Jump to content
  • Announcements

    • Kris

      Depression, Mental Health and Crisis Support   06/04/2017

      Depression, Mental Health and Crisis Support   Depression and other mental health difficulties are common amongst people on the autistic spectrum and their carers.   People who are affected by general mental health difficulties are encouraged to receive and share information, support and advice with other forum members, though it is important to point out that this exchange of information is generally based on personal experience and opinions, and is not a substitute for professional medical help.   There is a list of sources of mental health support here: <a href="http://www.asd-forum.org.uk/forum/index.php?showtopic=18801" target="_blank">Mental Health Resources link</a>   People may experience a more serious crisis with their mental health and need urgent medical assistance and advice. However well intentioned, this is not an area of support that the forum can or should be attempting to offer and we would urge members who are feeling at risk of self-harm or suicide to contact either their own GP/health centre, or if out of hours contact NHS Direct on 0845 4647 or to call emergency services 999.   We want to reassure members that they have our full support in offering and seeking advice and information on general mental health issues. Members asking for information in order to help a person in their care are seeking to empower both themselves and those they represent, and we would naturally welcome any such dialogue on the forum.   However, any posts which are deemed to contain inference of personal intent to self-harm and/or suicide will be removed from the forum and that person will be contacted via the pm system with advice on where to seek appropriate help.   In addition to the post being removed, if a forum member is deemed to indicate an immediate risk to themselves, and are unable to be contacted via the pm system, the moderating team will take steps to ensure that person's safety. This may involve breaking previous confidentiality agreements and/or contacting the emergency services on that person's behalf.   Sometimes posts referring to self-harm do not indicate an immediate risk, but they may contain material which others find inappropriate or distressing. This type of post will also be removed from the public forum at the moderator's/administrator's discretion, considering the forum user base as a whole.   If any member receives a PM indicating an immediate risk and is not in a position (or does not want) to intervene, they should forward the PM to the moderating team, who will deal with the disclosure in accordance with the above guidelines.   We trust all members will appreciate the reasoning behind these guidelines, and our intention to urge any member struggling with suicidal feelings to seek and receive approproiate support from trained and experienced professional resources.   The forum guidelines have been updated to reflect the above.   Regards,   The mod/admin team

At Last

Recommended Posts


As some of you may know, I have a 15 yr old daughter who was dagnosed with A/S 5 yrs ago.

My middle daughter has a few A/S traits but copes really well, and I have never felt the need to get her assessed, my youngest daughter aged 13 however has lots of problems and has for a number of years.

Some of the problems she has cause considerable distress to her, but because she has never had a diagnosis I have been banging my head on the wall especially regarding education.


Today I have finally had the verbal report of a recent Assessment with Child Psychiatrist and Psychologist who have confirmed that DD3 does in deed have an ASD. I do not have an indication yet as to what form this has taken but It is such a relief that i know that I can now hold my head up at school and insist they take me seriously! To date they just give me 'that look' and told me that I am seeing problems that just don't exist!


So off now to request a statutory assessment.. but first I need to have a bit of a cry.... then take a deep breath....



Can I ask how many of you on here have two or three children on the spectrum?



Share this post

Link to post
Share on other sites

We have a hat-trick!


It's really weird you posting this today - we saw paediatricians this morning about DS3, who they also now believe to be on the spectrum...


Both his older brothers have autism; DS1 is 12 (Asperger's) and DS2 is 10.


The paeds are not clear yet where DS3 'is' on the spectrum - he's seven and a half - but he is exceptionally bright and clever and this, for him, masks things. There has been a bit of a question mark over him since he was little, mostly in terms of ADHD. The appointment today was for a long overdue review and because school has expressed some concerns (unusual for us to have a school that does this!!).


In the past I've often wondered if he had an ASD, rather than ADHD, but found he was so different to his two older brothers in many ways that it didn't seem to fit. Having said that, DS1 and DS2 are also extremelly different to one another, so why should I expect there to be only two models of autism, really??!!


DH and I weren't really surprised, but I do have to admit to feeling a bit funny about it as the day's gone on. My experience with DS1 is that his difficulties can also be well masked, and that this has in effect caused him a great many problems, mainly because he doesn't get the support and understanding that he requires. Currently his secondary school are dismissing his issues and saying he doesn't need his Statement... even the EP is up in arms about that. So I do wonder how things will be in the future for DS3, who is obviously very high functioning.


Feel a bit wobbly now, so sorry if this is a little incoherent, I might make more sense in a couple of days!


Annea, lots of >:D<<'> >:D< >:D<<'> >:D< >:D<<'>


Lizzie xx

Edited by BusyLizzie100

Share this post

Link to post
Share on other sites

Thanks Lizzie,


I know how you feel about the mixed emotions... it's a mixture of relief disbelief and shock with a healthy dose of satisfaction that I am not mad!


I have a feeling the diagnosis might lean more toward hugh functioning Autism, my eldest DD is very anxious, very bright and totally different from her, where as DD3 is quite destructive, aggressive, very loud, brash and soically very immature...


It's tough but I will fight for her anyway.....


My son... has various problems too but is yet to be assessed. Again he is totally different, I think he too might have high functioning autism but with ADHD but i'm trying desperately not to self diagnose him and leave it for the professionals....


I am crying laughing here though because as I was just writing that last sentence I turned to watch him and he was having the most animated conversation with no one in particular whilst laughing at his own jokes.... Isn't a colourful life we lead :)


Good luck with your own issues.



Share this post

Link to post
Share on other sites

Ive got the opposite both parents on the spectrum, my dad was a bullying nasty asperger and is now dead, my mum is a more naive asperger but shes in denial.

Share this post

Link to post
Share on other sites

Hi Lizzie :)


I'm glad your daughter has finally got a diagnosis and is on her way to getting some much needed help. I think sometimes us girls slip through the system and get labelled as having mental health issues, or no one noticing that there's a problem at all.


Both myself and my youngest brother have Aspergers. And while we have some very similar traits, we can be quite different. I think it depends as well if there are any other co-morbid conditions with the AS. My brother is just Aspergers, however I also have OCD and an anxiety disorder, so my behaviour often differs to his very much. I suppose it can differ with each individual childs personality as well.


Good luck to you all!! >:D<<'>

Share this post

Link to post
Share on other sites

Overall, it sounds like good news. (Getting the diagnosis, I mean.)


You asked about multiple diagnoses in a family. My wife (diagnosed with Asperger's a year ago) and I have three sons. The oldest (11) and the youngest (4) have been diagnosed with ASD. (And the oldest is also diagnosed ADHD and Tourette's.)


However, the middle son (6) is as neurotypical as you can get. Which has led to an interesting phenomenon: He has helped his younger brother learn how to socialise. I've watched them in action. The six year old will say, "Okay, let's pretend that this car is the Batmobile. Now we'll pretend that Batman is inside, and he's driving after the Joker. Now make your car go 'vroom! vroom!' like this," etc. He has actually taught his younger brother how to engage in creative play!


The 11 year old, of course, didn't have anyone above him to do that, which is unfortunate. But he has watched his two younger brothers playing and wrestling and has adapted certain positive social behaviours based on his observations. The point is that siblings, ASD or not, can be a valuable rescource for each other. Each will have strengths the others do not. If we can find ways to get them to model each other's best behaviours, we may be able to help them to help each other.


Just a nibble for thought!


-- Malcolm

Share this post

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now