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    • Kris

      Depression, Mental Health and Crisis Support

      <b>Depression, Mental Health and Crisis Support   </b>Depression and other mental health difficulties are common amongst people on the autistic spectrum and their carers.   People who are affected by general mental health difficulties are encouraged to receive and share information, support and advice with other forum members, though it is important to point out that this exchange of information is generally based on personal experience and opinions, and is not a substitute for professional medical help.   <b>There is a list of sources of mental health support here: <a href="http://www.asd-forum.org.uk/forum/index.php?showtopic=18801" target="_blank">Mental Health Resources link</a></b>   People may experience a more serious crisis with their mental health and need urgent medical assistance and advice. However well intentioned, this is not an area of support that the forum can or should be attempting to offer and we would urge members who are feeling at risk of self-harm or suicide to contact either their own GP/health centre, or if out of hours contact NHS Direct on 0845 4647 or to call emergency services 999.   We want to reassure members that they have our full support in offering and seeking advice and information on general mental health issues. Members asking for information in order to help a person in their care are seeking to empower both themselves and those they represent, and we would naturally welcome any such dialogue on the forum.   <b>However, any posts which are deemed to contain inference of personal intent to self-harm and/or suicide will be removed from the forum and that person will be contacted via the pm system with advice on where to seek appropriate help.</b>   In addition to the post being removed, if a forum member is deemed to indicate an immediate risk to themselves, and are unable to be contacted via the pm system, the moderating team will take steps to ensure that person's safety. This may involve breaking previous confidentiality agreements and/or contacting the emergency services on that person's behalf.   Sometimes posts referring to self-harm do not indicate an immediate risk, but they may contain material which others find inappropriate or distressing. This type of post will also be removed from the public forum at the moderator's/administrator's discretion, considering the forum user base as a whole.   If any member receives a PM indicating an immediate risk and is not in a position (or does not want) to intervene, they should forward the PM to the moderating team, who will deal with the disclosure in accordance with the above guidelines.   We trust all members will appreciate the reasoning behind these guidelines, and our intention to urge any member struggling with suicidal feelings to seek and receive approproiate support from trained and experienced professional resources.   The forum guidelines have been updated to reflect the above.   regards, <b> The mod/admin team</b>
    • Lufty

      Forum Software Upgrade   04/17/2017

      Dear All The Forum Software has just been upgraded to the latest version which is a major release which makes some major changes to the way the forum looks, feels and operates. Please accept my apologies for the lack of notice however it was essential that this upgrade happened immediately due to some major security issues with the previous software. Kind regards   Lufty

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  1. Yesterday
  2. Weight of mind realy is saves me appealing too tired to fight but woulda done
  3. Hi everyone, My son will be 16 next month. To cut a long story short we had a meeting back in February at which his consultant Phyciatrist recommended a 52 week residential placement at a residential school due to his anxiety levels regarding transitions. We have been through the usual channels of behaviour support through the council 5 times and it is felt that the behaviours displayed are due to the developmental disability rather than anything that could be altered through specific behaviour programmes by myself. He has little quality of life at moment, has an adittional diagnosis of deterioration of autism/catatonia and is on rispiradone. He is currently attending a generic special school with respite twice a week. The problem I am having is that the SEN department are refusing to follow legislation regarding consulting my preferred choice of school (Wilsic Hall) but on the same token are not even communicating with me as to what other placement they have in mind. There is no placement within our authority that can meet his needs. The social worker keeps on cancelling appointments. Has anybody been in a similar situatuation and have you paid for a solicitior ? I have quoted legislation to the council ie Code of practice but I am not getting any response. Ideally we wanted him to go to the residential school in September. Any ideas or experiences would be greatly appreciated. Nikki X
  4. Last week
  5. Really good news :-}
  6. It appears that she was working at the Institute of Psychiatry, Maudsley Hospital, London. In 1991 she founded the Centre for Social and Communication Disorders in Bromley along with Judith Gould under the auspices of the NAS. This was the first centre in Britain to provide a complete diagnostic, assessment, and advice service for people with social and communication disorders. I'm trying to find out if the Maudsley Hospital was the only place in Britain that could diagnose a person with AS before 1991. Lorna Wing published the book Autistic Children: A Guide for Parents and Professionals in 1985. I'm not sure how popular this book was with child and educational psychologists but there is no mention of AS nor any reference to the paper about AS she published in 1981. She published two other papers about AS in the 1980s: Identical triplets with Asperger's syndrome. E. Burgoine and L. Wing. The British Journal of Psychiatry, Volume 143, Issue 3, September 1983, pp261-265. Clarification on Asperger's syndrome. Lorna Wing. Journal of Autism and Developmental Disorders, Volume 16, Issue 4, December 1986, pp515-518. I haven't got round to looking at them yet.
