Thea

Many thanks for that Shamu, very kind of you to take time to post. I had guidelines sent by the NAS through the post but the link you gave seems to have even more info. I feel he should have got the higher mobility due to his total lack of common sense but I won't like him to have to go through further assessment as might happen if we appealled and I don't like the threat to his care award . As he was six at the time of application I think I will leave it until the review and then send even longer spelling out his difficulties....but then he may have progressed and have a better understanding of safety issues. I'm just so glad we have the blue badge for his even more serverly autistic younger brother because both benefit. I certainly would appeal if we hadn't already got the blue badge as he really is a danger to himself and others without someone permanently on hand to restrain him. It's tricky because he is a bright child, certainly would score over 55 in the IQ test. I don't think of him as having behavioural problems, more that he can't organise his behaviour or where to put himself. His brother is a wheelchair user, getting around the house can be hard for him some days so it was more clear cut there. Congratulations on your award Love Thea

Many thanks for your reply. My son is seven now, six at the time of application. I did ring them and put my case but they said they would need to reassess the whole claim and there was a chance they could then drop the care award. He did say it didn't happen often but that this did happen now and again. So I am left wondering if I might be as well to just be glad he has what he has and accept the decision. Frustrating because I feel he is elligible however the guidedance states those receiving mobility on the grounds of severe mental impairment would be likely to have an IQ of less than 55. This is very unlikely to be the case as he is very bright. Very much autistic rather than AS but still bright and can read. Just I am puzzled as I know of other children of his age far more capable and independent than him and they do get mobility all be it it at the lower level. Strange Any ideas why this is? Is it just down to the discrepencies between different decision makers? Not questioning others needs just wonder why I was turned down when basically I can't let go of him once outside our house or he would be under a car. Love Thea

Hello all I wondered if any of you kind people could help me here. I have just got the letter to inform me that my child has been award the higher level of care with DLA. He is ASD and Im sure I dont need to spell out the many many problems we have getting out and about both on foot and in the car. I felt I did a good job of outlining his difficulties and the many steps I have to take to keep him safe so cant see a reason why he wouldnt be get any help here. He can walk of course but has no common sense were traffic is concerned and needs one to one every moment when near roads. Plus he has behavioural problems in nearly all situations. What happens if I appeal and would I be wise to just be thankful we have the DLA for care. He really does need more help and care than the average child of the same age. I had two disabled children so wouldnt like to put myself through lots of hassle appealing if it involved going cap in hand but Im happy to write again if that is all that is needed. Advice please would be wonderful. of course Im please he has DLA and thank all you people who have posted to help others deal with the book size form! Feel free to mail to my box Love Thea

Thank you so much you lovely people, so hearting to know there are such thoughtful people on here to talk to. Off to find out where Rutland is now and will mail you in the morning. Have heard of it so can't be that far away.

Hello to everyone, We are a home educating family in North Nottinghamshire with two young asd boys and would love to hear from any other families in the area. Feel free to post to my in box. Best wishes Thea

With HFA speech is impaired/has been significantly delaid, were as with AS speech development is, one the whole, age apropriate.

Would love to hear from any other home educators out there or anyone who is thinking about going down that route. I have been home educating my eldest son who is autistic, nearly seven from the start and now also his brother with SLDs. Don't like that term one bit, but it's the label he is saddled with for now. So please message me for a chat.