate child who wants to be friends with the world(her words).
Also, she advised me that it is highly unlikely that Robyn will get a statement because as she has come on in leaps and bounds since getting extra help and she seems to be more confident.
Robyn has been getting extra help from the learning mentor for self-esteem,confidence and concentration, so maybe that is the reason for her increased confidence. She is also taking melatonin so she is not so tired in the mornings now and does not seem as angry.(dont get me wrong this is only a slight improvement).
All I want to know, is that Robyn will get the school's support. So we have an appointment 2nd Feb so I will ask her consultant if he will contact her.
I did not realise it was going to be so difficult
Also does anyone find the G.P. does not have a clue about aspergers? I have seen 3 doctors from my surgery and only 1 knew anything (he spoke to me like he was reading out of a text book) and still could not give me any advice. The other one said It was not genetic but did'nt know how the child developed Aspergers.
All I can say is Thank god for this site, I dont know what I would have done without all your advice.
Kerry
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Hiya
Thanks for your replies, my daughter has an appointment with her consultant in 3 weeks so I will mention this.
Ta for your advice
Kerry
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Hiya,
My 9 year old daughter was awake till around 3am every night singing,talking to herself and playing.
She has been taking melatonin since the end of November. She sometimes falls asleep 1 hr after taking it, but she still has nights where she is still up come 3am.
Does anyone else find they have mixed results????
She is on 2mg, Im thinking maybe the dosage might have to be increased.
Kerry
primary school - senior school Advice Please
in Education
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Hiya,
Robyn 10, AS. Will be starting senior school in September, she does not have a statement and I found out last week that she wont get one as she seems to cope in school. She is on school action plus.
They have said that Robyn will be treated as a vulnerable child so will get extra support and she will be going to visit the school once a week from May to get her used to the surroundings. As with most As kids they dont like change so hopefully these visits will stand her in good stead for September.
I suppose the advice I am after: Has anyone else got a child who was coping ok (emotionally) in primary school and what experiences did they find once they went to senior school. I know each child is different, but I want to prepare myself and Robyn.
One major thing I am worried about is that she is emotionally very immature, and I am worried that she will become a target for bullies. She is also very outspoken at times and would not think twice about saying what she thought, which can be very rude and offensive. I am also worried that because she is the only girl from her class going to this school that she will feel totally alone. The special needs dept is very good and her older sister goes to this school too, that is the reason for her going to this particular school.
Any advice would be gratefully appreciated
Thanks
Kerry