bazranz

That seems a bit unfair, especially as the DLA people are a rule to themselves, and they don't always listen to waht you say. When we first applied for DLA for our son, we were turned down. We then went to a disability rights organisation, one of their people filled out the form. Same information as we gave, but using the 'correct' wording. That may be an avenue to explore. Is there an appeal procedure with family fund?

Just a follow up to my previous post, On Monday 18 July we received a letter from the family fund asking us to confirm what our income was, and what benefits we received. On Saturday 23 July we received a cheque. So I would perhaps chase them up.

Just filled it in. If I could make a suggestion. The survey is excellent, but there is a need for ensuring there is a proper carryover of SEN provisions when moving from primary to secondary school. Perhaps it is something you could think about including. I only ask because when our son moved from primary to secondary, although everything was in place, his special needs were ignored in his first sceondary, even though we were fighting constantly.

Hi I applied online in April, and yesterday received a 'phone call from the local family fund rep. She took all the details over the phone, which took about an hour, but besides that, she also gave lots of local info about different groups. She then said I would receive a letter from the head office, asking for me to send income confirmation, and then I would know a couple of weeks after that, so about 3.5 months in total. I saw from your post on the family fund you are also having problems getting DLA for your child. We had a similar problem, but in the end went to a local disability rights group. They had experts there who 'helped' us fill in the form, and we received DLA very quickly. I am hoping there may be a similar group in your area, or perhaps CAB, or the local NAS could help. It isn't that these people put anything different in the forms, it is how they word it, and explain the information better than we can, in a way that lets the DLA people see there IS a problem. Barry

Hi, Our son has Aspergers and tourettes. He was not completely diagnosed until 2003, and has only received his statement recently. I shan't bore you with all the ins and outs, but I will have a look around.