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fiorelli

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Posts posted by fiorelli


  1. Long time no speak!

     

    I hope you get the result you want.

     

    Simon

     

    Hiya Simon Hope you're well.

     

    It has been a long time! To be honest, I feel like have been all take and no give on here lately. I have been throughly floored by L going to high school and the battle that has gone along with it. But now I have done all I can I am totally lost and trying to find a little hope.

     

    So, I too, hope that we get the result that we want. After the result comes through, I may come on and talk about it in a bit more detail, as that is the one thing I found difficult in the whole process was there that there was very little in the way of other peoples views/feelings/info as to what happens at tribunal.

     

    Fi x


  2. Those who have been to tribunal, did you get any idea/feelings from the panel about what the outcome might have been? How did you cope with the wait between tribunal and finding out the 'verdict'?


  3. Would like to swear here but will settle for "rubbish"!!

     

    Although if you are caring for a child and don't have a disability yourself then it is right that it's gone to the Children's Services team.

     

    This document is really good and should give you some law to quote at them:

    http://www.carersuk.org/Professionals/Reso...sandtheirrights

     

    If your child has a social worker and a core assessment has been done, the carers needs should have been taken into account during that.

     

    HTH

     

    Carol

     

    Carol - Social Worker???? Core Assessment??? You've got to be joking right???!!! They are like gold dust and two of the things (against many others) that I've been fighting for. I did see that from Carers UK and quoted it in the original request which they seem to have just read the 'Please can I have a carer's assessment' bit and not read the rest. I have had the same old spiel about seeing other worse off than us who are not entitled to anything. Only this time, the guy went as far as to say that they ONLY deal with children who are at extreme risk. hmmm.

     

    Sorry Carol, I went off on a bit of a tangent there - not aimed at you.

     

    Fi xx


  4. I wondered if you guys can help me. I put in a request for a carers assessment via the LA's adult services website. I recieved a letter yesterday saying that the request had been received and that someone would contact me in due course. Today I called ~Children's services (about a matter un-related to the CA) who said that my request had been passed onto them -via all manner of different departments. I was also told that they did not know what to do with the request as a carers assessment "is for adults who look after adults", and that "whilst as a parent of a child with a disability you are entitled to apply for and recieve carer's allowance, the actual act of caring for the child, even if they have disabilities is classed as within the remit of 'parent'"...

     

    Any help? What can I do - Any suggestions?

     

    Fi x


  5. >>LEA have replied to tribunal saying that ASD and ADHD are not educational needs, and as such they will not name them on the statement. And that because each person with these presents differently, they oppose naming them on the statement.>>

     

    That seems strange - I know lots of children who have one or other named on their statements (in that county). In themselves they are not educational needs, but usually the educational needs arise from the ADHD/ASD. I can't see the Tribunal agreeing with them as long as all the consequent needs are listed too. Ask IPSEA what they think.

     

    I know that most specialist schools will not take a child unless AS/ASD is their primary need, so maybe the LA are trying to stop them offering you a place?

     

    Isn't he at an EBD school? I can't see that EBD is an educational need anymore than ASD or ADHD.

     

    Have the LA admitted yet that his current school cannot meet his needs?

     

    You need to prove that X school is the only school that can meet his needs (academic, emotional, behavioural, life and independence). If that school happens to be residential then that is their hard luck - lol!

     

    Which school were you wanting to name? Is attending it as a day pupil possible? (often once they are in the school will be able to argue for them to be residential).,

     

     

    Thank you for replying Kazzen, I hope you don't mind, but there are a lot of personal questions in there, I'll pm you the answers?


  6. You would need to already be having input (and probably a lot of input) from all agencies (social services, education and nhs).

     

    I have never heard of the NHS funding a placement for asd and it is almost impossible to get SS to fund in our county (apart from for Looked after children where they are already spending a lot of money on caring for them). SS refused to take any part in education discussions when we were considering residential, and I know they just didn't turn up to a Tribunal meeting when they were told to do an assessment and attend. I don't know if things are any easier now SS and education are both under "children's services".

     

    Everyone I know, concentrated on the education issues and proved that a certain school was the only one that could meet all their child's needs - and that school just happened to be residential.

     

    Thank you both for replying. It was more or less the answer I was expecting. (although hoping not to get iykwim...)

     

    LEA have replied to tribunal saying that ASD and ADHD are not educational needs, and as such they will not name them on the statement. And that because each person with these presents differently, they oppose naming them on the statement. They are also opposing the resi school (big surprise - not!) saying that it is a social need rather than an educational one. Bah! I have a huge fight on my hands, esp. as I have heard that my local LEA are re-assessing everyone in resi. school to see if they still need the placement...