  7. Update son was awarded pip didnt even come out to see him enhanced daily liveing basic mobility i worried over nothing the physcolgist report and diagnosis was all that was required
  8. Common knowledge amongst people who work in big charities, yes. Common knowledge amongst the average Joe, no. A few years ago there was a website set up to expose the fact that many big charities were heavily government funded and therefore quangos rather than charities in a more traditional sense. Legally, yes. Technically, this is questionable and debatable. My verdict on the NAS is that (regardless of where the funding comes from) they provide education and care services for people with classical autism to the best of their ability but services for people with AS and HFA are tacked on like an afterthought and such people receive crumbs in comparison. Part of the problem is money because the money to provide services for people with AS and HFA almost entires comes from voluntary donations rather than the government, but the other part is a lack of will and desire amongst the senior officials to provide services for such people. This gets back to the original question whether the NAS should get out of AS and HFA altogether. The NAS probably has the expertise in being able to acquire public money but I can't see them as any better than hundreds of other charities when it comes to fundraising from voluntary donations. Considering that next to no public money is available for people with AS and HFA then fundraising from voluntary donations is the only way to go. The proposed charity for AS and HFA should instead look towards other successful charities which are almost exclusively funded from voluntary donations for advice and inspiration. No mention of the paper about AS published in 1981 by Lorna Wing. It mentions Chris Gillberg's AS criteria from 1989 but no indication whether the NAS acknowledged it that year. DSM 4 recognises AS in 1994 but no indication whether the NAS openly stated that they now provide services for people with AS that year. Also no mention of the Centre for Social and Communication Disorders set up in Bromley in 1991 by Lorna Wing. I'm trying to find out if the Maudsley hospital was the only place in Britain that could diagnose a person with AS before 1991.
  9. Being charitable as a person and being a charity are separate issues as individuals are able to choose whichever way and to whichever extent they wish to be charitable, whereas a charity can only provide for that which they are specifically set up to do. The concept of government funded charities as being government service providers is common knowledge for those who work in the organizational structures of charities - whilst unsurprisingly many people have little or even no comprehension of how charities work beyond collecting or giving donations. As for the charity or quango business - a charity does not stop being a charity on account of having become a quango, and there are thousands of charities operating specifically as they do on account of being funded by the government. The strings attached supposition regarding how government funding is spent is a contractual matter based purely upon how the charity is actually set up to operate - which for the N.A.S. is: 1.) Providing educational establishments for children with autism. 2.) Providing residential services for those children when they leave those schools. 3.) Providing an information and advice service. Wanting more than this is like going to one service provider when another is required. With the information provision of the N.A.S. it provides exactly what it has been set up to do, and being that you favor other websites it is not as if the N.A.S. are going to complain considering how overwhelmed they are with people they 'can' help, and how much more overwhelmed they are with people they 'can't' help. The N.A.S. is quite literally being dumped on regarding the incapacity of the N.H.S. to provide adequate or even any services for people with A.S.D.. The N.H.S. has to refer patients somewhere else before those patients realize there is nothing freely available in terms of any support - being that N.H.S. staff are themselves already being insanely overwhelmed by the people they 'can' help, and even more insanely overwhelmed by those who they 'can't' help. When it comes to the possible A.S. and H.F.A. charity it would not 'have' to integrate with the N.A.S., yet as a charity that it is long established, well respected and knows how to hold its ground in terms of achieve funding requirements - it could be of major assistance to the proposed charity for providing adult practical support to compensate for the N.A.S. in terms of only being able to provide informative support. The reason this might be worthwhile is that the N.A.S. is set up to do as it does, and changing this would involve a massive overhaul of and additions to the entire organization - as would be extremely disruptive to their service provision. Your question as to which year A.S. was publicized by the N.A.S., depending on how much research you wish to do, can be answered to some extent at: http://www.autism.org.uk/timeline
  10. Everyone is invited to visit Autscape's Facebook page: https://www.facebook.com/autscape.org/
  11. ferret

    This has been done for other topics. It sounds like a good idea. One such facility for creating this online is as a miniwiki (as in miniature wikipedia site). I probably wouldn't have time to contribute to it, but I support the idea. A possible drawback of something that could be edited by lots of people is that if there is a difference if opinion on wording or the whole definition that could cause difficulties. On the other hand, you needn't set it up in Wikipedia style. It could be a website and if people want to add to it then they could submit something for review before it's added to the site.
