call me jaded
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Posts posted by call me jaded
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I'm sorry if this is going to sound negative but I'm struggling to see anything in your posts that would indicate that things would be different in a new school and that would be worth a two hour commute. If you could explain what you think the benefits will be it might give me a clearer idea.
Perhaps a new teacher will be able to give more positive reinforcement?
IQ tests are just not performed regularly at all these days. If your son has already had some cognitive tests done I doubt an IQ test will add much to the equation. The IQ question is probably already addressed by previous tests if you go back over those results looking for that aspect.
What would his reaction be if you said no, a new school is out of the question at the moment?
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I'd like to think we offer quality over quantity
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It sounds like she has been up all night chatting to you.
Try not to focus too much on the amount of time someone is prepared to 'give' you. Quality is more important than quantity. My DH and I have about 5 minutes of meaningful conversation in a day becasue we both have other demands that we need to attend to. If you have a connection with someone you both should be able to put up with these difficulties.
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We haven't yet reached adult services so I've no direct experience. I recommend that you contact NAS, particularly the NAS day service in West London (Acton-based). My own son is starting at the Acton campus in September.
ETA: Just found they have an outreach team, more here
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Commiserations Kathryn. It's a joke in my family that every time I receive a windfall something else happens to take it away. Roof repairs, new boiler, new shower all as a result of a bit of good luck. The latest was getting £200 back (by some miracle) for returning the motability car in good nick*, and sitting on my glasses. Same day gggrrrrrrr
* DH suggested I'd 'flashed' the car salesman, cheeky get.
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I remember a blissful period just after we moved house and DS was too small to reach the door handle. Then he grew and learned that he could remove his nappy, and started throwing it and the contents of his bedroom down the stairs.
We got to the sleep clinic and they went through everything we'd tried. The options we were given were drug him or lock the door. That was with a PDD diagnosis at that point. We weren't far from breaking down so maybe that influenced their advice.
Thankfully we tried GFCF as the last resort and the effects on his sleep were quite remarkable - the night sweats stopped overnight too. So for us it seems to be metabolic in some way. I do lots of DLA forms for families - maintaining sleep is often a problem at the severe end of the spectrum.
The other three were relatively easy and it involved judging when the time was right and then doing it. Dim and distant memory now my youngest is nearly seven. BTW I used to work for a multinational reporting to a Danish head office and they were so relaxed about children in the parental bed. They took it as read that it would naturally cease by age seven.
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That's very gracious Okay from you Baddad. Much appreciated.
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Very humble apologies Baddad I have deleted your post in error - must have pressed edit instead of reply.
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Did we watch the same programme?
The 'competition' was over the first five nights to see who had the longest period of unbroken sleep. It was 50/50 over the first four nights - two on each side and was only 'won' on the fifth.
Never had much in the way of bedtime battles with my other three, but my ASD son would not, could not, still does not stay asleep and would only settle with my arm draped over him (wish I'd found a weighted blanket) until I switched to GFCF. He can now stay in his room (I hear him shuffling about) until daylight, that's 4.30am some days. He doesn't nap during the day.
Sleep disturbance is a well-documented phenomenon in autism, it does exist and is a significantly greater problem than for typically developing children - browse PubMed for stacks of research. I'm sure behavioural techniques can make a difference but they're not going to resolve all difficulties.
As a parent I found I can function quite well if I get a period of five hours uninterupted sleep. Less than that and my hair falls out and I have major word retrieval problems.
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The last time I looked I was Kilimanjaro - there is a mountain theme to number of posts you make AFTH. Welcome and hope you find some answers!
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I am perturbed by the amount of gate-keeping there is before you get anywhere near a doctor in mental health services. A second opinion is one of those great things about the NHS that we take for granted. Shame you con't get anywhere near a first one. Be persistent catlady.
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I'd be opening the wine!
Have one for me
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Well i would go back to the LGO and advise that you have no recollection of the phone call recorded by the EP and when you queried actions with the SENCO (two weeks later) you could have received a very straight-forward answer instead of what actually happened.
Hopefully the LGO will see it for what it is (baloney).
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A consultation to help improve care services and healthcare outcomes for adults with autism in England was launched today by Care Services Minister Paul Burstow.This is the next step to help adults with autism live full and independent lives as equal and included citizens and follows the publication of the strategy for adults with autism: Fulfilling and rewarding lives.
The strategy sets a clear framework for all mainstream public sector services to support adults with autism and is backed up by the Autism Act 2009, the first ever condition specific legislation.
The 12-week consultation process seeks views from those with autism, their families, carers, representative organisations and all sectors of society on a number of important issues such as:
- diagnosis of autism
- increasing awareness of autism amongst frontline staff
- provision of training and specialist training for frontline staff
- appropriate assessment of needs for those with autism
- provision of relevant services for young people and adults with autism
- local leadership for NHS and social care in relation to the provision of services for adults with autism
More here.
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I watched TV. It was boring, lol.
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Awww my lovely long reply got lost in the glitch.
To sum up I think I said that sometimes it's neither ignorance nor neglect to recognise that disability is, err, disabling and that painful though it is, accepting the difference can be beneficial and bring inner peace. Wish I could remember what it is I said about Pollyanna.
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It sounds perfectly legal to me, as you are coming under B&B regs. I lived in worse when I was a student.
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Well I was delighted to see a Starbucks at the last caravan site we stayed at - two fixes in one for me!
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lol and a collecshun was born.
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Because there is no duty on the LA to make the provision in the statement as the parents have taken on that responsibility it's a worthless document if it does still exist. It's a case of finding the right college course and for an assessments of support needs to take place.
Good luck for tomorrow.
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Good luck!
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We use Activenture MM. Maybe there's something similar near you? I found it by searching the NAS site for holidays. SS now pay for it, though we saved up DLA for it the first time.
Because we are usually at least three adults when we go out and about we can do it quite successfully. I can manage four children on my own if we pick where we go carefully (never shopping, loads of picnics), so as I said I'm too lazy to find someone to pay with DP, but do feel quite strongly that a 16 y/o shouldn't always be with his parents.
Having spoken with my friend she said it took seven months for her support to start, so it looks as though I have stacks of time to think about this and get something lined up. I'm definitely not going to do the overnights.
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I can see a real risk of a 'never again' outcome. What if you get the daily challenge people to write to him and say it's OK to not do it?
Or (light bulb moment) asking the people who run the campsite if he can pop into the office (wherever that might be) to do the challenge?
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I would call it a goal to work towards, especially as his parents aren't going too and you're asking someone else who may not have all the skills to deal with the fallout.
For the sake of 10 minutes I would accommodate it. The point of the break is to give the parents a break and there's no point in turning it into a challenge for the child if the parents then have to work super-hard both before and afterwards.
Just had a note from son "Can We Move School?"
in Help and Advice
Posted · Report reply
Hmmmm no easy answers there!
Maybe indicate to school that you want an appropriate support package to keep him in school and ask the CP/CAMHS if they would support your request for an assessment of SEN on the grounds of BESD (behavioural emotional social difficulties) - you really need a report from someone. Then you can get the ball rolling to see what his needs really are before you make a decision.