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mandyque

Prudhoe Hospital

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Mandy :clap:

 

That's absolutely brilliant. Well done you :notworthy::clap:

 

I'm so pleased for you and your dd. Must have been a finger chewing time waiting for the case to be heard after adjournement and then waiting so long for the result.

 

Yay :thumbs:

 

Flora :dance::dance:

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Mandy that's such brilliant news - it was a long time coming, but worth it in the end. You've been fighting for such a long time for this - what an inspiration to everyone to keep going! :thumbs::clap:

 

Your daughter's going to be in the best environment for her needs - what an overwhelming relief for you. :)

 

(I've amended the thread title so that everyone knows)

 

K x

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Really really pleased for you :thumbs: Hopefully you can now take your foot of the pedal and have a rest :)

 

Cat

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Thanks Kathryn, I was wondering where the 'good news' bit came from :D

 

Cat, as soon as we get a starting date I will take my foot off the gas, no idea what I'll do after that though, we get so used to fighting don't we, it's going to be difficult to finally switch off! Feels weird thinking things like 'what do I want to do?' instead of 'what does dd need next?' But it's a good weird :thumbs:

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Just waiting for them to get back to me with a starting date now, it's driving me nuts, all the summer activities are finished now the schools are back, and dd is reverting to more obsessive behaviour through boredom :rolleyes:

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Finally! I called them yesterday and she can start at the school on the 22nd. Unfortunately she can't get into residential until the middle of next month, because the tribunal took so long to make a decision, they couldn't make any arrangements for her until the rulings were made :wallbash: So, a few more frustrating weeks, but there is a tiny light, and at least she will finally be at school in a fortnight, even if she does have quite a long journey each day.

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Mandy,

 

That's great news about the school, though frustrating about the residential side (although at least it's temporary).

 

Hope everything goes well and that your daughter settles in and enjoys the school.

 

Best wishes.

 

Flora :D

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:thumbs::thumbs:

 

Yay! Great news!

 

I will take my foot off the gas, no idea what I'll do after that though, we get so used to fighting don't we, it's going to be difficult to finally switch off!

 

The words 'nail' and 'head' come to mind... take it easy on yourself 'cos it's likely once the adrenalin stops pumping you'll be feeling a bit exhausted! Perfectly normal/natural, but that doesn't make it any less bothersome!

 

Very best for the 22nd, and then for Next month and Resi... still, on the plus side you've got a whole month to sew in labels (and what's the betting you'll be up until 3.am doing it the night before! :shame: )

 

 

:D

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Labels? I'm lucky she wears clothes, not even going to go there with uniform! Fortunately they are understanding of sensory issues and one of dd's biggest issues is around clothing!

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You can't have a rudie nudie on the playground! Perhaps you can convince her to wear a raincoat 24/7! :lol:

 

ohhhhh nooooo!!!!! We've already had swimming costumes and nothing else in winter, I really couldn't cope with anything on that scale any more :tearful: I meant that she would probably wear her own choice of clothing but not uniform!

 

It feels very strange, so far I have made arrangements to socialise with friends , not used to this!

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Well, it's finally time, dd goes into residential tomorrow :tearful: I've taken some of her stuff up already and I've got one more box and bag to go with her tomorrow. She will go to school as normal in the morning, but won't be coming home :tearful: She had her last night in respite last night, we had them in tears with a thank you card and present, then she's at daycare today so I'll be doing it again at 4pm, it's a very emotional day all round, and she hasn't a clue what is going on!

 

I really go the jitters last night, her life flashed before my eyes and I imagined every terrible thing that could happen, even though I'm sure it won't! At midnight last night I was ready to call the whole thing off!

 

So anyway, wish us both luck please, I'm sure I'll be more bothered than she will about all this anyway!

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Hello Mandyque

 

Firstly I wanted to give you one of these >:D<<'>

 

I have read your thread with great interest and can see all the frustrations and tears that have happened along the way.

 

I wish your daughter a very happy time at her new school and I wish you lots of strength for tomorrow. You have fought long and hard to get her to the right place.

