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farfalla

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Posts posted by farfalla


  1. DS was seeing the ed ph today at 930,

    he had missed school yesterday due to a distrubed night previously

    but went in today as normal.

     

    I got a call at 330pm, to say he had NOT been seen by her,

    as he wasnt signed in this morning? Hubby was asked time he arrived,

    and it was 815 as normal, so no excuse for that.

     

    The senco and EDPH decided to meet together,

    and decided DS would be best served by the behaviour specialist

    who has expertise with autistic conditions.......

     

    The E.P. said it was important to get an accurate pic of DS specific

    requirements and to observe his reactions to various interventions offered.....

     

    the BSS to observe DS thursdays,

    LA to work with DS weekly also,

    teachers to report back after receiving a chart card from the senco

    enabling them to pin point issues.......

     

    This is to be a six week observation and then the senco wants us all to meet to

    see where they need togo from there.....

    The E.P. said after they gather these reports, she will then

    evaluate and see if DS goes forward for statementing,

     

    Is this normal?

    Shouldn't the E.P. HAVE seen DS?

    I am sooooo confused, and now it seems i have to wait

    another six weeks until I hear something else,

    I just wanted to get this out of my brain before

    its goes off and explodes!

     

    I just dont want my son to suffer in the process

    but saying that he came out of school with a smile tonight, and said

    it was good today. But one day out of 5 isnt great, and six weeks is hell of

    long time.

     

    well thanks for reading, whoever you are.......

    its nice to type......:)


  2. THANK YOU ALL for the replies(soz cap lock off now)

     

    I will get those books, (getting hubby to look on ebay now lol).

     

    I think I know what to say, but its how too with him,

    and making sure he understands that he isnt wrong for being different...

    the cat one will be good, as we have 2 and a dog and he loves cats...

    one sleeps with him, and hates us!!

     

    thank you again


  3. thanks Pearl, he does not know why he sits with the LA

    or why he was in different parts of the class....... but I know it will come,

    and as I said he asked why he was special, cause thats what i use to say

    before we knew what was what after dx,

     

    I dont want to say the wrong thing, and have him play on it........

    as he tried when I mentioned a time out card.......

    saying *oh good I can go out every ten mins!!!! and did the evil giggle thang!!

     

    I am still trying to look, but as I said dunno what to type in search,

    so flicking through hundreds of pages lol


  4. Is there any simple ways I can explain to DS about his AS?

    His communication with others is getting his own self into a pickle,

    and he asked me last night why he was special?

     

    I have tried to search the forums, but I don't know what I am doing!! :whistle:

     

    Any tips would be gratefully read.......

     

    He is 11 years (and 10 months, as he tells me weekly)


  5. I would love to try it, but I don't want to let him down, he is excelling in maths, as

    a lot of AS children do with one subject normally,

    I will prob look into it, but I wouldnt know where to start.....

     

    there is a AS school just opened in godalming,

    and they are willing to take DS but with a statement of course,

    which is what the consultant wants.

     

    If anyone has home school info, please IM me, or

    post here for me, thank you in advance


  6. DS went to cubs about 2 years ago in woking, and hated it.

    Bad timing on our part, as it was this week then, and it was

    guy making day, very hectic and he sat in the corner all the time.

     

    He wants togo sea cadets(i think that is how its spelt ha), when he is 12 in Jan,

    so we will have to speak to person in charge, but they are all good for social skills:)


  7. Farfalla,

    How awful, I pm'd you earlier but had not read this thread. I am so sorry what you and your poor lad are going through, please get this sorted before it gets too bad. I was told today by SCC that Surrey LEA don't like doing statements and that feel the IEP's are enough, think you are going to have to seriously consider returning to work as this could be a long and hard battle.

     

    >:D<<'> >:D<<'> >:D<<'>

     

    Clare x x x

     

    It might be good that I work for Surrey county council........

    unfortunately not the childrens, i work for adults, hosital discharge stuff.....

    they call it care in the communtiy but at the moment we are sending all referrals to private

    agencies..... and that would be another LONG comment from me!! not good!!

     

    Sorry went off course then lol,

     

    when i told the SENCO that the consultant wanted DS statemented she seemed very happy.....

    was that just made up laugh? or was she really happy for me? god i am confused now....

    and they have the letter from st peters, telling them they were not happy to learn DS had not been

    done yet, and this was a matter of urgency........

     

    oh DS is seeing the school psychiatrist thrusday,

    who will evaluate him then? does this get done in one day??

     

    i will search around here and see if i can see anything.

    might ring scc tomorrow and have another word with them.........

    if all else fails, i will move back to devon!


  8. Monday wasn't great, DS had walked out of PE, (this I was told tonight),

    he asked for time out, and got himself dressed and sat by reception...

    the *picking on(as the teachers are calling it now, instead of bullying!!), has continued and

    DS had enough..... I can see him getting more and more withdrawn, and his

    idea of going to school is getting worse.