  12. ferret

    i'm sticking this topic here in this forum so as not to clog up any other. reason: because this might merely be one of what i call my midnight madness thoughts and by morning what seemed like a brilliant flash of inspiration turns into some horror that resembles the previous nights leftovers and ultimately gets consigned to the bin of lost causes. so here we go: i have been lurking about and around, as ferret's are want to do, and sometimes frequent NAS answering queries and questions over there etc etc. it struck me that i seem to be answering the same questions over and over again; the same topics keep coming up. it's getting a little repetitive, which is not a problem in itself, but it has highlighted either a) that people generally don't know how to phrase a question to google and do research; and b)) information about ASDs and all that entails being autistic is mostly i) conflated either by mis-information or poor diagnostics from the medical profession and academia/academics in the field ii) produced by NTs also: someone on NAS raised the issue of where to get to advice etc. as there seems to be a bit of gap when it comes to how to get the right information if a) one is newly diagnosed; b)) an adult having being diagnosed, as this does not appear to be on the map/radar - i concur here as my personal journey has been something like that of gandalf in the archives of minas tirith... but i digress. so: your thoughts please on the viability of creating/compiling a dictionary of autism. this would include everything, even down to bitter chocolate etc. an include things like false cures etc. myths about autism etc. this dictionary would be compiled by us, we, autistics, and much like a dictionary, be A-Z, with definitions etc. eg. bitter chocolate - excellent source of fibre, reputed to have the effects of.... you catch my drift.... i hope so your thoughts? if any?
  13. "Severely autistic boy, 4, is on the road to recovery after undergoing WORM THERAPY despite being told he would never lead a normal life ... ": http://www.dailymail.co.uk/health/article-4422218/Autistic-boy-4-road-recovery-thanks-WORMS.html "A hot bath 'helps soothe the symptoms of autism and makes children more sociable' ... ": http://www.dailymail.co.uk/health/article-2522714/Autism-symptoms-soothed-hot-bath.html
  14. hello tdewar. firstly, congratulations on your successful completion of your uni course. now on to the other issues you've outlined. whilst i cannot give 'the solution' in terms of advices, i can perhaps outline perspectives that you may or may not have considered. please take all of which follows as autistic rambling and thought. i'll deal with each issue under broad umbrella categories, almost like a venn diagram as they insect, so perhaps best to consider them as gestalt rather than absolutely separate. 1. anxiety - being autistic, one's anxiety stems from the stimulus issues eg. over-stimulation, sensory overload etc. as you mention, the unfamiliar heightens or exacerbates sensations of anxiety. it often helps to at least be aware that what we experience in terms of anxiety is 'normal' for us. yes, that doesn't much help with the anxiety, nor stop it, as we are sensory beings, but it does at least help to know /why/, and then not turn one's thinking in upon oneself in a 'there's something wrong with me, people don't like me because xyz'; this distorted self-perception can be very damaging so it is best to be aware of the pitfalls and not fall into them. a fear of being judged can feed into this, and i will deal with that aspect later on... 2. the social ideals - one must be aware of the false ideal when it comes to life and self. the false expectations created by the idea that there is a perfect blueprint to follow when it comes to being a 'successful' person is a social construct and a lie. this gives rise to the sense one is 'missing out' on something, and 'life is passing by' because one has not achieved a benchmark. the tickboxes of this false social construct place unnecessary pressures on individuals to achieve that which is unachievable eg. success, a perfect partner, a perfect homelife, a perfect job, happiness etc. these are false ideals, and it is false thinking. it is a trap, a pitfall, and one that many people fall into. the result is this pressure to achieve that which is unachievable, and when in that mindset, the added pressure creates an exhausting effect on the individual. it's like a dog chasing its own tail; one just ends up going round in circles and berating oneself for failures which are irrational. so throw away the idea away. 3. other people and the dating game - consider for one moment one's expectations, a) in regards to oneself and then in respect of others. now ask the question: what do you want? this question can be applied to a) and b). if disparity exists between a) and b), there will be incompatibility present (evidenced by factors such as feelings of frustration, anxiety, sense of failure, etc) want is a variable. in order to resolve/balance the 'self' equation, one must reduce the frequency of variables. this can be done by addressing:- the 'wants', (and variables inherent therein). it is therefore important to identify whether 'self wants' are derived by i) external factors or ii) internal factors. 'external' factors include the social ideals outlined in 2. above, and are false expectations imposed upon the person; they are false ideals, ideas, and will create incompatibility in thinking and being. 