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trekster

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Posts posted by trekster

  1. Posted · Edited by trekster · Report reply

    its never simple...

     

    just looked up the train times for getting there and its impossible. going to have to look at every possible route/time to work out a journey time of less than 3 hours each way! no way we can put k on a train for 6 hours, she'd demolish the place.

     

    i dont understand it as i know i can get to reading in an hour direct, but every time i look it up it says no, i can't get there.

     

    Try looking up a route from Reading to Windsor and see what you get. http://www.travelinesoutheast.org.uk/se/XSLT_TRIP_REQUEST2

     

    Alexis

  2. Posted · Report reply

    Hello

     

    i normally find an autism alert card, a disabled railcard or a disabled bus pass is enough to get me in. They don't normally ask for evidence of being a carer at these things. i got a group of us into Edinburgh castle under a discount as the most NT appearing person asked for a discount for us.

     

    Usually the words "autism spectrum disorder" are enough to get me in various places. Once we got myself, rally man, quiet asperger and rally mans girlfriend in 1/2 price as rally man and his girlfriend looked NT enough to be our carers. In effect they were our carers as rally man had driven us there.

     

    ive been to legoland before but i was too overloaded to take anything in about discounts. i think gran got a senior one but cant remember how the rest of us did.

    Some disabled folk need 2 carers so you might be able to negotiate that for the 3 year old.

     

    Have fun! Let us know how it goes when you get back.

     

    Alexis

  3. Posted · Report reply

    I think the problem is that sometimes people go to college/university and they learn lots of things one lose one fundemental skill we are trained to have - the ability to think for yourself!

     

    Its all very good being taught that children who are abused often start playing up at school, or become withdrawn, or this or that but that doesnt mean that every child that plays up at school or goes quiet or finds some things difficult must be getting a beating!

     

    Its an easy explanation for an otherwise tricky situation. "I dont know whats wrong with him, therefore it must be the parents"

     

    It is devastating and infuriating when they assume things like this and far too common for my liking :tearful:

     

    I feel for your friend >:D<<'>

     

    Same here, unfortunately there are higher incidents of naive autistic kids being abused. Im sure the NAS young persons officer has some information on how to tell if an autistic kid is being abused or if they are displaying "challenging autistic behaviour".

  4. Posted · Report reply

    justine1

     

    Has your AS son been tested for severe ADHD or conduct disorder/ODD? This sort of behaviour is normally displayed by kids like your sons. i don't deny hes AS as those disorders can co-occur with AS. Just reminds me of Jackie Jacksons son Joe who told his mum in front of the teacher "my teacher didnt spank me once today".

  5. Posted · Edited by trekster · Report reply

    Thanks trekster for your help. They seem to think the child suffers from mental health issues they want to send the child to a residential place along with my friend and her husband where they can be observed by psychiatrists, psychologists etc.

     

    They should send him to Elliott house as that would confirm that his behaviour is autistic related.

  6. Posted · Report reply

    I really feel for your daughter. Don't let her suffer any more than she needs. The chances are you probably don't know the half of what is going on, especially if she has communication issues as you say. My personal opinion is that you should approach the school on her behalf.

     

    Just speaking from my own experience, I was horribly bullied in primary school, but those bullying kids who were big fish in a small pond, became small fish in a large pond when we started secondary school. Other than one or two isolated incidents, the bullying abated and life was so much better. So don't assume that the situation will get worse because it might not.

     

    Wish you both the best in regard to whatever you decide to do.

     

    The only way to fight off the "nasty undiagnosed asperger" bully was to pretend she was beating me up when we were having a fight.

    i didn't like to do that but desperate times called for desperate measures at the time. She didn't bother me after that but i could have

    got a detention for fighting, i only survived that incident as i froze as soon as the dinner lady came around the corner.

     

  7. Posted · Report reply

    It's been a while since I was here!!

     

    We are beginning to experience the wrath of prepubescent girls, who are at the the top of the social ladder and even though at the bottom clambering for some status. Our very naive, passive AS girl is really struggling, they are whispering about her at the lunch table, encouraging the younger girls to do this to. She is often told she is stupid, there is sneering, she is told she smells, they have sprayed deodorant cans in her face(she has told them she doesn't like the smell of perfume). She use to go to a local youth club and scouts which she enjoyed but not now, its too much.

     

    i got this at secondary school, at the time i was sweating because my gf/cf addiction wasn't being treated.

