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nellie

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Posts posted by nellie

  1. Posted · Report reply

    Tracey,

     

    You have nothing to lose by requesting a statutory assessment. It's possible that requesting the assessment will flag up your daughter's problems. It's not for others to say if you will get a statutory assessment or not, that is for the LEA to decide.

     

    It's worth discussing your situation with one of the SEN helplines. This tells you how to ask for a statutory assessment.

    http://www.ipsea.org.uk/sevenfixes.htm

     

     

    National Autistic Society (NAS)

    NAS Education Advocacy including Tribunal Support Scheme

    http://www.nas.org.uk/nas/jsp/polopoly.jsp?d=143&a=3435

     

    Independent Panel for Special Educational Needs (IPSEA)

    http://www.ipsea.org.uk

     

    Advisory Centre for Education (ACE)

    Helpline: 0808 800 5793

    http://www.ace-ed.org.uk

     

    Network 81

    Helpline: 0870 770 3306

    http://www.network81.org/

     

    Good luck, keep us posted

     

    Nellie xx

  7. Posted · Report reply

    Hi and welcome to the forum tinystar, :)

     

    My husband is 56 this year and was diagnosed Asperger Syndrome three years ago. We have two sons both on the autistic spectrum. We celebrate our 30th anniversary this year and joke that the only reason we never divorced is we never had time!!

     

    We realised my husband was AS after my eldest was diagnosed at 19, my husband needed the diagnosies to move on. Life has improved greatly, we respect each others differences and try to accept other for what we are. I won't pretend it's all been rosy, but knowing why has made it easier. Being married to the nicest person I ever met has helped! :wub:

     

    Feel free to PM me if you think it will help. The following resources might be useful.

     

    Nellie xx

     

     

    WEBSITES

     

    OAASIS Information Sheet - Information for the Partners of someone with AS

    http://www.oaasis.co.uk/images/Information...tners_03-06.pdf

     

    Tony Attwood - Workshop for Partners of People with Asperger?s Syndrome

    http://www.autism.org.uk/content/1/c4/36/18/attwood2.pdf

     

    Maxine Aston?s website

    http://www.maxineaston.co.uk/

     

    Gisela & Christopher Slater-Walker?s Website

    http://www.asperger-marriage.info/

     

    ASPIRES - Asperger Syndrome Partners & Individuals Resources Encouragement & Support

    http://www.aspires-relationships.com/

     

    BOOKS

     

    Loving Mr Spock by Barbara Jacobs

     

    Aspergers in Love: Couple Relationships and Family Affairs by Maxine Aston

     

    The Other Half of Asperger Syndrome by Maxine Aston

     

    An Asperger Marriage by Gisela & Christopher Slater- Walker

     

    Asperger Syndrome and Long-Term Relationships by Ashley Stanford

     

    Asperger Syndrome in the Family by Liane Holliday Willey

     

    The Asperger Love Guide A Practical Guide for Adults with Asperger's Syndrome to Seeking, Establishing and Maintaining Successful Relationships by Genevieve Edmonds and Dean Worton

  10. Posted · Report reply

    Ultra Mum,

     

    I don't think I would be happy to accept this wording, the provision in your child's statement is for your child, it's not 'to provide support as widely as possible'.

     

    such that the support will be provided as widely as possible.

     

    The LEA may be confusing this with a Group Education Plan, you can find details of this in the SEN toolkit.

    http://www.teachernet.gov.uk/_doc/4610/Too...%205%20Text.pdf

     

    Nellie xx

  19. Posted · Report reply

    Phoebe,

     

    Hope the following helps.

     

    Nellie xx

     

     

    COMPLEX NEEDS

     

    Taken from the Code of Practice

     

    (7:52) This guidance does not assume that there are hard and fast categories of special educational need. It recognises, as LEA's will recognise, that each child is unique and that the questions asked by LEA's should reflect the particular circumstances of that child. LEAs should recognise that there is a wide spectrum of special educational needs that are frequently inter-related, although there are also specific needs that usually relate directly to particular types of impairment. Children will have needs and requirements which may fall into at least one of four areas, many children will have inter-related needs. The impact of these combinations on the child's ability to function, learn and succeed should be taken into account. The areas of need are:

     

    * Communication and interaction.

    * Cognition and learning.

    * Behaviour, emotional and social development.

    * Sensory and/or physical needs.

     

    (7:53) Although needs and requirements can usefully be organised into areas, individual pupils may well have needs which span two or more areas. For example, a pupil with general learning difficulties may also have behavioural difficulties or a sensory impairment. Where needs are complex in this sense it is important to carry out a detailed assessment of individual pupils and their situation. However, the accumulation of low-level difficulties may not in itself equate with a school being unable to meet the child?s needs through school-based provision. In some cases pupils will have needs that are not only complex but also severe.

