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Everything posted by jen

  1. Karen, We had a very similiar problem to yours. After all you have been throught sometimes you think you have not got the energy to look at other schools than go through the process of transfering schools. Go and see what is on offer and explain your concerns. A school who are willing to offer support and take a child on with problems, means your have a school who you can communicate with and address any issues for the benefit of the child. Communication is the key to our children being happy, supported and succesful. The main questions you need to ask is: Is you child happy at the school? Are the school willing to work with you to help address any problems? This should give you the answers you are looking for. Keep strong, stay positive there are good schools out there for our children. Jen Jen
  2. My child is aged 9 years with a reading age of 6.5 years. They have tried all sorts of reading schemes and none of them to seem to make a difference. Spellings are another problem. He learns his five spellings every week and get all five right. Yet two weeks later he has not retained them. We thought he may have dyslexia because he constantly has problems remembering B and D. Also reads them the wrong way round. We have found out he does have dysgraphia which explains the reasons why he finds it so difficult to write. Our son goes to a wonderful school and they have tried all sorts with no results so I decided I would complete a reading scheme with him. We started the reading scheme last month and I have been surprised at the results. My child even breaks down the words to read, something he has never done before. This reading scheme is called toe to toe. Jen
  3. We always have to get ours from the hospital. We ring up the psych secretary and than she rings us when it is ready. Jen
  4. We had the same situation. The eldest wanted a dog and the youngest 9years ASD was scared of dogs. We went to the dogs home and looked for an older dog. One that was not too large but likes to play with balls, toys etc. We had the dog in last September and its taken until now for our youngest to get confidence with the dog. Now he will go up and stroke the dog, he will play ball with the dog. At first the dog was kept in a separate room, away from our youngest child. When we were altogether the dog came into the room with us. Slowly over 6 months our youngest confidence has grown and it is one of the best things we have done. If you do have a dog choose one carefully. Jen
  5. Warm clothes help my child to relax when he wakes up. He also sits on the settee wrapped in a blanket to calm down prior to having breakfast. Regards Jen
  6. Hi Taggie, I am in exactly the same position as you. My son is doing well in a mainstream school with full time support. The local senior school of 1200 pupils was not ASD friendly. Yet another senior school with 1100 pupils were very ASD friendly. The senco was very honest and explained that the majority of teachers have some training in ASD but in reality it is very difficult for them to remember to include an ASD child. Than there are the days when teachers are off sick or on training. Although the second school we viewed were very ASD friendly I know deep down that my son will not cope with all the sensory input from such a busy environment. We have looked at a small private school (400 pupils). This school has experience of children with ASD and Aspergers. The attitude of the staff is very encouraging. We have walked round the school on an open day and met all the staff. What surprised us the most was the different members of staff actually asking how our child was effected by ASD and what happened during meltdowns and how we handled it. Since the open day we have been in to see the school in working order and were very impressed by how quiet it was. At the schools suggestion our son has also attend the school for a morning supported by his LSA. The feed back we got from our son and the LSA was very favourable. Our son will spend another day there (even though he is in year 5) to see if it is suitable for him or not. It is very early days to make a decision but we need to make the decision by June. I have decided to go by the environment. If the environment is right than my child can settle into school life and maybe achieve what he is capable of. If the environment is wrong I can predict my child will be excluded before the end of his first year. This school has got several pupils funded by the LEA because there is no where appropriate for children similiar to yours and mine within my area. The senco also has two letters on her desk regarding ASD children who has transfered up to mainstream schools yet had been excluded because the school could not manage with the childs ASD. All our children are individual so we have to go by our experience and what we can percieve of the schools we are requesting our children to go to. Taggie I wish you well with what ever decision you make.
  7. I agree you need the statement to quantify the hours Jen
  8. Its sounds like the school feel that your child does not have the right support. What does the ED Psy say you can always ask for him to reassess your son if he has not seen him recently. If the LEA are not going to increase funding than you may have to choose a special school. Within our area children who are doing well at special school are sometimes placed back in a mainstream with the correct support. So this may help you consider the situation. From experience I can tell you the priority has to be the happiness of your child. If he is not happy move him, you could always try another mainstream school close by you. What does your ASD team advise? It sounds like the behaviour is due to your child not coping. This may be due to the teachers not having the right skills or it could be the school is not suitable for your child. Good luck in what ever you decide. Jen
  9. Hi Vicky, Welcome to the forum. You have to remember that the statement is his passport to a decent education. Get that right and the majority of your problems will go away. You do need professional help. Regards Jen [
  10. I have two children aged 9 and 17 years. Sometimes the gap is an advantage at other times its worse because your first child is going through the hormonal stage. You find the youngest will soon learn to fight quickly and will take hits off his older brother that are very agressive. But saying that they do love each other dearly. I think you may be surprised at how your eldest will be pleased he has a younger brother, also its good to have a brother or sister. Jen
  11. Some LEA's will fund places in private schools or specialist private schools. The independent schools council lists all the private schools in England. You can obtain a free guide from www.isciscentral.info Jen
  12. You can ask your GP for a prescription of EMLA cream. You put the EMLA cream on both arms at least 30 minutes prior to the blood test. After applying the cream put cling flim round the arms and go to the appointment. The cream can stay on longer than 30 minutes if necessary. The child will not feel any pain as the cream sedates the area. Butterflies can be used which are safer to use if the child/adult is likely to move. Good luck Jen
  13. jen