 

>:D<<'>

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Good luck for tomorrow Mandy.

 

I know it's not in the same league but when ds#1 left his mainstream school last year to go to his ASD unit I found the goodbyes really hard. He's settled in fine now and I wouldn't go back, it's just the sad feeling of farewell and a new stage starting.

 

At least she's already familiar with the school, will she be home in the holidays?

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>:D<<'> totally big good luck, Im going to be going throw the same soon, I know what you mean about thinking the worse sanario, but its fear, Im pleased you didnt call the whole thing off, and that tomorrow as hard it is, its going to offer her what she needs.

 

GOOD LUCK.

 

JsMum

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I'm sure we'll be fine

 

We still understand how hard this is for you, and its great that you are feeling positive, but you know were we are if you get wobbly.

 

>:D<<'>

JsMum

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DD's gone :( And not without a fight either, she was awake at 4am this morning so she was knackered when I got her up for school, so then didn't want to leave the sofa (can't blame her!) So, not only do I feel guilty as hell but she put on a nice show of I DON'T WANNA GOOOOOOOOOOOOOO for me too :rolleyes: I wonder just how much she understands sometimes.....

 

Had a rotten horrible nightmare too, where I went to visit and some of the kids were smoking, and the staff were handing them cigs. One kid stubbed his fag out on another kids arm and the worker was like 'yeah, whatever' about it, I look around and dd has gone completely so I have to go looking for her. I hate nightmares, especially when they leave you with a horrible feeling when you wake up :( I've been so sure that this is the best thing for her for so long, I know it's just last minute jitters, but ARGH I WANT MY BABY BACK! :(:tearful::crying:

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Big super duper >:D<<'> you both have done soooo well to get this far.. so now sit back and take things easy while you adjust.

 

I must admit it took me a while to actually accept the fact that my boy was now sleeping at night courtesy of melatonin.. Before that he was up and down, couldn't/wouldn't sleep. I felt like a human yoyo dealing with him and being there with him until he dozed off only for him to wake the second I snuck out... small potatoes in comparisson to you but to just sit down at 7.30 and know that the evening was all mine was a wonderful liberating feeling..

 

I hope all goes well and that you aren't finding relaxing tooo hard !! ;)

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It hit me like a ton of bricks last night, I called them and they said she'd screamed when they took her back to the unit, but once she was there she was fine. They had another carry on with her after bath time but it was nothing she wouldn't have done anyway really. It just left me feeling like I'd made the biggest mistake ever :tearful: Fortunately I texted a friend, who called me back and spoke sense to me so I went to bed a bit calmer but, oh dear! :crying:

 

I'm getting my head around things again now, I have to give this a proper chance, it was only her second night, so of course she won't be happy about her routine changing and she will need time to adjust, and for the staff to help her get settled.

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I'm getting my head around things again now, I have to give this a proper chance, it was only her second night, so of course she won't be happy about her routine changing and she will need time to adjust, and for the staff to help her get settled.

 

Everything you have said here is right and you know it. It's just not always easy to get past this point but you will.

 

Be strong >:D<<'>

 

Cat

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I'm trying, the range of emotions I'm going through is unbelieveable though. I thought I'd feel a bit down in the dumps, upset or whatever, but I've been very grumpy and angry today, don't know where that's come from. I didn't even realise until my ds said I needed to calm down :wacko:

 

Anyway, I called again this evening and she's been fine, she got into her clothes, ransacked the cupboard and layered loads and loads of clothes on but they've dealt with it and are arranging for a lockable wardrobe for her room. I did warn them last week but it all takes time to sort out.

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Crikey sounds like you are going through the whole range of emotions, bless you, you must feel exhausted. Its gonna be a transision time for you all, but still does not make things any easier. Here's hoping the morning will bring you some calm and mellow moments so that you can begin to relax.

 

You've done so well, think I would have fallen apart.

 

>:D<<'> >:D<<'> >:D<<'>

 

Clare x x x

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