getting help

[tracey]

Hi All

Do any of you get any help at home with your Kids

ie even if its just someone trained in dealing with kids with an ASD to give advice.

I am in touch with a lady from camhs(first person I saw when I took my daughter

along 2.5 years ago) it took over 2 years to get dx(ASD)

Although I feel she is now helping with school issues I do not feel she knows

enough about Autism to issue advice

ie Last week my daughter went for me in a rage, trashed the house, Kicked her door in plus lots more (she is 13) when i mentioned this to her I was told this is a tantrum nothing to do with Autism(I know Ive mentioned this in previous thread)

Also she said "I cannot wave a magic wand"

Only advice was couldnt my parents take over, well the answer to that is no.

needless to say after speaking to her I felt like s...

Just wondered if anyone gets to deal with someone who actually helps.

Love T

[mandyque]

Do you have any voluntary services in your area? Locally we have Teesside Special Friends who go out to peoples homes and help in whatever way they can, I think most commonly they are there as a distraction for the special needs child so that their parents can do something else e.g. they may take the child to the park while mum and dad go shopping or do housework or just have a well earned bath in peace!

 

I think the best place to ask would be your local Social Services children with disabilities dept, you could also ask about respite services if you don't currently have them.

[Emum]

We have just started getting some respite from local branch of Barnardo's, which is fantastic as we don't have any relatives living close by to help. My experience of Social Services was that they did not want to know, and did not give us any information about local services, but we did get some helpful information about what was available locally from the Carers Association. Otherwise its been a case of asking around for info - other parents with children with special needs (not necessarily autism), school, health visitor, internet searches. I'm still left with the nagging suspicion that there is probably more out there than I know about, but we get by with what we've got

[hev]

in my experience there is not a lot of help out there,might depend what area you live in though i suppose,i live in the south east,cahms havent helped much for me but then other people have had a lot of help from them.social services not interested,if it wasent for my mum i think i would have had a breakdown long ago

[Kathryn]

Hi Tracey,

 

It sounds as though we have been involved with the same Camhs.

 

They also had no autism expertise and the psychotherapist my daughter and I saw made helpful comments like "you mustn't let it take over your life" and insisted there must be a relative who could help - (there wasn't). "You must MAKE them help" was her response. I stopped going.

 

Now my daughter is seeing a psychiatrist who is experienced in AS, unfortunately not very often as she is really busy, and a social worker drops in occasionally although there has been nothing in the way of ongoing support from SS. I have made my own arrangement with a very dear friend who comes in on two mornings a week and looks after L while I go out to work to save my sanity! This is my only respite as my daughter is not at school.

 

This is one of the main reason we are pushing for a specialist residential school - provision in our area is virtually non existent - nobody is able to provide the expertise and the consistency of support that we need and medication is the only real help we have been offered. It's far from ideal but without it we couldn't have managed.

 

K

Edited July 12, 2005 by Kathryn

[tracey]

Thanks for your replies

suppose I just didnt want to miss out on anything (help wise)

but by the sounds of it Im not everyone seems to be in the same position

(maybe Im just taking it hard)

Am waiting for some leaflets to come through frem NAS which I phoned about

reg help so who knows.

Thanks again T

[loulou]

Hi Tracey,

 

Have you tried Crossroads? They are a charity who provide help for families. My Auntie works for them and she helps two families with SEN children. One of them she takes out and the other she minds whilst the mother goes shopping. The staff are all trained and well police-checked.

 

They have a web site (which i can't remember). I'm going to give them a try because SS are not offering me any support.

 

Loulou x

[lil_me]

NAS do a 'befriending service' in some areas but not all, they don't do County Durham where I live. The only support I get is my brother in law occasionally babysits. Apart from that, nothing. I have considered putting in for the social services direct payments but had too much going on lately to deal with something else.

 

 

www.crossroads.org.uk - crossroads, who don't have a group in my area either unfortunately

Edited July 13, 2005 by lil_me