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michele

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About michele

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    Norfolk Broads
  • Birthday 10/05/1970

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    greater manchester
  1. Hello Jenrose Have you tried the national autistic society. They are genarally a good idea for that kind of information. But I can't understand why the CAMHS dont think the dx is important. I have a funny feeling it is the same CAMHS team that my son is seeing, I know how frustrating the whole process can be. What I found is that although you know the full picture you have to remember that they only see your son for a short period of time and therefore you have to remember to give as much info as you can about what is happening at home no matter how irrelevant it seems. Try to stay strong, thats easier said than done I know. I'm glad you've found this forum, its been a godsend to me.
  2. After having the same problems as yourelf a few years ago, I decided to solve the problem at the source by explaining to relatives that only seem to come out of the woodwork at christmas what reaction they may get and why and the best thing for everyone would be to get him vouchers (boring I know.) That way no one gets offended, and to honest Christmas is stressfull enough for them with it being such a 'social' occasion and a change in routine. Or I show them his Christmas wish list which is always about the size of a good novel by the end of November.
  3. this one may seem a bit strange but my son aged 9 has aspergers and over the past 5 or so years has had funny turns on average every few months, although he has had 3 in the past 4weeks. Ill try and describe what happens, he becomes very hot and extremely tired and is sometimes sick but within about 10 or 15 mins is okay again, what is strange is that he says they always start by him looking at something or someone says something that he thinks has happened exactley that way before, like deja vu is the best way to describe it. we have ruled out thing like an anxiety attack or just plain lack of food (because he goes through phases of not eating very much). Im really sruggling to find a cause and would be interested in anyones opinion.
  4. michele

    TEACCH

    I have just read through my sons proposed statement and my head is spinning a bit. The ed psyc and specialist teacher have recommened the A "may benefit from access to some of the TEACCH approach strategies", I think this is due to his very high visual recall skills. Has anyone had any experience of this approach? and what kind of things does it involve? Thanks, from a very confused Mum
  5. hi loulou my son is nine and like yours has learned a few nasty words from other children on our street, I think some of the problem is he so desperatly wants to be 'one of the crowd' and they find it quite amusing that he will turn the air blue no even in front of me when they wouldnt dare let their parents hear. so I sat down with him and told him every swear word I could think of, which he thought was great and then I told him the 'rules'. now he really only swears when he is very angery and upset.
  6. I have been reading tips and advice on this site for some time now but having just read your post I feel I need to add a reply for the first time. What you wrote was exactly where I was with Aaron a few months ago, I could no longer sit back and watch him going down a very slippery slope into depression, low self-worth and extreme anxiety over attending school. I was so tierd of fighting against a system that didnt seem to care what happened to him, so there comes a time when you have to shout stop! And thats what I did, I temporarily took him out of school(mainstream) on health ground and I phoned eveyone Aarons GP, social worker, child and adolesent unit, education welfare, additional needs service, everyone and made them fully aware of Aarons worsening situation and beleive it or not they all listened (probably because I no longer gave them a choice,) they are all now working together school included to help. You have to be strong, every child has a right to be happy, I havent quite got there yet with Aaron but I intend to everything in my power to give him a happier life. And at the moment he doesnt attend school two afternoons a week just to give him time out. You know your child better than anyone and are in control so dont be 'bullied' by anyone. Hope things inprove for you soon. A mums instincts are always right
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