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clintess

Tuberous Sclerosis

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you may find some helpful info on

 

http://www.cafamily.org.uk

 

http://www.tuberous-sclerosis.org

 

I am afraid I do not have any experience of it but know it is genetic and if known to run in a family can be tested prenatally.

It means swelling or enlargement and hardening of tissue and may occur in the brain skin and kidneys.

 

I hope the above web sites will help with some of your questions.

 

Mand

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