How do you know when to accept and give up

[Klou]

Hi

 

I am contemplating the fact DS might not be dx for ages if ever. I know I only have one report back (see thread in gen disc about report reading). But the SALT is saying is speech and language is fine though there are concerns, not enough to dx social communication disorder.

 

I just want to know how I will know that the professionals are right and I am wrong and that there is nothing wrong with him other than a 'strong personality'. The people and messages on here are inspiring but to a certain extent because of the problems everyone else has had getting a dx I am inclined to think that it is me against the world of medical professionals.

 

Where do I draw the line? How do I know I am right to carry on searching for a definite answer?

 

It seems my family is so often worn out and frustrated with dealing with everyday life. Our weekends frequently result in me being in tears and DH having to walk away because DS is hard to cope with. I know NT children do this to their parents too. But I would like better insight into what the difference might be.

[annie]

Hi Klou,

 

I would wait and see what the other reports say. Remember that you know your child better than anyone, if everything points to ASD, and the reports do not come up with a diagnosis, I would ask you GP for a referral to a specialist with ASD experience.

 

Apparently it is uncertain whether his approach to task is an unusual coping/processing strategy or him playing a game! 

 

I would like to think that a professional that is doing an assessment would know the difference, but maybe not if they are not clued up on ASD's.

 

Our family life used to be awful. Once we had the diagnosis, things slowly settled down. A diagnosis gave us an explaination for our son's behaviours, which in turn helped us manage them differently. We still have a stressy moment every now and again, but they are fewer and further between.

 

Hope this helps.

 

Annie

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[Klou]

Hi Annie

 

Love the avatar

 

Thanks for your advice. I keep telling people (OT, SALT, Health Visitor etc) that the reason we are doing this is because we want to manage the boy better based on the fact that what we have been doing hasn't been working. He doesn't transfer to new situations so he doesn't learn from his mistakes.

 

I am reassured that the diagnosis helped you and your family. I know it doesn't change the actual child but it does put it into perspective.

 

Good idea about the GP referral though. And I wouldn't look a complete idiot doing this because when I asked for the first referral I didn't directly mention ASD. So I could be more specifc although the doctor we are referred to and haven't seen yet is a leading expert in ASD and ADHD etc. The thing I am really worried about is if because of the reports he decides not to see us. I don't know whether this happens or not but I have heard he looks at the reports first to get an overview.

 

for him to at least see us