clintess Report post Posted June 17, 2007 Does anyone have any experiance off this?How do they test? How does it affect your family etc? Quote Share this post Link to post Share on other sites
summertime Report post Posted June 17, 2007 I dont have any experience of it but I found this http://www.ninds.nih.gov/disorders/tuberou...s_sclerosis.htm Quote Share this post Link to post Share on other sites
mand Report post Posted June 19, 2007 you may find some helpful info on http://www.cafamily.org.uk http://www.tuberous-sclerosis.org I am afraid I do not have any experience of it but know it is genetic and if known to run in a family can be tested prenatally. It means swelling or enlargement and hardening of tissue and may occur in the brain skin and kidneys. I hope the above web sites will help with some of your questions. Mand Quote Share this post Link to post Share on other sites
clintess Report post Posted June 20, 2007 thanks guys Quote Share this post Link to post Share on other sites