nellie
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Posts posted by nellie
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I agree with Penny. It is the extra work involved compared to a child with no difficulties. I think we as parents of children with special needs get so used to looking after them, we don't realise just how difficult it is compared to having children who have no difficulties. We can't even compare it to looking after their siblings as we are looking after the child with special needs at the same time. A parent who has been immersed in looking after a child with special needs will not necessarily know what "normal" is.
On the other hand just because a child is diagnosed with an ASD does not automatically mean he will qualify for DLA.
The NAS have a fact sheet on claiming DLA which gives examples of the sort of difficulties Autistic children experience, it is at
http://www.nas.org.uk/nas/jsp/polopoly.jsp...sp?d=108&a=3330
nellie
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DfES Guidance on Autistic Spectrum Disorders.
In recent years there has been an increase in the number of children and young people identified with autistic spectrum disorders (ASDs). The Department for Education and Skills has supported a number of initiatives which have developed guidance related to ASDs. The links below take you through to the current available guidance this will be added to when new resources become available.
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Kaz
I'm glad you eventually found the site and found it helpful.
Do I mourn for the son I should have had? Yes, if I am honest I do. Am I glad I have the son I have? Yes, of course I am. I have yet to meet someone on the autist spectrum who is vain, vindictive, spiteful or greedy. They are nice people, very nice people. They just think differently. Yes, they drive us mad, and we get upset, angry and frustrated - just like them!
Daniel sounds like a great lad, so you must be doing something right. You must be very proud of him.
Nellie.
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Kaz
You might find the following site helpful. It is Jim Sinclair's site, you might find his article "Don't mourn for me" interesting.
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Kaz
You are not alone, we are all here.
A good question. Well done Daniel. I thought your answer was lovely.
I am sure I read somewhere that the majority of adults with Asperger syndrome ( I think it was about 90% ) would rather remain as they are. My husband 52, diagnosed asperger, has said he would not like to be neuro-typical. So maybe Daniel could hold on to the hope that life will get better as his understanding improves and he learns strategies to overcome his difficulties. I don't suppose it's much comfort to Daniel at the moment though.
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Hi Sandra
Welcome to the site. I have two sons, 23 and 25, my eldest has ASD and my husband has recently been diagnosed with AS. I am Scottish but have lived in Berkshire for the past 18 years.
Hope you find the site useful. Kris and Elefan the hosts have done a brilliant job.
Seasons Greetings to you and your family.
Nellie.
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Elefan
As you are local to Berkshire may I suggest you contact Berkshire Autistic Society re. benefits. From what I have read about your daughter I would have thought you would be eligible for benefits.
Can I also suggest the following website:
www.cafamily.org.uk/benefits.
I have recently found out that if you are on Income Support (which is means tested) you can claim a premium if you have a disabled child.
Hope this helps.
Nellie
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Hi
I can understand your worry. It may be possible for your son to ask the university for help and support. They may be able to provide a mentor.
The following books might help.
Pretending to be normal and Asperger Syndrome in the Family both written by Liane Holliday Willey. Liane is a doctor of education, a writer and a researcher. Dr. Willey has a husband and three children. She also has Asperger's syndrome, just like her youngest daughter. She gives accounts of life at university.
Hope this helps
Nellie.
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Hi Lisa
Sorry to hear you are having such a tough time of it. Emotional and mental health issues can become a problem with aperger syndrome. Teenage years are difficult for anyone to cope with but AS teenagers have it particularly tough.
Maybe you could go back to the person who diagnosed and explain your sons difficulties. It's really difficult when no help or support is given after diagnosis, you are just expected to be an expert and get on with it.
You are correct when you say it is unlikely that your GP will understand, maybe he could refer your son to a paediatrician, if the paediatrician is unable to help due to lack of knowledge they may be able to refer him to a CAMS - Child and Adolescent Mental Health Service. It is important that he is treated by someone who has an understanding of AS.
There are some excellent web sites and books which may help him understand. Luke Jackson in particular. Details are on this website.
It may be that his needs are not being met at school. Meeting with the school or bringing forward his annual review may help the situation. Maybe he needs more LSA support.
Hope this is of some help
Nellie.
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I couldn't agree more tyraelie. Every child with a Special Educational Need has a legal right to have that need met, if it can't be met within the school budget then with a statement of educational needs. I would advise any parent who does not know their legal rights to special education to contact ACE, IPSEA or NAS Advocacy.
Details are on this site under ASD Resources.
A good tip is to make sure you have enough evidence to prove an assessment needs to be done before asking for one, if an assessment is refused I believe you have to wait six months before re-applying.
would you give me a pill if it cured my aspergers
in Medication
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What if the question was 'Would you give me a pill that would make EVERYONE around me understand me, which in turn would allow me to function better'?