jen
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Posts posted by jen
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Is the OT paediatric trained? Ask the OT what training she has taken in ASD and what it covered.
My child is 8 years and I am still learning at about ASD. The families know more than the professionals and live with it daily.
Jen
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have you heard of the james brindley schools. They are school for sick children, children who are not attending school such as your child etc. I do not know if they are all over England or not.
Ask the LEA where you can get advice about home tutoring because this place normally supports children during difficult period e.g.. your situation.
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if you choose to move the child to a private school they do not have to provide an LSA as far as I know. However, if you can prove the school he is at now is not suitable and there is not other option then you should get a private school.
Within our area there are a few asd kids who go to private school but this has gone to sendist because the school the lea put forward was not a suitable school.
Also private schools do not provide ed psy assessments and receive advice from specialist visting teachers for asd unless that private school is on the statement.
If you can not get it on the statement them you provide the funding.
Saying that privated schools have smaller class sizes, there is not a problem if the child does not want to go out at play time.
Hope this helps.
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you can not get separate injection on the nhs. Even if you pay for them there can still be problems. A doctor was disciplined for givening a child mmr (in fact he injected water) they found out when the child got measles and had a blood test, and found no protection in the childs body.
I have given both my children the MMR I have seen the consequences on not having MMR teenagers die and left deaf and sterile.
There is some more medical research out on MMR
Jen
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You normally complain to the commisioner at the local health trust. You should be able to find the details for your health trust then ask for the commissioners details. He is responsible for commisioning services e.g. OT physio etc.
You could ask the paediatrician to issue you with a 6 month prescription on an FP1100 thats a ordinary green prescription (they do have them) both of these will save you money and time.
Jen
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May be we should describe special needs parents.
CONFUSED
ANXIOUS
WORRIED
ANNOYED
ANGRY
LAUGHING AT THE RIEDICULOUS
TEARFUL
SOMETIMES CONTENTMENT (BUT IT DOES NOT LAST LONG)
JEN
I SAY OUR LEAS REASONABLE THE THREE WISE MONKEYS
SEE NO SPECIAL NEEDS
HEAR NO SPECIAL NEEDS
SPEAK NO SPECIAL NEEDS
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I would ask to meet the head teacher and special needs co ordinator describe your son's difficulties and ask them how they are going to meet them. Show them the report from the ed psy saying he needs a small school.
QUESTION QUESTION AND QUESTION.
ASK ABOUT POLICES ETC
It might be the school did not have accurate information off the LEA and therefore they may say the school is not suitable.
If the school does say it is suitable it is up to you to find a school which sounds more appropriate to your childs needs then you will have to go through appeal to get it. What you have got in your favour is your child has managed well in a small school and as a result he does not have behaviour difficulties.
Good luck.
We will also have the same problem when our child transfers to senior school
Jen
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there advantages to moving him but you must tell the school you are moving him to your concerns and say you are or have requested a statement.
Or stay where you are and see what the assessment brings and how they deal with your son.
Some school do not know how to handle special needs children and put lots of thing in to create problems. Other schools may not know how to handle your child but will listen and work with you.
I person wanted to move my child many times but resisted because he had made friends. Was this a mistake maybe because I ended up taking the head to a tribunal for discriminating against my child.
Looking on the bright side my child has now moved up to junior school the staff are fantastic and I am a better mother and support for my son having gone through such a bad experience.
Listen to your child listen to yourself then decide none of us can see ahead long term.
My psychologist told me when my son was diagnosed that it might be benefical to change my sons school. These people tend to know from experience what are the better schools for support for our special children
Jen
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The school need to address the situation and not pass letters onto you. This is totally professional.
I would ask for a meeting with the school governor head teacher and class teacher.
Say in the meeting obviously you have concerns with your son and are willing to support your son. Say having received the letters (which you give back to the headteacher in the meeting) there are concerns from other parents and what are the school planning to address your child difficulties.
Within Birmingham Schools have to keep ?5% of there special needs budget for emergency e.g. such as in your case with your son not coping.
I do not know if they have a visiting teacher service (or specialist support service) its a teacher who goes in and assesses and advised for children with communication difficulties ASD etc.
The school need to look at the long term issues instead of putting it onto you.
We all feel guilty, but behaviour is a way of the child saying he is not coping. Hence the school needs to look at the reasons why the child is behaving that way.
Ask for a home and school diary so you can keep daily contact with the teacher and she can write what is happening in the classroom. Some schools say that have not got time for this, but is you do not communicate then neither you nor your school can fully support your child.
Some schools put in lots of obstacles makeing it difficult for you so you move your child.
Jen
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Timetable for assessment is
6 weeks request for statutory assessment decision made to assess or not made
10weeks to assess
decision on statement
2 weeks to issue a statement or not to issue
8 weeks for proposed statement and final statement to be made
Its a 26 week process.
When the school or you asked for an assessment the educationaly psych should automatically be contacted for an assessment.
I would ask the LEA officer what date they are using as the beginning of the assessment also ask them what new evidence has come up.
Ed psy report is not new evidence.
If you do not agree with the LEA write them a letter stating what date you reckon the statement process began and what is the final statement date saying its a 26 week time scale.
Parent partnerships can always advise you.
Write the date down when you receive everything. Keep it all organised in a file. Letters assessment etc you will need them later.
When you do get the proposed statement check it has your childs difficulties describe in section 2 (this information you get from reports, advice etc) Watch for wording which is not accurate. You can read more about this in this forum.
Jen
Good luck
p.s. you will have good days and bad days so be prepared
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sorry that previous one should state now he will eat roast parnsnips
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My eight year old has to try one new vegetable evey sunday. He has a tiny bit and swallow alot of water at the same time. He will not eat roast parsnips (it did take 6 months for him to eat a whole piece). He will also now eat peas (its taken 6 years for him to eat peas) He says he does not like peas but he will eat them.
