Jump to content

nellie

Members
 View Profile  See their activity

  • Content Count

    2,479

  • Joined

  • Last visited

Posts posted by nellie

  1. Posted · Report reply

    What wonderful news Loulou, :thumbs::thumbs::thumbs: You have every right to be proud, well done Kai! :thumbs:

     

    I've come over all emotional, :tearful: I'm so pleased for Kai and the family. I've got everything crossed that he gets this placement. :pray:

     

    Hope your little one gets well soon.

     

    Love

    Nellie >:D<<'> :robbie: Four rabbits feet for good luck!

  2. Posted · Report reply

    Thank you everyone for your replies.

     

    I would like to have something on the website that answers people's initial questions when they or someone they care for is faced with a diagnosis or the realisation that they might be on the spectrum..........a sort of panic button. I thought that having a list of FAQ might fit that bill.

     

    I would be grateful for any input.

     

    Nellie xx

  3. Posted · Report reply

    FAQ ? Frequently Asked Questions

     

    I am compiling a list of frequently asked questions for an ASD website and would appreciate your feedback. The website is for individuals on the autistic spectrum, their parents, carers, professionals and interested parties.

     

    What do you think are the most FAQ?

     

     

    Nellie xx

     

     

    Thanks mumble, a good question, meltdowns can be so frightening for everyone involved.

     

    This might answer your question. I posted here about the rage cycle. http://www.asd-forum.org.uk/forum/index.ph...art=#entry90850

  5. Posted · Report reply

    FAQ ? Frequently Asked Questions

     

    I am compiling a list of frequently asked questions for an ASD website and would appreciate your feedback. The website is for individuals on the autistic spectrum, their parents, carers, professionals and interested parties.

     

    What do you think are the most FAQ?

     

     

    Nellie xx

     

     

     

     

     

     

     

  10. Posted · Report reply

    We are in the process of building an ASD website and the hardest bit is deciding what to leave out!

     

    This one is not being left out.

     

    Education Advocacy tips for Parents

    http://www.autism.org.uk/nas/jsp/polopoly....1763&a=8791

     

     

    I hope to have this one in a prominent position.

     

    Early Support - Information for Parents

    Autistic Spectrum disorders (ASDs) and related conditions

    http://www.teachernet.gov.uk/_doc/7040/Aut...ctrum%20Dis.pdf

     

    Nellie xx

     

  11. Posted · Edited by nellie · Report reply

    Kathryn, :)

     

    Yes, I agree, the pinned section in Education is unwieldy and confusing. :wacko: I can't imagine who got it in that state. :rolleyes:

     

    Can I suggest 2 pinned topics, one for SEN advice and one for SEN publications. This would mean you could delete most of what is there.

     

    I'm sure others will have some brilliant ideas and suggestions for a clean up.

     

    Nellie xx

     

     

    SEN Advice

     

    IPSEA Independent Panel for Special Education Advice

    http://www.ipsea.org.uk/

     

    ACE Education Advice Booklets

    Free Booklets For Parents

    http://www.ace-ed.org.uk/publications/index.html

     

    Contact a Family Special Education

    http://www.cafamily.org.uk/pdfs/educatio.pdf

     

     

     

    SEN Publications

     

    Special Educational Needs Code of Practice - a guide for schools and LEAs about the help they give to children with special educational needs.

    Obtained free - 0845 60 222 60. http://www.teachernet.gov.uk/docbank/index.cfm?id=3724

     

    SEN Toolkit

    Obtained free - 0845 60 222 60.

    http://www.teachernet.gov.uk/wholeschool/s...istant/toolkit/

     

    Special Educational Needs: A guide for Parents and Carers.

    Obtained free - 0845 60 222 60. http://www.teachernet.gov.uk/docbank/index.cfm?id=3755

  22. Posted · Edited by nellie · Report reply

    Flora,

     

    If you have caused offence, I am pretty sure it was not intentional. I think you will be missed it you leave, not just for the sterling job you do giving advice and support, but for your friendship.

     

    Thank you very much for your contribution to this thread.

     

    Nellie xx >:D<<'>

     

    edited because I can't spell!! :rolleyes:

  24. Posted · Report reply

    I'm truly sorry for abandoning this thread. My lovely neighbour and very dear friend has died in her sleep. :(

     

    I have managed to read through your replies but not sure I?ve taken it all in. So please bear with me, I will do my best.

     

    It?s not just me then, but it?s really good to read so many positive views of the forum.

     

    Thanks to everyone who replied, especially the people who found it difficult to speak openly. I appreciate and value the feedback of everyone.