  7. Has anyone had to fill in the new style DLA forms? It is renewal time for my son and I have been given one of these to fill in. Only problem is that I have absolutely no idea where to start!!

     

    (It's just typical that I dug out the original forms I filled in 6 years ago in order to copy and amend them onto the renewal form that I thought was going to be the same as last time...)

     

     

    Fi xx


  8. I'm sorry that you seem to be having some problems with your son lately. However, I'm not so sure that the problems you have detailed are all about your Sister in Law. Surely it shouldn't have been up to SIL to say to your son that he couldn't be at the birth of her baby? If he has problems with communication at some level, maybe it should have been worked on/brought up before the point of birth when and how it would be appropriate for your son to see the new baby after it was born? I have to say that for (more than) 2 weeks after my children were born, the last thing on my mind was my nephew and when he wanted to see the baby. If there was such a strong bond between your BIL and your son before, then any 'issues' in their relationship should have been addressed earlier.

     

    As your son is 18, he is legalled classed as having the mental capacity to make his own decisions and choices - even if they are the wrong ones. From what you have written, your son made the choice to drink to excess. Your son made the choice to send text messages whilst in hospital to 'see if anyone cared', and chose not to send one to you (maybe because he already knew the answer to the question in that case was a big fat 'yes'?!). These may have been the 'wrong' choices, or 'bad' choices - however they were his, and his to make. Use them as a learning tool with him. I do however, agree with you that the reply from your SIL was innappropriate.

     

    I think asking about girlfriends is a perfectly normal thing to ask an 18 year old (I do it to my 12 year old - and even my 8 yr old!), and it can only be a good thing that he was looking at ways to open up conversation (in my view anyway!). I questioned how much lodge my sister used to have to pay our mum. There were many reasons for this: because of how much my sister earned, I didn't want her being taken for granted, I didn't want her to think life is a free ride etc. etc. etc, I don't know your son's situation, but by the sounds of it, he doesn't work. For someone not in employment, £50 a month is a lot of money. Maybe your SIL thought this too, and wondered why your son had to pay so much, and said what she did out of concern for him?

     

    I don't know. I'm not there. These are only my views on the situation as you have discribed it. But I really don't think that your SIL is entirely to blame, and I certainly don't think that 3 times in a year is something to get fed up over.


  9. I have just received a letter from the LEA...

     

    Dear ........

     

    I am writing to confirm that there is a place available for XXXXX at XXXX XXXXX School from September 2010. You should contact the Headteacher to discuss admission details.

     

    You should be aware that the County Council normally only provides school transport where the distance from home to school is more than 2 miles .........................

     

    As child lives over 3 miles from XXXX XXXXX he will be entitle to free transport. The school will need to forward the form requesting transport to this office..Blah Blah Blah.....

     

    Yours sincerely

     

     

     

    Principal Special Needs Officer

     

    However - I HAVE NOT received a final amended statement of SEN that names a school yet!

     

    Does anyone know if this a 'standard' thing to do or not? (and what I need to do about it - esp. as this school is only going to be a VERY last resort!!)

     

    Thanks xx

     

     


  10. sorry, just tried to delete this topic, but found we no longer have that option.

     

    Basically, I have just been reading through all of my old PM's and found one from the lovely Phasmid that answered my question, and a few more that have cropped up again.

     

    (I know you can't read this, but) Thank you Phasmid, your support, was - and is really useful! x


  11. Hi Fiorelli does your son have Dyslexia? with the scores Im wondering thats all.

     

    His scores suggest he will struggle in all lessons were he will need write and spell and he is significantly behind others his age group.

     

    I personally would look for a specialist school that cater for high intelligence.

     

    JsMumxxxx

     

    hi JsMum,

    he had high dest scores back in yr r, but have not been able to get an ed psych to assess him properly, and cannot afford to go private. I suspect he might be though


  12. Thanks for replying and sorry I haven't been able to get back on sooner.

     

    I can't see that my son has made much, if any progress academically and I have brought it up on many occasions, only to be shot down in flames with 'he is making progress/he is on track' etc, and IEP's are a very sore subject (I'm sure if you search for my posts you'll get the general idea!), I think I was more laughing at the fact that they put about walking quietly around the school above other (academic) things! My son is currently in a residential special school (BESD - LA run). About the only thing we can agree on is that he is behaving in school, but that he is hiding a lot of "stuff" from school.

     

    School feel L has MLD, however, Ed Psych hasn't mentioned it, and his CAMHS psych doesn't seem to think he has - so who knows! As for new school, again who knows! I think I have it short-listed to 2, however, I need to visit the others in order to be able to discount them fully.


