claire33 Report post Posted November 11, 2006 K is his name But know him i dont His withdrawl from me and everyone around him is the hardest thing to accept Although hes my son and i love him dearly, i dont think ive met him properly yet I would love to be able to talk to him about things he feels and do'sbut i dont think he knows himself k is a lovely little boy who is very confused and misunderstood He locks himself away in his room and plays in his own little world of computer games and films His only contact with me is to ask for things or talk about the above, which is very frustrating when there is more to life If only we could talk for a while or he could tell me how he feels or what its like in his worldso i could begin to understand I want to get to know him and tell him that i love him and i care, but i dont think he would understand My children are my life and theres nothing i wouldnt do for them But it hurts to think that k is suffering and theres nothing i can do or have done that helps What he must go through i can only imagine He acts in a way no-one can understandwhether its to block things out or hide away from things he doesnt understand No-one should have to go through this, i feel he is very mixed up and doesnt know how to deal with things in life most of us have no trouble with I would like to meet him one day, and not have to explain everything, or feel like im not being heard I look forward to this day, and hope that one day k will know just how much i care He may not be special to anyone else, but im always thinking of him no matter what People may say he is a little monster but hes my little monster and i wouldnt change him for the world Just thought i would share this Quote Share this post Link to post Share on other sites
moira199 Report post Posted November 11, 2006 I found this very moving. My situation is similar but different. My son is younger 2 1/2 and non verbal and although affectionate when he wants to be is not the 'open' child I would once have expected. Still, it's our life now and what else can you do except cope and look out for positive signs. I too fear that I will never really enter his world fully and it's hard to accept. Moira Quote Share this post Link to post Share on other sites
claire33 Report post Posted November 12, 2006 thanks moira its nice to know someone feels the same it is hard work, and very tiring mentally more than physically. Hopefully i can get him the help he needs but it is taking far to long, and its not helping him at all the longer he waits Quote Share this post Link to post Share on other sites
oxgirl Report post Posted November 12, 2006 Hi Moira and Claire, just wanted to send big <'> and say don't despair, your children are both very, very young and things WILL change for you all, so don't give up. Some more <'> <'> for all. ~ Mel ~ Quote Share this post Link to post Share on other sites
butterfingersbimbo Report post Posted November 12, 2006 <'> <'> <'> from me too.....things are a lot better now my daughter is ten and more able to explain or at least tell me why she is getting upset. i know i am very lucky tho! Quote Share this post Link to post Share on other sites
moira199 Report post Posted November 12, 2006 I suppose I tend to see speech as the answer to everything but I can see from other postings that it's not, it's only part of the communication process. DS does have reasonable receptive language though so I get frustrated that he won't say even a single word. Still - as I said, it's not everything, it's all about building communication and we are starting PECS this week so here's hoping. Moira Quote Share this post Link to post Share on other sites