I've found it, there is a name

[Viper]

Treatment Guidelines for Primary Nonretentive Encopresis and Stool Toileting Refusal

 

Nonretentive encopresis refers to inappropriate soiling without evidence of fecal constipation and retention. This form of encopresis accounts for up to 20 percent of all cases. Characteristics include soiling accompanied by daily bowel movements that are normal in size and consistency. An organic cause for nonretentive encopresis is rarely identified. The medical assessment is usually normal, and signs of constipation are noticeably absent. A full developmental and behavioral assessment should be made to establish that the child is ready for intervention to correct encopresis and to identify any barriers to success, particularly disruptive behavior problems. Successful interventions depend on the presence of soft, comfortable bowel movements and addressing toilet refusal behavior.

 

Encopresis affects 1 to 3 percent of children, with higher rates in boys than in girls

 

I found the above article on the web. It describes Bens problems to a tee. Now I just have to find a way of useing the information to help him.

The link below is for the whole article if anyone wants to read it.

http://www.aafp.org/afp/990415ap/2171.html

[Guest flutter]

well done for finding it <'> must make u feel betta u found something

i will look properly at it laters

work soon

x

[openyoureyes]

HI again Viper

well done in finding the info, however, again it does say about soft comfortable stools, why don;t you

try getting a prescriptin for Laxoberyl as this does make the stools a lot softer and helps the bowel.

I know if your like me I don;'t really like giving my kids medication but in this instance its certainly helped Tom along. Hopefully soon he can stop taking it. He only has half a teaspoon each day so its very minimal

but he no longer has to push which he was very scared of.

[curra]

Hi Viper,

It seems that many ASD children are late to be potty trained and sometimes encopresis can last into teenage and even adulthood.

 

I've found this link that says that encopresis is related to ASD (pages 9-10). Maybe somebody else can post a better link or shed mlre light into this.

 

http://213.253.134.7/fulton/pdf/1843122669.pdf

 

My son has had the same problem ever since he was a toddler. His encopresis has been treated as emotional/behavioural or as mere constipation without any success because these treatments did not take into consideration that he also has AS. In ASD children the focus has to be IMO to help them overcome their anxiety and to recognise the feeling of urge in a bowel movement. When my son is concentrated on a game he doesn't feel when he leaks his pants because his attention is somewhere else and his sentitivity is lower than NT kids. This also happens to him sometimes at night during sleep.

Since my son likes money, he has learned to pay more attention to his bowel when I started to give him a coin for everyday that he didn''t soil his pants. He bought himself watercolours (his choice), and he was thrilled - apart from the reward of being clean. He still has some accidents but only rarely.

Hope you can find a way to help Ben.

<'>

 

Curra

[DaisyProudfoot]

Viper,

 

If you know a name for it and are pretty positive that's what he's got then take it to the GP and tell him that is your concern. That your son has this particular medical problem and desperately needs treatment.

 

GP's love well informed parents whatever you think to the contrary!

 

Good luck

[Guest flutter]

found this still looking

http://www.healthcare.uiowa.edu/cdd/patien...presisguide.asp

 

ok this is not in u area i think but maybe a fone call to them to see if they can help

http://www.kingston.gov.uk/browse/health/c...services-yb.htm

look a bit down page and they do a clinin for both enurisis and encopresis

other stuff i find says u can be seen at school nurse clinics, and u need to see a doctor first,

so i think u should go to gp, and then push for furthar referal

<'> <'>

Edited May 11, 2006 by flutter

[Viper]

Thanks for that Flutter. I'll have a look.

[DaisyProudfoot]

Viper,

 

Let us know how you get on with this one. We struggled for years to get Martin to poo on the loo, I seem to remember it being a very emotional time for us but we got there in the end. He now poos once a week and blocks up the toilet good and proper!

[helen1970]

myson does seem to fit the profile for this, interesting article. he is a dairy free vegetarian (virtually vegan) due to lactose intolerance from birth. culd probably eat a bit more fruit, but compared to other asd's i would say diet is good. constantly have to encourage him to drink though. have tried everything to get him o control his bowels. star charts, trowling on the praise, medication- senna,lactulose, movical and now doccuslate nothing has heped. I can get him to sit on toilet and 20 mins later he has had an accident! he is nearly 8 now and accidents happen at least daily and on a bad day 5 times so wuld welcome any suggestions as its really hard to stay positive when ther are so many other 'things' going on as well. helen

[Karen A]

myson does seem to fit the profile for this, interesting article. he is a dairy free vegetarian (virtually vegan) due to lactose intolerance from birth. culd probably eat a bit more fruit, but compared to other asd's i would say diet is good. constantly have to encourage him to drink though. have tried everything to get him o control his bowels. star charts, trowling on the praise, medication- senna,lactulose, movical and now doccuslate nothing has heped. I can get him to sit on toilet and 20 mins later he has had an accident! he is nearly 8 now and accidents happen at least daily and on a bad day 5 times so wuld welcome any suggestions as its really hard to stay positive when ther are so many other 'things' going on as well. helen

 

Hi Helen.Soiling is very wearing.I think it is difficult to stay positive even when there are not other things going on. <'>

Have you had any support or investigations via CAMHS,paediatrician or continence adviser or has medication just been prescribed by your GP ? Karen.

 

[helen1970]

Hi Helen.Soiling is very wearing.I think it is difficult to stay positive even when there are not other things going on. <'>

Have you had any support or investigations via CAMHS,paediatrician or continence adviser or has medication just been prescribed by your GP ? Karen.

 

thanks for reply, my son has seen continence advisor, but they couldn't suggest anything, ive also had contact with 'eric' who were very nice and gave a few things to try but to no avail, has also seen paediatrician twice, who gave him basic examination and said it was behavioural, but offered no advice, his gp has now referred him to another paediatrician in another hospital who is a bit more specialist so fingers crossed. i only joined the forum last week so am still picking up on the 'jargon', what is CAMHS? thanks helen