     

    Made him feel better last night, with a nice bath, and a few giggles watching

    (what I call rubbish), dirty sanchez on tv! and had a good picnic tea.

     

    So today I thought would be good.......

    Hubby picked him up, and as they arrived home,

    told me DS had lost his bag today...... some time this morning!

     

    DH also told me that while DS was walking to the car,

    4 boys shouted over to DS and said *don't you f******* forget!

     

    DS got in the car and said please drive now to DH,

    Hubby asked him what it was about, but he said nothing and looked out the window.

    So I questioned DS, and said if they bully you with anything, you have to tell mummy,

    I will sort this out for you then. But he refused to explain what it was about, weither that was

    because he really didn;t know what they were talking about, or just refusing to remember........well!

     

    SO anyway, I rang the school and asked about his bag, the lady said o one has been handed in,

    i told her he has his name ironed into it, but she wasn;t sure it was his.

    Went to school, and was again told, the bag wasn't his, but they could look anyway,

     

    Down to the clockroom......... got shown the bag!

    and guess what.......... it was DS bag, had his diary in with his name in it,

    his timetable with name in it, the label ironed into it!!!!

    No wonder they can never reclaim anything!

     

    Asked to speak to the head of year and his teacher

    but both were unavailable, so I was asked to please email in

    with my query, or i could wait until 5pm!

     

    I decided to email in, for the fact I got grumpy with me,

    and he kept looking at the time........ the fact he had taken his shoes off,

    and had to put them back on togo back too school, was MY fault.

     

    So email sent, another day done, all similar and all getting to me still.

    With work coming back to me next monday, I don't know if I can go back.....

     

    Its been hard dealing with this while I have been off, and

    I have forgotten how I dealt with this before........

     

    A good thing though, letter from consultant to the school has been delivered.....

    telling them to get him statemented, and changed his DX slightly, to more AS than ADD.

    I wish I had the patience to home school, but I wouldn't last a week :whistle:


  9. Had nana up to visit for a fortnight........ that its self was a challenge!

     

    Started good...... DS helped her make buns,(green,purple and blue ones!)

    and he even tried one..... albeit a small bite, but he tried it.....

     

    Mum spent her evenings reading through (the now famous on here), aspergers book,

    from cover to cover...... then on saturday before going home, made pasties(nice for us)..

     

    HOWEVER...... she wanted DS to try a bit, and when he laughed and refused, she was

    found struggling with him on the sofa,(I had been in the bath), trying to force a bit in his mouth!!!!

     

    Now, yes I use to get upset with DS when i cooked something and he wouldnt try it, but that

    was before I learnt why he wasnt trying things, and the different ways of getting him to try........

    (and yes I feel bad for that),

    I flipped out....... I know I shouldnt have, but she had read the whole damn book, and still

    went about things like a nut!

     

    I am proud of DS for trying buns,,,,,,,, but so angry at nana for her bullying ways.....

    yes I remember having to sit at the table and having to eat ALL my dinner, even if i was there

    for three hours!

     

    Sorry, so much has happened in the last two weeks, with school and stuff

    and I havent been able to come on and rant....... I am back to work on Monday

    after having 5 weeks off! So I need to sort my head out........

     

    God reading back that all seems jibberish! But its good to get it out of my head,

    even if it reads worse than clingon!


  10. (god my browser closed mid reply grrrrrr)

     

    Hi Clare, I know how you are feeling, Niam is having probs with Monday

    as he has triple!! PE....... there are three tutor groups in the whole lesson

    and the noise really gets to him. He doesnt goto sleep on sunday until midnight!!

     

    HUgs out to you. and if you want to talk, i will send you my mobile in IM


  11. I did catch the programme just as the teacher was getting the chair in his nose..... :whistle:

     

    I thought there wasn't enough time within the whole program to get the right point across,

    I didn't like the Rainman quote, or the fact that teachers in this day and age

    would strike from lack of understanding.

     

    Didn't do much apart from say people with AS can be violent........

     

    come on tv bosses we need more real life documentaries on :wallbash:


  12. you see again from Jsmum another bit of wiserer (is that a word.... well i will add it to my dic).

     

    ty wishing well......

    and to Clare, well i hope i dont drive you mental

    when we meet for coffee and the other,

    tell me to shut up...... i wont cry (much lol).

     

    just being here for the shortest time,

    i am in contact with a couple people who live near me

    and who have similar headaches :)

     

    when i type things on other threads, i think god i am just copying what was said,

    so yes it is soooo true, you realize you arent alone.......

     

    i have only been registered for less than a month

    (even though i lurked for longer)

    and i have learnt SOOOOOOO much

     

    as above thank you all >:D<<'>

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