    HE'S IN !!!

    congratulations. <'> <'> <'> I hope your son enjoys his new school. What a wonderful early christmas present. Jen
  14. We did a sensory profile. Our sons teacher did one and also the specialist support services. It took about 6 weeks to compare them. This was than used with the OT assessment to make a diagnosis. Jen
  15. K its still very early days. It takes my son several months to settle down. Could you offer to go into school and help out in another class. Jen
  16. Hi Karen, Why are they recommending Hep B. This infection is sprend via blood or sexual contact? If your child does have hep b course than it normally consists of a course of 3 injections and than not every one manages sero conversion. This would only be known once a blood test is carried out after the 3rd injections. I would be asking more questions before deciding if you wanted your child to have it. Are they giving him a course, will they be doing blood levels. Hepatitis A needs to be given at least 2 weeks before you go and than a booster is due 6-12 months later. If you have the booster than you have 10 years protection. If you do not have the booster it only lasts one year. Side effects are pain oedema and erythema at the injection site, asthenia, headache, malaise,myalgia, nausea, diarrhoea,fever and athralgis. Most people just complain of discomfort at the injection site. regards Jen
  17. Excellent news wished you worked in our area. Jen
  18. we found mac thick milk shakes help to reduce the inflammation in the throat and aided the discomfort Jen
  19. When I first took my son to the doctors complaining of my sons last 3 toes on each foot turning inwards. He also walks frequently on his tiptoes. The doctor told me to stop worring and his theory was you did not need the small toes on each foot. I told him I was not happy with that explanation and I would want a second opinion from a specialist. My sons being seeing a podatrist for one year. He wears insoles and gets reassessed every 3 months. You do have to be careful with using the insoles for a period of 2 hours than gradually building them up. The podatrist said because he walks on his tip toes it puts pressure on other muscles and also his spine so these children do need treatment Jen
  20. There was also a programme on this girl and it covered the same as was in the article that JB read. It also said her mother had her sectioned stating she was doing all sorts of things. While the young lady was sectioned she contacted a solicitor and got reassessment which confirmed there was nothing wrong with her. SShe has this in writing. As previously mentioned the young lady said her mother kept taking her to psychatirsts demanding diagnoses yet none of them could give a diagnosis. This young lady lives on her own in a small flat. The clothes and shoes she had did not represent a large amount of money. Her neighbour said she would see the young lady going up to the shop each day to do food shopping. It appears there are too very different stories here but the press are just printing the mothers side. I can not remember is the programme said the mother had a problem with fabricating problems with the daughter. Jen
  21. one of the big well known pharmacist takes a week to get it. Yet a small independent pharmacist can get it the next day. Jen
  22. jen

    For Paula

    saying a pray for Pauls Jen
  23. my son used one last year and it clears up all the confusion of where he is sitting or who he is sitting by. Now he has a set place on the mat and no one sits in this area. that way no one nudges or annoys him. Jen
  24. jen

    MMR Boosters

    you should be able to get this through the NHS (sounds like the GP is not asking the right questions to the lab). You could ask your health visitor to ring up the local lab to ask if they do levels for mmr or which labs do the test. Alternatively you should be able to get it privately look in the telephone book under private doctors providing separate mmr Good luck Jen
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