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      Depression, Mental Health and Crisis Support   06/04/2017

      Depression, Mental Health and Crisis Support   Depression and other mental health difficulties are common amongst people on the autistic spectrum and their carers.   People who are affected by general mental health difficulties are encouraged to receive and share information, support and advice with other forum members, though it is important to point out that this exchange of information is generally based on personal experience and opinions, and is not a substitute for professional medical help.   There is a list of sources of mental health support here: <a href="http://www.asd-forum.org.uk/forum/index.php?showtopic=18801" target="_blank">Mental Health Resources link</a>   People may experience a more serious crisis with their mental health and need urgent medical assistance and advice. However well intentioned, this is not an area of support that the forum can or should be attempting to offer and we would urge members who are feeling at risk of self-harm or suicide to contact either their own GP/health centre, or if out of hours contact NHS Direct on 0845 4647 or to call emergency services 999.   We want to reassure members that they have our full support in offering and seeking advice and information on general mental health issues. Members asking for information in order to help a person in their care are seeking to empower both themselves and those they represent, and we would naturally welcome any such dialogue on the forum.   However, any posts which are deemed to contain inference of personal intent to self-harm and/or suicide will be removed from the forum and that person will be contacted via the pm system with advice on where to seek appropriate help.   In addition to the post being removed, if a forum member is deemed to indicate an immediate risk to themselves, and are unable to be contacted via the pm system, the moderating team will take steps to ensure that person's safety. This may involve breaking previous confidentiality agreements and/or contacting the emergency services on that person's behalf.   Sometimes posts referring to self-harm do not indicate an immediate risk, but they may contain material which others find inappropriate or distressing. This type of post will also be removed from the public forum at the moderator's/administrator's discretion, considering the forum user base as a whole.   If any member receives a PM indicating an immediate risk and is not in a position (or does not want) to intervene, they should forward the PM to the moderating team, who will deal with the disclosure in accordance with the above guidelines.   We trust all members will appreciate the reasoning behind these guidelines, and our intention to urge any member struggling with suicidal feelings to seek and receive approproiate support from trained and experienced professional resources.   The forum guidelines have been updated to reflect the above.   Regards,   The mod/admin team
Tomar

Pushing for Diagnosis

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Tomar   

Looking through post on many topics, there seems to be far too many of us struggling to get a diagnosis.

 

Is there a petition or pressure group or something like that to advance the cause?

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Livelife   

Hello Tomar

 

I haven't heard of any pressure group relevant to what your have posted. It depends on the area you live in I think and the opinion of your GP and how much they consider you need the assessment. This is effected by how much funding they have its not always about need unfortunately. You should keep ringing them if you have a social worker keep asking them or contact your health authority if your having trouble getting the referral even your MP. There isn't anything you can do except keep contacting them it's the only option you have.

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Tomar   

I was a bit hasty when I clicked the "post" button.

 

I feel a bit guilty that I got a quick & easy diagnosis, the hardest part was actually getting an appointment with the GP, after that things whizzed along pretty quickly. I would like to do anything I can to help others who are struggling to get things moving.

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Livelife   

I don't think you need to feel guilty about receiving the appropriate treatment and diagnosis. It's honourable that your concerned about others in a similar situation and you could write to your MP or local health authority about your concerns and create your own support group if you felt able.

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It's not necessarily the length of the wait for a diagnosis, although that's bad enough. It's the total lack of communication during the wait. No updates on how much longer it will be, and no one checking how you're doing or if you need any help while you're waiting. Someone chased them up on my behalf weeks ago, but I've heard absolutely nothing. Even if I hadn't had any mental health problems at the beginning of the wait, I'll have some by the time it eventually happens!

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Livelife   

It's not necessarily the length of the wait for a diagnosis, although that's bad enough. It's the total lack of communication during the wait. No updates on how much longer it will be, and no one checking how you're doing or if you need any help while you're waiting. Someone chased them up on my behalf weeks ago, but I've heard absolutely nothing. Even if I hadn't had any mental health problems at the beginning of the wait, I'll have some by the time it eventually happens!

That's the same as any service these days it's being slowly decimated so eventually it will not be fit for purpose. They say be reasonable but that means waiting endlessly like you say with no communication on progress.

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