bluefish
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Posts posted by bluefish
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Hi, my ds is 4 and sounds very simular to yours in many ways, he is also hyperlexic.
please feel free to pm me if you like.
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Hi, ds has recently started to go on about another child from nursery.It has got to the point that this dominates everything he says.
For example a typical conversation goes like this.." Is x awake now? is he having coco pops ? ask me is x awake now? dont say dont know say yes, no not like that say Yesss. will x be at nursery today? will he mummy ?say yes. x is my girlfriend. dont say I know ,say is she."
This is non stop all day.I have tried telling him I do not know if x is doing whatever and he gets very upset and distressed.
I asked (in desperation) if x could come and play as I thought this might help and he became hysterical and said x belongs to nursery.(he has never wanted anyone to come)
The staff at nursery said he went on and on when x was off for a day. When this child is at nursery apparently ds just follows her around.
Any ideas how to stop or reduce this constant talk?
Its exhausting!
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Hi, I wrote a letter with my application for my son explaining why I thought I needed a badge for him and how much difference it would make to us. HV wrote a letter supporting my application. We got a badge. Maybe you could ask your doctor or another proffesional to suport your application? Good luck.
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Hi, I have just had to fill in dla forms again as ds is almost five.
I found it very very hard and sort help from local dissability team to help as I can not write all those negitive things and tend to make ds out to have far less problems than he has as it hurts so much to focus on the negatives, any way horrible forms complete.... but I couldnt help myself from putting "I know my son is different and has many difficulties however I couldnt find anywhere on your form to tell you how fantatic he is , how much joy he brings me and that I am so very proud of him!" Posted form and now feel a bit silly but could not just let them read all he cant do...anyone else ever done this???
I cant beleive we have to re apply! I found it insulting to have to say all the same things as last time... He doesnt have a cold! this is not going away I just wish they could write and say "has anything changed? any thing got better for you? has anything got more difficult" anyway................
any one who feels this way?
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Hi,I can only say what ds assesment was like as only have this experience. He went for four hours a week over a period of about 4 months. It was very much like the things he did at nursery, painting, singing and playing games etc. He seemed to enjoy most of it. They observed him doing regular activities and also was seen by different proffesionals who assesed him by spending time playing games and talking to him. During this time he also had slightly more formal assesments where I was present when he was asked to do spesific things(puzzels,building blocks) and was asked questions. It was all handled very gently.
As for Educational psycologist, ours visited nursery several times and then met with me afterwards and told me what he had observed during his time with ds (the good and the not so good..) I never had a home visit so cant help there.
but would think it just a more relaxed atmosphere to see your child and ask you questions about any difficulties??
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Hi. just wondered if any of you had thought about puting your knowledge on paper for other parents about your journey down th dx road? I was thinking of typing something up to give to HV to give to any parents that are about to embark on this dificult time.... ie what happens at cdc,who they might meet (proffesionals) any tips for filling in dla forms what they may be entiteled to (ie essensial tariff gass,electric, bus pass etc.) Also any info about statementing,support groups and so on that is area spesific .also info on forums like this where parents/carers can get help ,advice anyone think this could be worth doing? I just feel it has taken a long time to find everything out and If i could cut a few courners for another parent it might help them?
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A really hard one! it must be very difficult.
My ds has never been able to let me know what he thinks till this year(4 and a bit) he was not interested in christmas as always but a few days later I said "thats what santa brought" he said" you got it from wollworths" He does not beleive??!!
wish he did in a way as I enyoyed the myth well into my teens
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Hi, really feel for you!
We have same problems shopping, ds finds it all too much and other shoppers cant stop themseves from staring and making loud comments or tutting!
Funny thing is apart from Thomas the tank! his other obsession is..............SUPERMARKETS!!!!!! ds likes to go food shopping
and often begs to be taken as a treat!!!!! beleive me its no treat for anyone! as he runs off and is very difficult(luckily as we visit same large supermarkets often they are getting to know us) But once home ds will glow as I drag the many bags into the house and say"thankyou mummy that was a great day"....he says that every time..
but he really enjoys himself I guess you got to smile
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Its so interesting! It makes sence about the fat controller.. with really useful engines. At one point ds called me Fat controller mummy! and if he would not get in the bath I would use fat controller voice and say" Now little enginge into the wash down", followed by" I am very proud of you!"( thank goodness that stage has passed)
Smiley, I am still setting up elaberate track every day and am now almost a professional!!!!
and my ds also lays on floor and watches the wheels!?!!Also loves Pingu and pocoyo! when he is very excited he speaks like pingu... nug nug
ds is 4.5 and shows no sign of getting bored with Thomas!
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Hi just wondered how many of your children are obsessed with Thomas? just wondered as ds studies catalouges and books infact anything thomas.... what is it about Thomas the tank engine?
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Hi,
I have a friend that has a child the same age as ds, we get on really well but she has no understanding of ds's problems.
The thing is she always says things to her child that frighten and confuse ds ,for example: the boys are on the grass with the scooters: I say "get off the grass with the scooters." she says" quick the park police are watching you must get off the grass before they come and arrest you" also says lots of things that are not true ie" hurry up I have got smarties at home" when there are no smarties.My son is very literal and expects the smarties. I am not sure how to tell her ds now asks endless questions about the park police and it was hard that I had to tell him an adult made it up and there are no park police. I have tried to explain ds does not understand in the same way as other children but it seems to make no difference. asd or not I personally think it is best not to threaten children with things like park police but that is just my view.
