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SjB1

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About SjB1

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    Salisbury Hill
  1. Hi everyone I really want to know how I can get a decent private diagnosis for my son who is 4 in October? I am waiting on an NHS waiting list to be seen but its a joke. They are majorly short staffed and cannot give me any idea when thhey can even give me an appointment date let alone when it will be! I strongly believe my son has aspergers and have felt like this for over a year. His behaviour is becoming more challenging. Some days I feel I can't cope with the meltdowns etc. If I had an official diagnosis I feel I could access more support. I trust the NHS diagnosis more than private and definitely want to go ahead with it. I would just like to try and seek a private diagnosis too so when my son starts school I have something more concrete to tell his teachers. I have heard that many schools ignore private diagnosis but I still think its worth having so they believe my son needs extra help. I don't know where to go, do you see a paediatrician, child psychologist, educational psychologist?? And how do you make sure they are good?! I've read people on this site saying make sure you see an expert and not a self proclaimed expert but how would you know the difference? Any advice from people who have been through this would be much appreciated. Thanks. Sarah.
  2. Hi all My son is nearly 4 and is being referred currently to get a possible diagnosis of Aspergers. I have a 1 year old too and I'm finding it very difficult to have them get on. My older son is constantly wanting to dominate their play and my younger son's every move. He doesn't even want him to be allowed near the toys he wants to play with. I feel like I'm constantly having to be a referree. I use the time out/naughty step method and reward charts for when he displays good behaviour e.g affection, sharing. I want to enjoy my time with my boys! Has anyone been through this and how did they deal with it? He also will often snatch a toy away from my youngest and run off with it and place it out of his reach simply so he cannot have it! I find this very annoying as he doesn't even want it himself! Thanks.
  3. Thanks so much. Its hard when you as the mum know theres differences but have to wait so many years to actually know! Were the concerns with education, social issues or behaviour out of interest? Just wondered where the reception and year 1 teachers didnt notice anything. Thanks.
  4. Thanks for reply. You say your son was 8. Do you wish he had been diagnosed sooner? I never know whether im doing the right thing going to the doctor. Hes not having any probs at nursery but i think there maybe could be problems when hes actually at school. When did your child start having problems? Did you know long before they were diagnosed? Thanks.
  5. Hi I strongly suspect my 3 1/2 year old has Aspergers. I mentioned a few things to a GP a while ago who told me to make a log and then bring it back to him when I was ready. What concerns me is my son is very bright and I don't want him to think there's anything wrong with him. How do I talk to the doctor about his flapping, lack of interest in other kids etc without making him feel bad about himself, like theres a problem. How have people overcome this? Or has anyone had the first doctor chat without their child being present? Not sure if this is possible or if the doc would want to see him. Thanks.
  6. SjB1

    Flapping

    Hi Must of good to finally get a diagnosis. How long did the process take? Did you already know he had aspergers? How did you feel a diagnosis would benefit your son? That was another thread I put on here. Its just I wonder when I should go and see someone about my son if at all. I think he definitely has aspergers but hes getting on fine at nursery so I was wondering in what ways a diagnosis would help him or would it just make him feel different? Thanks. Sorry for so many questions!
  7. SjB1

    Flapping

    Hi guys Interesting I will look up dyspraxia later. Also I always assumed the riding the bike thing was the pedalling, didn't realise people with aspergers had trouble with the balancing. I was definitely thinking my son would need one to one swimming lessons too.
  8. SjB1

    Flapping

    Hi thank you all so much for your replies! Very helpful. I love hearing people diagnosed with AS have families and are successful. Yeah youre right i am very conscious of making him feel bad about it. I mainly only point it out if he is very near people as he could hit them. I was just projecting into the future and imagining his teachers just thinking he couldnt keep still - that is if we didn't get a diagnosis, if we did then theyd understand. Useful tips about the twisting beads etc. He already twusts his hair lol! We call it him making little dreadlocks, you cant brush it after! While im on here, instead of putting new thread up...... Wanted to ask if you had any feedback on boys being behind physically due to AS? Its just my sons being taking part in a class involving very basic ball skills. Its just meant to be fun and the teacher is very kind and encouraging but my son struggles with this type of thing. Especially following instructions. E.g if he was to just kick a ball hed do it ok but when asked to do it in a certain way he doesnt seem to get it. Anyway just wondered if this is something in children with AS that they grow out of and catch up or whether it continues into adulthood? So would more fun physical types of play help him improve? Thanks again!
  9. SjB1

    Flapping

    Hi all Wondered whether anyone or their children have received any kind of therapy to reduce flapping when in public. My son does it a lot and I don't want the other kids to tease him when he starts school so was wondering whether anything could be done to help? Thanks.
  10. Thanks for that. Well if thats the case i better get a diagnosis quick cos would hate him to be in the army! Only joking!
  11. Another question I have is...does anyone know if it says on your medical records that you have autism/aspergers, does it prevent you getting certain jobs? I'm just thinking of my son's future. Thanks.
  12. I have started a kind of log, just jotting things down. I have a really nice GP who adv he said just come back to him with it when i feel the need to.
  13. Hi Thanks so much for your detailed reply. I have read that aspergers children can be viewed as spoiled brats and thats how I feel my son is viewed when he kicks off when he doesnt get his way. A new concern of mine that has only just arisen is his complete over reaction when he falls and grazes himself. It could be the tiniest scratch and he cries and is properly distressed for a very long time afterwards! I read up on aspergers and response to pain and it was very interesting cos it said that they could react as if theyd lost a limb over a paper cut! This is like my son but the article said that flapping reduces the effect overstimulation but also reduces general responding normally to stimuli in the environment. And this accumulates over the day, therefore the author said if a child hurts themselves in the afternoon the reaction would be less. This was so accurate in my sons case as yesterday he had a meltdown over a tiny graze in the morning then in the afternoon he had a much worse cut on his hand with quite a bit of blood and he barely reacted! Anyway its like you said its a waiting game and only time will tell. I never want him to be labelled as a troublemaker, Id rather home school him!!! Does your child have some firends? My only wish for my son is for him to have 1 or 2 friends in life and to be able to get a partner when older. Doesnt matter if hes not the best socially but would hate him to be lonely. Thanks again.
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