    She is in a small school yet this manages to happen when the teachers aren't around.

     

    Would budding her up with a trusted more assertive child help?

    B uses a emotion sheet to talk to teachers but often doesn't know how to explain it or why this is happening.

     

    She could become selectively silent due to the bullying shes receiving. i know many autistics who have. If she had to draw what was happening would that help? Or even use figurines like playmobils (which i often use to describe how im feeling).

    I don't want to race up to the school, she has to learn to cope a little with this because secondary school is going to be a whole lot tougher.

     

    Agreed, not sure how the NAS "make school make sense" campaign has been going in your area. Have you heard of Number 6? it is in Edinburgh and is a resource centre for parents and autistics. Its also a safe haven to escape from the outside pressures of the scary world.

    Anyone know of some helpful tips/books/workbooks.?

     

    Would she like to meet other asperger syndrome kids? You could try and ask for a befriender from the NAS if 1-1 works better for her. Also peer awareness but the problem is i fear that could make things worse for your child.

    How have other parents helped their kids?

     

    i got out a "asperger syndrome practical strategies for the classroom" book one day and underlined what affected me and what would help. My gran then wrote that information up and had a meeting at the school. i know you are reluctant to do this but it might help and then can be passed onto the next scool when she leaves.

     

    Have you considered changing schools? It worked in some respects for me but only for a short time.

    How did they deal with the bullying issue?

     

    Anti bullying campaign might give you some ideas.

    Thanks for reading !!

     

    Alexis

     

    PS i wasn't diagnosed until i was age 16 and had just left school but this worked to an extent at college.

     

  10. Posted · Report reply

    SAFE is Supporting Autistic Families in Essex.

     

    My friend lives in that area and he was also accused of child abuse towards his son.

     

    The lad has ADHD. social phobia and ODD and wasnt diagnosed until he was age 16.

     

    There is also the NAS advocacy for education service 0845 070 4002

     

    HTH

     

    Alexis

  11. Posted · Report reply

    Hello

     

    My grans cousin has MS and that's on my maternal side. Have you tried looking at google scholar? Thats a site for academics that need research papers about various subjects.

     

    There is a treatment for MS that has also helped autistic's in America. Its called LDN (low dose naltroxene) when tends to improve immune system responses in various patients. It can also help with fibro and ME but unfortunately AFAIK isnt around in England. :crying:

     

    Considering allergies and ASD run in families and celiac and ASD runs in families it wouldnt surprise me if a link was found between MS and ASD in families.

     

    Sorry i cant be more specific.

     

    Alexis

  12. Posted · Report reply

    Hi everyone,

     

    The person who is going to diagnose me for aspergers has mentioned that collateral information about me would be useful, please can anyone help me by helping me understand what collateral information about me could mean?

     

     

    Thanks

     

    Thats a very open question and it could mean a number of things. i think they are asking for some sort of evidence that you think you have aspergers.

    If you have any school reports, college reports any type of educational reports then take them with you.

     

    Make sure you talk about your interests as much as you can during the assessment.

     

    Alexis

  13. Posted · Report reply

    Thanks for posting this but unfortunately it wouldn't suit people like me. i went to see toy story and the only time i could hear the film was when there was music on. The other autistics were unable to quietly be themselves in the cinema.

     

    Hope you have fun with all your noisy autistic folk!

     

    Alexis

  14. Posted · Report reply

    i was thinking of maybe starting thread by saying for example "from Bristol, please post here and share social and support groups that happen in bristol" or something similar.

     

    The subheading would be "for non promotional use only"

     

    A pinned topic in resources sounds like a good starting point, so we could have "sw region social groups and parent support groups" (or even list them seperately) eg "SW social group for ASD folk" and "Sw parents groups".

     

    i don't mean to separate people out offensively its just some of the groups are for ASD folk like "the bristol autism user representation group". All what would be asked in return is for members to keep in touch with each other to reduce the "am i the only ASD (or parent) in Bristol?" feelings.

     

    HTH

     

    Alexis

  16. Posted · Report reply

    Your welcome

     

    i was actually quite angry about something else on another autistic forum at the time so its good to appreciated. If you explain that "due to my sons autism he cannot transition easily from one activity to another. When he is reminded of this fact it gets him very upset which is why he lashes out". Then suggest something they could use with him, eg "when i give you a pen it mean we have to move onto the next activity".