     

    (7:54) In considering evidence as to whether or not it is necessary to carry out a statutory assessment LEAs should bear in mind the particular requirements of the individual child, and whether these requirements can be met from the resources already available to mainstream maintained schools and settings in their area in the context of school-based intervention, monitoring and review arrangements.

     

    Quote from ACE Special Education Handbook:

     

    In some cases parents and schools might well argue that it is impossible to judge the complexity and severity of the child's needs without a full statutory assessment.

  20. Posted · Edited by nellie · Report reply

    Lisa,

     

    If you home educate you don't necessarily lose the statement, I presume you can change your mind and ask for a school to be named on the statement. The LEA still have a responsibility to arrange the provision.

     

    Nellie xx

     

    COP 8:95 Section 7 of the Education Act 1996 recognises parents' right to choose to educate their child at home. Such arrangements are described as 'education otherwise than at school.' In such cases, if the child has a statement of special educational needs, it remains the LEA's duty to ensure that the child's needs are met. The statement must remain in force and the LEA must ensure that parents can make suitable, provision, including provision for the child's special education needs. If the parent's arrangements are suitable the LEA are relieved of their duty to arrange the provision specified in the statement. If, however, the parents' attempt to educate the child at home results in provision which falls short of meeting the child's needs, then the parents are not making 'suitable arrangements' and the LEA could not conclude that they were absolved of their responsibility to arrange the provision in the statement. Even if the LEA is satisfied, the LEA remains under a duty to maintain the child's statement and to review it annually, following the procedures set out in Code of Practice Chapter Nine

  21. Posted · Report reply

    Jinny,

     

    By law, schools have to make reasonable adjustments for children with disabilities. I think putting strategies in place to help your child with their organisational skills is making a reasonable adjustment. If the school haven't got the expertise to help your child they should be seeking support from outside agencies.

     

    Good luck, I hope you manage to get something sorted out.

     

    Nellie xx

     

    There's some useful information for schools here.

     

    DfES Guidance on Autistic Spectrum Disorders.

    http://www.teachernet.gov.uk/wholeschool/sen/asds/

     

    Autistic Sprectrum Disorders - A Guide to Classroom Practice

    http://www2.deni.gov.uk/inspection_service...20Disorders.pdf

     

    Information on Disability Discrimination.

     

    SENDA: Special Educational Needs and Disability Act 2001

    http://www.hmso.gov.uk/acts/acts2001/20010010.htm

     

    DRC - The Disability Rights Commission is an independent body established in April 2000 by Act of Parliament to stop discrimination and promote equality of opportunity for disabled people.

    http://www.drc-gb.org/

     

    Disability Rights - Codes of practice

    http://www.drc-gb.org/the_law/legislation_...f_practice.aspx

  22. Posted · Report reply

    Hi opheila,

     

    I've been to Disney Land Paris a few times, even though my sons love flying, we have always travelled on the Euro Star as the train takes you right to Disney Land.

     

    There's information on Disney Paris on these previous topics and the NAS link gives information on flying.

     

    Hope you have a lovely holiday.

     

    Back from Disneyland Paris

    http://www.asd-forum.org.uk/forum/index.ph...ic=5716&hl=

     

    Disneyland Paris

    http://www.asd-forum.org.uk/forum/index.ph...ic=3110&hl=

     

    Holiday guidelines

    http://www.nas.org.uk/nas/jsp/polopoly.jsp?d=1064&a=7246

  23. Posted · Report reply

    Debbie,

     

    Your book arrived in the post this week, it was supposed to be here for Christmas but they sent the wrong book by mistake, they dispatched another one immediately.

     

    Thank you so much for writing this book, I loved it! I also loved the picture of you and your mum on the front page, you both looked so happy.

     

    Your mum was very proud of you and I'm sure she would have been thrilled with your book.

     

    I keep seeing your name on my travels on the internet, I'm sure your efforts make a difference, well done!

     

    Congratulations on winning the competition and for raising so much for charity. :thumbs:

     

    Love

     

    Nellie >:D<<'>

  24. Posted · Edited by nellie · Report reply

    Additionally, I think the difference between being formally 'told' and just 'growing into' the knowledge is huge, with the former implying a sort of secrecy/stigma that's not there with the latter.

     

    I agree with Baddad on this one. I find it difficult explaining autism to my sons who were diagnosed as adults, they are autistic and probably know themselves better than I ever will. I can however explain how I think and behave differently to them and hopefully give them strategies to cope with any difficulties they encounter. They often assist me with understanding them.

     

    I can recommend this book - Finding Out about Asperger Syndrome, High Functioning Autism and PDD. The author Gunilla Gerland is diagnosed with AS.

     

    NAS links on diagonsis, hope they help.

     

    Telling your child about their diagnosis

    http://www.nas.org.uk/nas/jsp/polopoly.jsp...032&a=10848

     

    NAS - Diagnosis

    http://www.nas.org.uk/nas/jsp/polopoly.jsp?d=1031

     

     

     

    Nellie xx

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