Koklasz Report post Posted January 14, 2011 Hello, I'm so happy to find this forum because I'm stressed and really tired now. We have two kids, our little son (he'll be six in February) has asperger (maybe). He was always special, we know something is different with him. When he was two I reported my feelings to the Health Visitor and our GP, but they said: this is normal. But wasn't. There was sooo many signs. When he was 4,5 he showed a really hard tick (unstoppable). We went to the neurologist, she made an EEG in sleep (to excludes the possibility of epilepsy). In April 2010, we took him to a psychologist (in my homeland), that was just a "brainstorming" because we were a bit confused, and she suggested to us a book (Attwood - Asperger S.). Now we are in the system here. First, we went to a special unit, but he was too old (more then five) to get a diagosis (when the whole thing finished)... Since then we had a few meetings in the CAMHS, but nothing happened. I'm soo tired... more then four years we tried so hard to help him... but nobody helps us (except the school - the Primary School and the teachers are amazing!) Sorry, this wasn't a normal and happy greetings... Quote Share this post Link to post Share on other sites
flappyfish Report post Posted January 14, 2011 Hello and welcome. Sorry to hear you have hit so many dead ends. It needn't be like that. It's great that you are in a supportive school. I am a primary school teacher, and there are a number of things you and they together might do (although you may have already). Obviously I don't know your child and how he is functioning in school (is he on school action or school action plus for example, does he get support?), and in a way, you are in a stronger position to get help if he isn't functioning well, but still... You could ask the school to get either an educational psychologist, a member of your Local Authority's autism support team (if you have one - not all do) or the school doctor to see your child. You could request that you get a chance to speak to one of these to express your concerns. You could also approach your child's GP and express your concerns and ask if you can be referred to a diagnostician. As I said, I don't know your child's details, but if you were to give me some specifics on what his particular needs are, I might be able to give sou some key phrases to use when expressing your concerns. Hope this is useful. Quote Share this post Link to post Share on other sites
Koklasz Report post Posted January 14, 2011 Oh, Thank You Flappyfish, You are really nice and helpful! He's been in the School Plus program, and we've met a "hundreds" of specialist, educational psychologists from the Council, SENCO, special needs assistants, pediatricians, neurologist. And we are now waiting for the new appointment (CAMHS psychiatrist). But I don't see the light at the end of the tunnel... Maybe you understand me here... Quote Share this post Link to post Share on other sites
flappyfish Report post Posted January 14, 2011 Hope you get somewhere with the CAMHS psych. We got diagnosis through CAMHS inderectly in the end after much, much faffing about. I share your frustration with the tunnel, but try to focus on the light! Remember, although diagnosis helps, it's wht's going on in the here and now that you need to be dealing with. I know it's hard, but try not to let your child's autism define you. Quote Share this post Link to post Share on other sites
Koklasz Report post Posted January 14, 2011 Ooohh 'much, much faffing' Thanks for all your advice and words! I'm a foreigner here, I've just met the professionals not parents. I think this forum is a good sign in our life. Quote Share this post Link to post Share on other sites