     

    High Scope teaching is something you can look for in a good school. It is where the child takes responsibility in effect for their own learning. Each child will have their own peg to hang their coat with their name and something that reminds them its their peg. Also they have a board with their name and the same symbol as their peg which they carry around the room with the teacher to choose their activity. The names are hung up next to their planned activity so the child can see when something is full.

     

    If an activity is full some children have been known to negotiate with others so they can use the activity after them. Other times the teacher intervenes and helps them to choose another activity. After so long all change and children move onto another activity. If taught at an early age this method can aid childrens learning. i had it at my nursery school and although i could play in the right areas i couldn't play with the other kids.

     

    High scope was developed in america in special schools and has been known to improve kids confidence and well being. i was trying to find something more concrete on their site but didn't see anything so this is all from grans memory and shes not in the UK atm!

     

    http://www.highscope.org/Content.asp?ContentId=1

     

    Alexis

  18. Posted · Report reply

    General home support, help organising things, communicating with various official things etc.

     

    Thats a good idea to start with mate. i got mine to help me understand post that didn't make sense.

    Also they help me word something so it gets the message across in a non confrontational way.

     

    Sorting through my hoards are a challenging in themselves. i did find my "its not mine box"

    recently and ive started filling it with things for other people. That includes birthday pressies once wrapped.

     

    Alexis

     

     

  20. Posted · Report reply

    :lol: You are so right Mumble !!

     

    Hi trekster and welcome. I can tell you don't sleep as you post loads in the middle of the night! My 15-year-old son is mad on lego and is building a massive castle/cathedral type building.

     

    How do you deal with the insomnia - my 13-year-old son has loads of trouble sleeping. I don't like him going on the computer at night, but sometimes I don't know what else to suggest. He can't concentrate on reading when he's really tired (but still can't sleep). Any suggestions gratefully received :notworthy:

     

    im a fibromite, with dyslexia and aspergers that gives me 3 causes of sleep problems. i get into bed eventually after getting off the PC and attempt to overload my brain at night by doing a number of mind heavy tasks at once. Sometimes this works the other way though. even with my taurine x 2 and my 5htp x 2 i still have problems getting off the PC.

     

    Can he tell you why he doesn't sleep? Or why the computer is more important to him than sleeping? Which senses are hyperstimulated for him? Sounds like his body is in pain or hes not worn out enough. Are there any particular days in which he does manage to sleep? What happens before he goes to bed on the "im able to sleep tonight mum" days.

     

    Puberty was a nightmare for me with sleep. i had so many ideas buzzing around in my head. Also im a "must fix this now" type of person and that can include when its time to go to bed!

     

    Alexis

  22. Posted · Report reply

    :unsure:

     

     

    :lol::devil: Sorry, couldn't resist. I am speaking about myself BTW - just ask the woman on the bus!!

     

    Anyway, welcome to the forum, we're OK really. :thumbs: :thumbs: I used to love playmobil when I was a kid but then mine got passed down to my younger sister and I wasn't allowed to play with it any more :( I had the air-sea rescue helicopter and the camper van. :thumbs:

     

    Have you got the Playmobile Security Checkpoint? The reviews on that product are hilarious! :lol: :lol:

     

     

    Either they are taking the Michael or they must be autistic themselves. Its a plastic toy for goodness sake its not going to pick up metal!

    i was having fun with my playmobils recently doing role play for a job i might be applying for. i was asked what i would do in x situation so i acted it out and made the autistic out to be an arrogance and denial one who thought everything the befriender did was mean. Basically behaving like me in meltdown mode.

     

    ive got a camper van, 3 dolls houses (one in bits) and more than 400 playmobile people here. Most of them have names although i have to admit their more PC than they used to be.

     

    i wish i could understand these emoticons, at the moment they dont seem to put the name of the emotion when i run my mouse cursor over them. i would hate to use the embarrassed one when i was angry or the other way around.

     

    Mods: Can this topic be merged with my other introduction please? Ive just realised i posted 2 introductions by mistake. i would like "hi im new from nr bristol and any replies to stay though if possible.

  24. Posted · Report reply

    Hello and Welcome

     

    i hope you manage to get the diagnosis and support your son needs. i had to wait until i was 16 before i got diagnosed. Now im living in my own place in a supported housing scheme. Its good but not as autistic friendly as i would like it to be. i hope to help the housing association to learn more about autism and how verbal autism such as mine often hides difficulties they cannot see.

     

    Alexis

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