jontytheartist Report post Posted June 11, 2008 I have heard that there is a national study going on(my wife saw on BBC) into Aspergers in adults.I have visted many 'psychologists' etc & have confirmed I have 'traits' of Aspergers.My question is-is this a diagnosis?,as they are reluctant to say it & they dont know if a label will help. Is anyone else having/or had these experiences & what did you do? Also does anyone know how to get involved in this national study? Regards Dave Quote Share this post Link to post Share on other sites
Mumble Report post Posted June 11, 2008 My question is-is this a diagnosis? I would assume not - whether it's enough for you is something different and whether a label will help is again personal preference. For me (I have a 'full' dx) it's been very mixed (a double-edged sword - sorry, not sure that's the right saying). Also does anyone know how to get involved in this national study? I haven't heard anything recently, but I would make a guess that it's the prevalence study setting out to find out how many adults there are in the UK with ASDs. I assume this would only include full dx, although I still haven't seen their methods - I don't know who they're going to ask to find out - my GP knows, but is that a confidentiality issue? If they go through the LA/social services I wouldn't be counted as the support I'm getting is a mix of out of area and private (but funded by NHS). Quote Share this post Link to post Share on other sites
CEJesson Report post Posted June 11, 2008 Yes I presumed also it was the prevalence study, and therefore for it to be as accurate as possible, the study would only include those who are officially diagnosed. Quote Share this post Link to post Share on other sites
Shnoing Report post Posted June 13, 2008 As far as I understood it, they want to have the 'real' numbers, that is including the un-dx'ed adults. There's a thread with a link to the group which does the study, somewhere round here ... Quote Share this post Link to post Share on other sites
Kathryn Report post Posted June 13, 2008 I think this is the thread you're looking for? K x Quote Share this post Link to post Share on other sites