  13. Well, it is L's yr 6 review of his statement in a couple of weeks. I have just recieved copies of his latest IEP and NC levels. If I didn't laugh, I'd cry.

    IEP:

    Focus on thetask in hand.

    Move about the school without singin loudly

    My work makes sense with a beginning, middle and end.

    Add several small number pairs totalling 9, 10 or 11

     

    NC Levels...

    English Reading - yr 3: 2c, yr 4: 2c, yr 5: 2c/b year 6 expectation 3

    English Writing - yr 3: 1c, yr 4: 1c, yr 5: 1c year 6 expectation 2

    spelling Test - yr 3: (autumn) 6.0 (summer) 6.9 yr 4: (a) 6.7 (s) 7.0 Yr 5: (a) no level marked (s) 6.9

    Maths - yr 3: 2c, yr 4: 2b, yr 5: 2b year 6 expectation 3

     

    Not long ago, we were being assured that L would make NC Level 4 in all his subjects. Despite me telling/querying with them about the fact we feel L hasn't been progressing, they have always assured us he is. I will be so glad to see the back of this school. The only good thing about them is that they are backing us (at the moment!) in the type of school we will need for L.


  14. The Highway code (no. 219) says this:

     

    219

    Emergency and Incident Support vehicles. You should look and listen for ambulances, fire engines, police, doctors or other emergency vehicles using flashing blue, red or green lights and sirens or flashing headlights, or Highways Agency Traffic Officer and Incident Support vehicles using flashing amber lights. When one approaches do not panic. Consider the route of such a vehicle and take appropriate action to let it pass, while complying with all traffic signs. If necessary, pull to the side of the road and stop, but try to avoid stopping before the brow of a hill, a bend or narrow section of road. Do not endanger yourself, other road users or pedestrians and avoid mounting the kerb. Do not brake harshly on approach to a junction or roundabout, as a following vehicle may not have the same view as you.

     

    (note that is my bold on the quote) taken from the Highways Code 2007 http://www.direct.gov.uk/en/TravelAndTrans...ycode/DG_069858

     

    Basically, you did the right thing, and the ambulance was in the wrong for getting frustrated with you and flashing his lights. (Although I can understand why they may have been frustrated - it doesn't make it right - it could have ended in them dealing with an entirely different incident...)

     

    xxx


  15. frogslegs, no he doesn't speak to his 'father' on the phone - L rarely uses the phone anyway, and if he can get away without using it, he will do! This is just typical of his 'father' he will go for at least 6 months with no contact, then suddenly he's been trying to contact us and can't get through, will see L for a weekend or 2, then nothing.


  16. Had some problems with L this weekend just gone. He had been absolutely adamant that he was seeing his 'father' this weekend, going into great detail in school to teachers/friends about what the plans were/what he was going to be doing. 8.00pm Friday night, and he realised that 'father' wasn't coming for him. We knew that 'father' had said that he wouldn't be seeing him until the summer at least, and talked to him about that, as did school. School also discussed with him about various scenarios that may have happened, and worked through some coping strategies.

     

    Several times over the weekend, we have had one very distressed/anxious/annoyed/confused L. He has been crying, screaming, shouting, in amongst talking absolute gibberish. He has been getting all his 'problems' mixed up - he'll be talking about one thing and giving details for another. He has been upset about 'lies' he said he has told - when in fact, he hasn't told any lies these things actually happened.

     

    We ended up with a completely broken bedroom door, where he kicked it so much that it has fallen to pieces, and has great big holes in it. (We discussed this with him when he was calm the next day, and he is to do some chores in order to earn some money to help replace the door. Not talking lots, just a couple of chores for a few weeks in order for him to earn a £1 or 2, of which he will need to give up 40/50p, just so he - hopefully - will realise that there are consequences to his actions, no matter how distressed he is.

     

    The more I think about it now, the more upset I get for him. I didn't know how to help him. I don't know how to help him. I can see where the weekend started and why, but I was powerless to prevent it.


  17. Thanks again for your help with this all. I wanted to give you a little update. My portfolio is finished, and I have my on-line exam on Monday.

     

    The leaflets I made up, and my (5 minute) presentation on ASDs was well recieved. - Well nobody was asleep by the end of it, and I had plenty of questions afterwards, so I think I did an ok job. I am awaiting the written feedback from my tutor, but she verbally said I did very well, and that my slides were very informative and brilliant for the guy down the street who knows nothing. (well, I think that was a compliment anyway!)


  18. If she doesn't want to pay rent, then she doesn't want to keep any belongings at your house, doesn't want you to provide any of her meals, doesn't want you to provide sky in her room anymore and certainly doesn't want to have baths at your house?

     

    She's 21, not 12 - she needs to realise that.

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