rainbow queen Report post Posted May 15, 2006 just letting you know where im up to -another appointment tomorrow with camhs /autism salt. son not going to it. wondering what if any conclusion is going be made. i will let folk know of outcome . Quote Share this post Link to post Share on other sites
cmuir Report post Posted May 15, 2006 Hi Best of luck ? hope you hear what you're hoping to hear if that makes any sense. In my case, my son is 4.5 and I very much felt like we were being passed from pillar to post. Cut a long story short, one particular consultants name kept cropping up again and again as the person to see, however she had been off sick for months due to a serious injury. I kept phoning her secretary every couple of weeks to see if there was any sign of her returning. Hey presto she phoned me one Friday and arranged an ADOS assessment on the Tuesday. Had to wait 10 agonising days for the results, but I got a diagnosis for my son. That was exactly what I'd been praying for! So many specialists/people kept telling me that my son didn't need a diagnosis to get help. Boy, they were so wrong! Inbetween snibbling (bit of an emotional rollercoaster being given the news ? relief, sadness, etc) I asked what happens now to be told that my son would get help with X, Y and Z by various specialists. Best of luck. Caroline. Quote Share this post Link to post Share on other sites
Bagpuss Report post Posted May 15, 2006 best of luck and keep us posted. Quote Share this post Link to post Share on other sites
Guest flutter Report post Posted May 16, 2006 thinkin of u <'> Quote Share this post Link to post Share on other sites
CarerQuie Report post Posted May 16, 2006 Hope that you get some answers.Please let us know.xx Quote Share this post Link to post Share on other sites
Flora Report post Posted May 16, 2006 Hope you get some proper answers. Let us know how you get on, will look out for your post Lauren x Quote Share this post Link to post Share on other sites
rainbow queen Report post Posted May 16, 2006 just letting you know -all is going well and certainly am being listened to now.set a date for another ados test-my son had one before but he was very young then. ive been asked to cam corder his tics/movements [and im going do his meltdowns], so going to do that. so all is well and moving along[with big thank you to this forum for helping me get further along the road <'> ] thanks for replys take care everyone xxx Quote Share this post Link to post Share on other sites
Bagpuss Report post Posted May 16, 2006 Good to hear it went well Quote Share this post Link to post Share on other sites
Suze Report post Posted May 16, 2006 hi marie, it sounds really good , things seemed to have changed at the clinic since my son was dx.It goes through the DATA team now which means more proffessionals get involved and discuss the dx. When my ds was dx it was just the physch who saw him and diagnosed, it seems to have changed now.Come to the next meeting in june we,ll help if you need support , take care suzex.......... Quote Share this post Link to post Share on other sites