smileyK Report post Posted March 13, 2013 Lady @ MIND - listening worker who got for 13 weeks until funding discovered etc! Told me today to seek any other avenues (support services) she mentioned local team (ADHD 'n' AS team) work within local hospital not main one! As still waiting for intial assessment report from adult MHT could be waiting for long time! Not surprised if ever gets done! Don't know what outcome was of that assessment rang to find out to find haven't been put together or wrote up waiting for information from social worker @ adult MHT! About right for them! And nurse I rang spoke to just listed autism specific websites (one not even local website one NAS website which generalised!) Not helpful useful feel just being palmed off once again left my own devices even after chasing them up 'on my own' so am grateful to have MIND now on my side chasing around to find out how much personal budget funding outstanding for me! So far haven't got back to MIND - so frustrating! Be waiting forever! It be MIND chasing up adult MHT not other way round they won't get in touch with MIND so another option that may not be closed to me due to lack of funding don't suit my needs etc is where been referred before to local hosp team but they referred me long term to NAS but now they 'case closed' on me I have been told I can go back reapply again to their team through GP so looks like going back to docs AGAIN! Surprised I'm FED UP! Drained -had enough! Even after 'crisis situation' feel isolated alone scared incase crops up again what next for me?! Hoping the referral back goes "smooth" fingers X we can but hope! It like every service pass the parcel/buck and the blame/excuses to elsewhere! Can't carry on in this state constantly, drags you down makes feel not worthy of any support out there like you don't need or deserve it what 'outside' don't seem 'get' this is 'our reality' all time -no break end of! So desperate to be listened to for once get needs met my emotional /mental health needs 'balanced' 'stable' isn't easy at all! So trying chase up make an effort for myself not even that works properly doors in my face constantly doesn't help at all! ;( am I right to seek this level of support /service?! Feel cheeky/rude for asking! But need someone something going mad crazy being spun in circles endlessdly constantly! Isn't doing me any 'good' hearing what the services 'want' me too! XKLX Quote Share this post Link to post Share on other sites
trekster Report post Posted March 13, 2013 Sounds like this is a more specialised team than before so hope it helps. Quote Share this post Link to post Share on other sites
smileyK Report post Posted March 13, 2013 (edited) Feels I'm chasing 'thin air' right now ended up spending most day in streaming tears... All building again not good sign! That when starts going 'wrong' 'bad' for me! only thing got 'gut feeling' team short term basis onto 'other services' out there refer you too like already have been (NAS)! Feel like I'm doomed! I feel so 'trashy'it's all broken promises and false ones made which hurts and destroys me quite literally causes 'emotional pain/distress' people wonder how I reach the 'desperate stage' of -crisis point let me think - as crisis team at hosp dicharge me back onto adult MHT which again leave me 'hanging out there -searching aimlessly for what I don't know?! Not kept in the loop even though request beg ask none of it is effectively I'm only one person! Think forget about me ,my case I'm at bottom of pile somewhere collecting dust even though jog memory still 'pushed' a side! XKLX I saw well -being worker @ docs this morning she had same thought/idea as me agreeing that one avenues/direction to go down is try ADHD 'n' AS team and so two other professionals that agree that re-referring to ADHD 'n' AS team is best action forward to take positive step! As less generalised more specialised in managing AS on 'different level'! I've booked docs appointment today for next wednesday afternoon to ask doc to re-refer back to ADHD 'n' AS team, fingers crossed he agrees too hope so! As believe this plan of action as adult MHT are not doing 'anything'! Well -being worker said she would write notes on computer to doc about her agreeing way forward! XKLX Edited March 20, 2013 by trekster Quote Share this post Link to post Share on other sites
JeanneA Report post Posted March 19, 2013 Sounds positive smiley. Hope all goes well when you see the doctor next week. Quote Share this post Link to post Share on other sites
smileyK Report post Posted March 19, 2013 (edited) Now NAS can't cater for my level of needs now trying another direction/avenue of ADHD 'n' AS team! Just really praying their team can assist my AS and mental health needs long term instead of short term like last time! As NAS no longer an option! Ironic situation but social worker who dealing with my case short term basis at adult MHT had miss call from her and voicemail saying she'll ring me sometime tomorrow! - about time know they said take a while but this long honestly! Hoping she sticks to her word and rings tomorrow! XKLX Edited March 20, 2013 by trekster Quote Share this post Link to post Share on other sites