     

    I am not knocking the forum, the mods or admin. The people who manage this forum do a brilliant job but I think some aggressive posting is being overlooked. I am concerned that members are not respecting each other and some members are feeling too intimidated to speak up or post. No one should feel bullied or intimidated. I think this has been happening for some time but it?s gradually getting worse. I am not saying anyone is bullying or intimidating but I am saying that people are feeling bullied and intimidated.

     

    I thought I might regret posting this topic, but I don?t. I think people needed a chance to air their views. The forum is what the members make it.

     

    There are too many posts to answer each one individually but there are a few comments I think worthy of highlighting.

     

    I haven?t used quotes, I can?t remember how to use them! (it?s an age thing)

     

    Coolblue

    Maybe the wheels of social interaction may be oiled by the use of phrases like 'I feel...' or 'IMO...' or 'To me it appears that...' when making comments about other posters.

     

     

    Mumble.

    That's easily dealt with - develop a lack of emotional empathy and you won't give a damn about anyone else ...

     

    Erm, I'm not sure about the twists and turns in this thread - I greatly value the support virtual people give me on this forum (particularly as I'm sorely lacking in real people support) but I also recognise that I choose to be here, that I ask for opinions not agreements and that if I'm not happy here, I can use the little red cross in the top right hand corner. It's far harder to ignore real people.

    Nice one Mumble! Is that what that little cross is for?

     

    cmuir

    Debate is healthy, but I do think being respectful and not attempting to enforce one's opinion on another/others is important - I think this has been/can be a big problem.

     

    ScienceGeek.

     

    the main thing is that there will be differences of opinion but to respect each others right to hold those opinions.

     

    Chris 54

    My natural stance is that of devil's advocate.

    Because of this I always think hard about any thing I post, but even then sometimes get it wrong.

     

    It would seem to me that too many people think that there are only two ways of doing things, their way and the wrong way, on this forum and in the world as a whole.

     

    I know there are a few people in the world who are set on coursing as much suffering to others as they possibly can, But I believe that the vast majority of people in this world only have the best interest of others in mind. It saddens my when I hear people saying otherwise.

     

    Accept others point of view and embrace our differences.

     

    As I ofter say "Life is to short".

     

    Don?t know who said this, it might have been me!

     

    I agree it?s isn?t respectful to labour a point, in fact I would go as far as saying it can come across as being aggressive and rude. Some people may feel intimidated by this style of posting.

     

     

    Thank you to Liz K for this observation.

    Equally it is easy to interpret something in a way not intended. The nature of this forum and its users and the issues with theory of mind that is inherent in autism is inevitably going to lead to dogmatic viewpoints or fixed beliefs that are not borne out of malice

     

    Me

    The forum was and still is a fantastic place for advice and support, don't put people off from asking for that advice.

     

    Not a lot left to say, if you will excuse me. I have to bow out now.

     

    Love to all

     

    Nellie xx

     

     

     

     

  25. Posted · Report reply

    Asperger and ASD UK Online Forum

     

     

    I posted the other day, a rare occurrence since I stepped down as a mod and left the forum 2 years ago. A member asked if I was back for good, I said "No, I value my emotional health" Sadly that's how I feel about this forum, it makes me angry, sad and frustrated with the occasional chuckle.

     

    I loved being part of this forum but gradually realised it was upsetting me more and more, I felt it was changing from a place that was supportive, tolerant, understanding and caring. I realised I no longer felt comfortable here.

     

    Although I no longer post, I have been reading the posts. I value the information and the experiences of people with autism, their family, carers and professionals. This helps me in my work as a voluntary supporter. Sadly I'm having great difficulty reading posts without getting annoyed and upset by what I believe to be injustices.

     

    It's only natural that people on this forum get angry and frustrated about the way the system fails them, but it seems that they are no longer able to vent their anger here.

     

    Some people have difficulty expressing themselves, this can be for many reasons, including being upset and angry. I don't see this difficulty being catered for.

     

    It was always a forum that tried to tolerate everyone's differences, no matter what they were!

     

    This is not a personal attack on anyone or a criticism of the way the forum is managed, I simply want to know if others feel the same. It would be nice if the thread could survive without the need for moderation. So please treat each other as you would wish to be treated yourself. No personal attacks please.

     

    I would like to add that I have HUGE respect for Kathryn, Mossgrove and Tally, they do a great job, believe me, it ain't easy!

     

    Does anyone else feel the same about the forum? Or is it just me?

     

    Nellie xx

     

×
×
  • Create New...