Any ideas how I might get the message across without being rude or looking like I judge her parenting? at the moment I am avoiding her but we were very good friends.
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Hi, Good luck tomorrow.
The only advice I have is You know your child better than anyone.The ed psyc and others only see him for very short assesments and do not see the full picture. Be strong and firm about what YOU beleive your child needs and dont let them tell you. Good luck.
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Hi, I have tried almost everything with ds, fish oils multi vit etc and he would not take or was on the verge of vomiting with all so never got the chance to see if they helped. But dietitian has just prescribed "Dalivit" drops that I add to his ceareal and ds did not detect it!!!!!!! so fingers crossed this will give him the vitiamins he needs
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My ds took to breast feeding very well and I only stopped at around 9 months due to teeth and him biting me he then took to bottle very well but from the day we said goodbye to bottle he has never had milk again! tried cups,straws,choc milk etc but he thiks milk is from baby bottle or breast.
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Hi, I think I read somewhere that some cinemas around the country offer an asd showing of some films? They have lights up ,sound lower etc so sensery issues are less affected..If this is true has anyone taken their children or been themselves?If so how was it? ds has lots of sencery issues and I would never attempt cinema but this sounded possible.
Thanks in advance for any replies
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I like it. It made me cry...Very well done
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Hi, SO happy for you that they have agreed to assess. I am at the same stage with my ds. they agreed to assess last month. I had a very depressing multi agency meeting where ep told me I had no chance and they thought a note in lou would be best... I fought my courner like a rabid tiger banging on about early intervention etc then got letter within days to say thay would assess him for statment.Even got an apology from ep to say he was wrong!!!!!! I too felt like I had won the lottery!I am as you are now awaiting the outcome. Its very hard to read all the reports (they send you copies) from all the people involved. I have found when I get a report that states just how much help he needs I am delighted then very upset that I am delighted about so many negative comments and on the flip side get really cross with the reports (salt) that make ds sound like he has no problems! a tough time. Good luck please let us know how you get on x
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Mumble your a star! I am loving being able to read most resent posts! still can not master the quotes thing.... read the link and tried my best but have to confess don't know how to even cut and paste! never mind I will keep trying. thanks for not thinking I am totally stupid!
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See This (long) threadWhen you're in the sub-forums with the list of thread titles - see the little orange squares towards the left hand side of the screen? If you click on them they take you straight to the first unread post.
Thank you very much! I will have a go at that.
Could I also ask how to put picture on my profile?
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Hi I am quite new to computers and muddle through but can anyone tell me...
1. How do I quote from posts on my reply?(when it is in blue)
2.is there a way of reading most recent reply to a post without scrolling through every one?
Thank you in advance
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Hi and welcome to the forum.you will find loads of support from everyone here x
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Hi, my ds had speach delay and I first thought he was deaf!!!!His speach was very delayed and he would point or drag you you to what he wanted..his speach developed at around three and almost every thing he said was repeated.He still has very little spontaneous speach and quotes from tv and books. He also repeats adverts lots.. Tesco every litttle helps!!He is very bright but has lots of difficulties. He now speaks like a well educated little old man! Most of what he says is nonsence but said very beautfuly. He uses long complicated sentenses but has very little understanding.
Ds was diagnosed HFA possible as
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Hi, due to a terrible tantrum in toy shop at weekend with many people staring (and passing comment) I looked on nas site and found some cards to hand out for this sort of situation. I have to say this was probably the worst ever meltdown ds has had in public or possibly anywhere! I ordered the cards feeling desperate for the general public to know ds is not just a badly behaved child and more importantly(for ME) that I am not a totally inept mother!! But I dont know that I will ever be brave enough to hand a card to a dissaproving onlooker?
Have any of you used these cards? I ordered them as I am sick of poeple passing judgement on me and my ds.... But is it a good idea? I am never going to see these people again.. Or do you think it will raise awareness and maybe change the persons attitude another day with another mum and her son? -
Hi I received a copy of th ed psych report on thursday. It is good(if good is having all the things your child can not manage on paper!
) but good as far as our need for a statement goes!It clearly states ds is capable of learning in a mainstream envioroment BUT is unable or unwilling to respond to to basic commands, that he displays repetative behavior,he does not have any social interaction with his peers does not respond to general instuction, shows no interest in activities that the other children enjoy ,seems to have his own agenda, becomes distressed when any change is made to his routine etc etc I was pleased with the report and also very upset. Everything was true ad I am pleased this will go toward his statment but so sad he wrote all those things having only seen ds for very breif assessments.It is such a mixed emotion....I want the reports to show he needs the help but at the same time hate what they say
If that makes sence????I guess in some ways I am fighting for him to have the help but when I read what they see it makes it real?!!Its that catch 22 I guess I desperatly want them to see his problems but am almost shocked when they do as that makes it true??!! will keep you posted when we hear any news oabout statement
Advice please
in Help and Advice
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Hi thanks for replys. I spoke to nursery today and asked them to ignore ds going on about x and try to distract when possible(thanks for advice about getting nursery onboard Enid) I have been trying hard today to ignore his consant talking about x and have responded with ,shall we get the water pistols out or oh look there is a bird on window sill, He is still going on but has managed not to get upset when I have answered with something other than an answer about x
Ds has other obssesions and although they are exhausting they have not bothered me, as this was a child I felt uncomfortable with it, I was (am) worried x may feel hounded by ds and even if x does not ds needs to try and understand other people dont want to be followed all the time.
Will keep you posted as to how we get on with the x obsession(I spoke to x parents and they are very undersanding)