Makes me want to cry for him....

[bikemad]

Yesterday was going to take ds for a bike ride but he wouldn't go cos it was too hot/light n cos bullyboy was out n about. Today me n dp took ds to the big weekend in Cardiff...ds's request he likes to go each year.....it broke my heart......he wont go near anything most 10 year old's will n likes the baby rides but is obviously huge on them....he went on the small kids like ummmm carousel swing things n his feet almost reached the floor bless but he was happy...that was til a bunch of other kids the same age went past n laughed their heads of at him so he cried his heart out n tried to be 'brave' then n go on a different ride which I knew he would hate so went on with him itms......as we get off I say 3 times 'hold the bar as you get out' he says 'ok' then leaves go n it smacks down on his head so not only did he hate the ride but had a huge egg on his head so broke down crying again...then there was another ride he wanted dp to go on but dp said 'its ok J you go' cos of the cost but then he cried cos 'its not the same if daddy dont have a ride'................this went on the rest of the time we were there.......just felt helpless n upset itms.....he is 10 but scare wise n coping with life wise he is like a 5 year old maximum itms n every ###### were he goes there's someone to laugh at him or make fun or bully....im so sick of it all tbh n feel so bad for him....just feel like bawling atm tbh.....dp cant understand why im so upset either n im like like 'doh ffs it breaks my heart'!!!!!

[Guest featherways]

Not sure there's enough words to say how sad I feel just reading this. Every child deserves respect, love, acceptance. I am so sad that there are those who have made his life so difficult for him.

Is there an autism play centre anywhere near you? I know some areas run them, and they have all sorts of fun activities the children can do that allow them to be themselves?

Large cuppa for you, I think...

[dana]

Hi,

I really feel for you and your son and I am giving you a lot of these: <'> >< <'> >< <'>

I know how you feel because I have my own 10 year old son who has similar problems which make my heart bleed too.

 

Danaxxx

[pearl]

<'> <'> <'> took me back reading this.

It does improve - not saying its easy even now seeing JP go out taking on the world, but things are much better than they used to be.

 

Like featherways says, sometimes specialist play can help. JP used to attend a SPACE centre (soft play, bubble tubes etc) once a month with a bunch of autistic kids. Parents sat around the edges talking. We went till he got bored around the age of 13. He could be himself there, & some of our happiest memories are from those play sessions.

Edited August 1, 2009 by pearl

[Enid]

Oh bikemad. <'> <'> it is soo sad. 10 is still so little. Its a shame he cant go at his own pace. My own lad is 13 and a half now and has had a huge HUGE! growth spurt, he is bigger tham me, but is still soo young, when we went to the carnival and fair last week, he went on loads of "young" rides, but he has 2 younger siblings and it looked like he was looking after them! I was dreading anyone he knew seeing us, but it didnt happen luckily. sending you hugs <'> <'> <'> <'> Enid

[bikemad]

Enid yup 10 is little n he is so young with it too if that makes sense.....just wish he could do things in his own time but he always feels he has to do 'grown up' stuff to 'not be odd or a freak'....then he gets himself even more upset cos it scares him if you know what I mean.

 

Il look into the specialist playplaces as that would suit him to a T.....know there is one somewere in Cardiff but no idea if theres any closer will do a goggle search.

[pearl]

Something else I've remembered which might encourage you ... JP was v similar to your lad. But for the last 4 years or so, he has been to Alton Towers, first with 6th form & then with cousins. The first time he was v nervous, but made himself go on things & discovered he loved it. Now, he goes along happily & looks forward to the scary rides.

 

Not much use to you now, I know, but an indication that things do change <'>

[zaman]

<'>

 

I don't know about you, but when other kids behave that way I always want to wallop them. My kids were in playscheme this week and day 1 my son tells me 3 other boys were being mean to him and calling him names, swearing as he hadn't understood the rules of the game they were playing. I hardly slept with the anxiety of it all. I took the playscheme leader aside and explained what had happened, so she read the boys the riot act. She took me aside later in the week and asked me what else she could do to support him. Do you know, I think that is the first time someone has asked me that. I didn't blub. (But I nearly did . . . ) I'm so used to being warrior mum that all it takes is an act of kindness and I come unhinged!

[bikemad]

Thanx pearl it does help...its a light at the end of the tunnel if that makes sense.

 

Zaman im the same..its so rare someone actually wants to help or support that when they do I end up crying cos its such a shock!!!! N o yes theres a few kids id gladly wallop if I were allowed too!!!!!!

 

I dont know if it is due to yesterday but today he has been like a devil child...so uncooperative and in the mood from hell all day and really destructive tho not allways on purpose if you know what I mean.....cant ever say each day is the same can you!!!!!