Hence, I understand how difficult it is to get children to change epecially our special children.
Do you think GOD ever looked down on us and said parenting was difficult so he would see how supper parents cope!!!!!!!!!!!!
Jen
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if I was you I would contact the practice manager and have a meeting with her. Good practices should have what they call a carers list.
This list is to help you and the child, you get in to see the doctor much quicker and at more convenient times.
You could say you understand that doctors are very busy and therefore are not always aware of the patients problems. However you have a son who need routine and one who is stressed out easily. Can they put a note either on the computer or hand written on your childs notes to say...............
...........................
........................
what ever you think is suitable. e.g. your son will mainly see Dr.............and Dr.................
He will not be asked to preform tests e.g. in a strange area where it is impossible. Maybe at home you may be able to get some urine.
Make it specific to your child
After all they are there to provide a service
Jen
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once you have the proposed statement they have eight weeks to complete you should have got a letter saying you can meet with an LEA officer if you are not happy with the statement.
part 2 should describe your childs difficulties (this can be taken from diagnosis, reports, annual review, or your childs past history. If part 2 does not describe your childs difficulties correctly then part 3 will not be correct.
The support needs to be specified in hours e.g. Sam will receive a funding of 25 hours of learning support assistant.
Tell the LEA officer according to law your statement will be ready by..................and either you will collect it or they can post it. I always go to collect it. If you are not happy you can appeal to SENDIST.
Ask SENDIST for the appeal form while you are waiting and photocopy all the important documents ready for posting when you get you final statement.
Also ask for a full copy of the appendixes used in the statement as you will need to send these. LEA like to delay things to reduce there budget. Some parents will not challenge them so they save money other parents challenge them but they still save money (in a stupid way for 6 months) while going to appeal.
Its costs our LEA 16,000 in legal costs to go to the appeal that does not include the costs of the appeal on the day.
Jen
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Some of the numbers can be obtained on the local education website. May be the number you want is not listed ring one of the other LEA numbers and ask them. What LEA are you under
Jen
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I would ask if she knows the signs for when your child is distressed and what she would do.
You could ask if the candidates came in to see your son prior to interview and if so what did they think. Or why did they not come in and see him.
Are they willing to undertake training. How do they feel about communicatingwith the parents.
What are their worries, strengths ,weakness
Jen
I would ask the school what training they are going to arrange and when?
I wrote a list of things my child does and what distrations work etc
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We have not told our grandparent because he is in his eighty year old and gets confused. He does know our son has problems at school.
Its taken two years for my husband to get use to the diagnosis.
Do not feel guilty but say hes having problems etc and they are thinking it may be ASD. Sending them information will help.
Jen
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my child is very funny not in the joke sort of way but the things he says and the expression he uses.
When my child went up to year 3 he had the most horrible teacher in the school. All the difficult children were put into her class.
one morning my son goes to school and asks his teacher, "why do you come to school with a miserable face every day"
the teacher replied "I come to school with a miserable face because you come to school in a mood"
my child said "I am not in a mood today so you can smile"
Well the teacher found this very funny and told me at parents evening. She also said my son is always making her laugh.
My son had a supply teacher in to take an english lesson. He sat with the rest of his class and his LSA to listen to the teacher. After the teacher explained the lesson he told the child to go and sit at there desks.
My child went back to his desk and said to the LSA at the top of his voice he had not understood one word of the instruction and why could the teacher not speak in English. (the teacher was from India and had an Indian accent)
Jen
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Within twenty years we are going to have a generation (fat and thin) with health problems. There are a lot of thin young adults with high cholesterol and blood pressure.
Some young mothers do not have the cooking skills to bring their children up on healthy food. They also do not understand all the additives in food especially turkey twizzlers (you need a science degree to understand the labeling system)
Bring up a healthy generation relies on young people changing their habits. School children are more likely to try different things with there peers than at home.
We are what we eat, so if we are not putting good food into ourselves this will have an affect on our bodies.
Young children are now being diagnosed with type 2 diabetes. There are a thousands of people who have diabetes but have not been diagnosed. (Once you have signs of diabetes type 2 50% of people already have complications).
We need to change the way we eat and starting with young children will help to reverse that trend.
One well know fast food resteurants say if you promote advertings to under 5s they you have them for life. Obviously the parents go where the child wants to eat.
Jen
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Its not licensed for children which is why a consultant has to prescribe it. I think it all depends on the consultant if he would prescribed it for such a young age. I think the child also has to have anxiety levels not just sleep difficulties before they precribed it
Jen
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you need to ask the senco where she got the information from. The school can refer the child to as many organisations as the child needs. It all about advising and supporting the child.
I would also ask the school governor why is the school stating this as it is discriminating against special needs children.
When we ask for a statement the LEA involves everyone! Strange when the boot is on the other foot!!!!
Jen
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the head teacher is discriminating against your son disability. I would ask for a meeting with the HT his teacher special needs governor and ask what they are going to do. Ignoring the situation is actually discriminating against his disability. Say you are willing to work with the school but if nothing is happening you will be taking it further
Jen
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DLA is looked at a panel of non medical people so if your child requires extra care or help more than a normal child then you would qualify. The secret to filling in the form is to use the best your child is and the worse. So for example sleeping if your child has periods of time when he struggles to sleep you need to state it in minutes or hours and frequency how long it takes to settle him. If he is unable to access the normal curriculum school activites say so.
Remember you can never put too much on the form but you can put too little.
you can ask a friend, doctor school who ever diagnosed your son to put there version of it. We used out OT
Jen
Please Help
in Education
Posted · Report reply
glad to hear you are getting somewhere. What area do you live in
Jen