'external' factors also increase variables. the result is that one then exists in a perpetual state of irresolution; one becomes stuck and cannot move forward; one's thinking turns inwards; one seeks constantly for a state of peace and security which seems ever illusive. 'internal' factors include self-defining ideals and arise out of one's own /natural/ pre-dispositions, thoughts and abilities. these are true expectations as they stem from one's true nature - in our case, our pre-dispositions underpinned by our autistic abilities. resolution of the a) variant, 'wants', and 'factors' means:- removing any ideas which are non-compatible and stem from external 'false' factors and expectations identifying and understanding 'internal' factors and 'self'. "ultimately, i just want to feel content, happy and secure in myself..."<---i think you already know the answer and what i have outlined above is already there in the back of your mind. it is almost, and i will make a leap here, as if you need to give yourself permission to throw away the 'tickbox' social identity external factors you are aware you are subject to, and instead, define your own identity. if you /want/ a girlfriend, and that is all you want, perhaps you need to think more deeply about what that 'want' /means/. we are a strange (and i mean strange in a gentle way) mixture of independent almost solitary nature yet simultaneously have an intrinsic need to give and share. i see it as a polarity, in that we want to touch, but prefer not to /be/ touched, until we can trust and feel safe with whom we are around. it's a fine balance, in finale, and one which can be achieved as long as one stays true to oneself, i think. one will then naturally gravitate to compatible environs which are in turn, inhabitant by compatible individuals. like all things in life, truth is effortless, and should be effortless. anything else is false.
  15. Hi, I'm a male with Aspergers and just finished a 3 year course at University. Even though I did great academically I didn't get much out of things socially even though I did try and join a few societies. I feel this is due to me having anxiety in places I feel unfamiliar with and it takes me time to get to know and trust new people. I feel my life is passing by and I'm constantly missing out on great experiences with great people. I have only a few close friends and struggle with talking to the opposite sex. I feel I have so much to offer but due to my lack of confidence and fear of being judged I'm too afraid to try and put myself out there which is incredibly frustrating and I usually just don't have the energy. I've often tried online dating but given it up due to lack of interest which I take personally in thinking that I'm unattractive to women and upsets me. Ultimately I just want to feel content, happy and secure in myself but these worries seem to be really distracting my mind right now. Maybe I need to learn to be more patient but I just feel so fed up at the mo. I know I may sound quite negative in this post but just feel overloaded and just seem to be going round in circles as my social life is concerned, any advice would be very much appreciated
  16. Earlier
  17. A government funded charity is a fraught and highly questionable concept. Ask the average man on the street about a charity and the chances are that he will say that it is an organisation which takes voluntary donations from the public and has the freedom to spend it on the people it wants to provide support and services to. The concept of government funded charities operating as government service providers is not something the public are always aware of. This even includes members and supporters of the NAS, especially those who do not require the services funded by public money. The NAS is legally a charity but technically it is a quango. With nearly 90% of the income of the NAS coming from the government with strings attached to who it has to be spent on and what services it has to be spent on it is very hard to justify that the NAS is a conventional charity. The conventional charity faction of the NAS operating using money from the 10% or so of income not provided by the government plays second fiddle in comparison to the government funded services faction. There is a question as to what exactly does the NAS do for people with AS and HFA that ISN'T already being provided for elsewhere. For example, there are many websites about AS; books about AS from a variety of publishers; plenty of discussion forums like this one; and independent support groups that often provide a better service to people with AS (rather than parents and carers) more often than not run on shoestring budgets. This comes from hard experience. Over a period of several years I tried to promote my local independent AS support group to the LEA and the NHS trust but they never seemed to tell the people they serve with ASD about it and instead always referred them to the NAS. It was even discussed in meetings at the local AS support group whether deals had been struck that the NAS is the sole organisation to refer people with ASD to. I am vaguely aware of this proposal but I could not understand the logic why the charity for AS and HFA had to later integrate with the NAS when they will be dealing with dissimilar people who require dissimilar services, one of which has a regular supply of government money and the other which doesn't. It would be just as logical for the charity for AS and HFA to integrate with a charity for blind or deaf people as it would with the NAS. The question I want an answer to is exactly which year did the NAS first recognise AS and openly state that they provide services for people with AS rather than more classical and traditional forms of autism.
  18. Dear All I am planning to shortly upgrade the forum software to the latest version which will be a major update. Some users might have experienced short periods of being unable to access the forum over the last two days as preperations for the update were completed. Thank you for your patience. Lufty
  19. Hi, I was diagnosed with AUTISM & Aspergers when i was 7 years old i am currently waiting for another diagnosis for ADHD i have a mixture of things i guess. I am Tori (:
  20. I've just finished reading Lorna Wings 'The Autistic Spectrum'. Its a book if a bit dated.
  21. Likewise.
  22. huzzah! yes, for a moment could've been a bit tricky but... - so we are both who we are and not some phantom impersonator (of which is entirely possible in this medium, damned imposter/impersonators will be unveilled as such in time no doubt) ahh, but i have found so few that can check my logic, or seem to be able to penetrate the veils of thought. i tend to 'come in' over the top, perspective-wise, and reduce everything to its formulae that i am often miscontrued - or rather the message gets completely corrupted and lost in translation. words, so limited, i need to invent more... and then one put into another person's brain... *has images of tangled balls of string...* ha-ah! very well then. t'would not be the first time someone's likened me to the sleuth, seems to be an in-joke with people who know me, so yes, let's share that and double our fortunes so to speak. a pleasure to speak to you once more, Dp.
  23. Yes - it is I. And a bonus that it is you - partially on account that you might not of been you at all but someone else entirely different; which might of been tricky. I am not so sure about being likened to Bertrand Russel though - as he did philosophy with mathematics involved. Mathematics is a wondrously amazing system of almost complete and utter confusion to me. Perhaps - 'Me Milo; You Sherlock' - or vice versa and so fourth?
  24. That's great to hear. Getting As in maths - sounds like he's found a real strength there. I hope the job benefits him and that the lack of pay is not a sign of exploitation. Keep on dancing!
  25. I'm not clear what help you are looking for. The brief points you have typed are, to my awareness, consistent with ASD, but presumably you know that and that's why you included them in your message, rather than other aspects of you. If you *always* think people are upset with you (presumably including times when people are not upset with you?) then perhaps you are not reading people as well as you think. It's hard to know from a brief online interaction, but then that's what your assessment is for in 8 days' time. If it's ASD that is "going on" then your imminent assessment is surely a good place for it to be identified. I'm not familiar with Clinical Partners. Good luck getting through the next 8 days (and beyond). I guess that the uncertain nature of the waiting will make it a difficult time for you, however it will soon be over - only 8 days out of your whole life, so do whatever you need to to reduce the anxiety and keep going. If there are any practicalities that you are unsure of then I guess the clinic would be able to answer these. And if you have practical or other questions then if you pose them then hopefully someone will respond with their thoughts or own experiences.
  26. if you are one and the same dp as frequents nas site to dispense wisdom and 'bertrand russell' my logic, then the odds are favourable we have conversed before
  27. Have we perchance corresponded together before on other forums?
  28. oh! hello there! *looks around* yes, the vibe hereabouts does seem to be a little more convivial.
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