rach04
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Posts posted by rach04
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thanks very much everyone j is still grinning from ear to ear
. He told senco the otherday and it felt very satisfying to tell him that what j was telling him was right ( for once). Poor kids has had no lsa since Christmas so now they have to get their bum in gear 
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Are you sure it was me?I don't know what a Pink Form is and it's very rare for me to get something right?
Either way, i'm really pleased you're happy about the end result
BD
............(now who's logging in under my details?.....)
you said it should have had hours
quote from baddad
I feel almost guilty saying that, 'cos the last thing i'd wanna do is pee on your bonfire, but it does need to define hours of 1-1 support SEE IM NOT NUTS
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as previous post and at baddads suggestion i sent of the pink form and asked what hours would he get that was monday.
Last night i got a phone call from the head woman at cyps and..................................... he has got 22 hours while he is still at his primary school and........................................... a place in the sn secondary school
and i didnt even have to ask 
she did say if i wanted to change him now i could, but i said its not really worth it for 4 months.Im quite disappointed that i didnt get to shout that much, have it all in my head waiting to come out
J is so happy and just keeps saying "tankyou mummy"
and he can now tell everyone at school where he is going including the senco who told him in january that he had no chance of going to that school
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I think the best thing you can do to help is read more material yourself and accept him as he is - he may be all too well aware that sometimes his behaviour might come across as 'silly' or immature, and I think you need to be really careful in how you approach your concern - if you genuinely want to help then I think it's great you have come in search of more info, but if you want to help because you are finding it tiring to work with him, and believe a 'diagnosis' would suddenly change his behaviour then you will be disapointed.well said llisa.
My cousin has just turned 18 and he has adhd and suspected asd. He now does holiday work as he is at college, he works along side his brother and hes will not tell anyone at work he has "problems" (he will discuss with us though)Hes not embarrassed about it He just sees it as as long as he can do his job nobody should know about it. They do say "why do you do that?" and he says dont know its just me.
Nobody is "normal" or "perfect"(although my hubby thinks he is
) and if you look deeply in to as/asd we all show some sort of trait.My best advice is look into ways to help the separation issue and ignore the rest
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Oh very yes!I feel almost guilty saying that, 'cos the last thing i'd wanna do is pee on your bonfire, but it does need to define hours of 1-1 support (or whatever support is being offered), along with concrete intervals for things like S< etc.
Sorry
<'>gawd no problem nobody could pee on my bonfire at the moment as we have proof that i am not an over protective mum ( as i have been portrayed over the last 6 yrs by pros and family) it does use alot of the phrases so i shall go back and say i need hours. Hes in his transition year and the amount of support they give could be the difference between sn school or home ed thankyou baddad
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Fab news, I'll be comming your way for tips!Janey
no problem hun. everyone here is soooo special and i wouldnt have done it without their support even my ridiculous questions
thanks everyone
It doesnt state how many hours though is it supposed to
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good luck if i can do it you can
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the proposed statement that is
still sort of numb and of course j doesnt know what the fuss is about. 6 Long years of fighting the system. 
Now its the fight to get him in to sn school cause the one they want him to go to is a 45 minute walk and has no unit, but hey ho just feel like half the battle is won.
Thanks to you all that have supported me over the last year and a bit
<'> >< -
I prehaps use it for a hair cut once a year
but other than that it goes on the house -
when asked to nominate a school i wrote to the lea that we were waiting for an rsa and if he got it we would put him in special school near us. We told them all about his not being able to walk to school on his own and us having 2 littleuns and that if he didnt get in the school there would be no way he would go to mainsteam as he wouldnt cope anyways we get the letter yesterday about school places and the one they have offered is a 45 min walk for me let alone him and 2 buses away
across 4 yes 4 main roads. Not as its really a problem cause he wont go there anyway but had me giggling to myself all day yes i know im sad
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Great news
:notworthy: -
My lad is terrible. They have found that his dyspraxia doesn't help him with a normal keyboard he used neowriter for a couple of weeks and then they took it off of him. There are to many keys on a normal keyboard for him and he gets very confused. Ask about neowriter there is a site just type it in to your search engine they are very expensive hense why i havent got one but could prehaps be something to mention to your ep.
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That's wonderful news I was told by our SENCO the EP's placement suggestions carry a hell of a lot of weight with the LEA glad she's on your side!Are there places available at the school you want?
yes there is but i suppose shes being cautious. Everyone else is suggesting units but she boo hooed it because of his multiple dx
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thanks at last i might get him sorted....... for now
:bounce: sorry i cant stop lolhad to stop myself hugging the ep pmsl
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Just had js ep around for my point of view on the rsa and she said that she is going to recommend a statement and a special school place.
of course will still might have to fight for the place but omg im 
and :bounce: :bounce: she is a new ep but she has done work with him and cant see how mainstream will cope in secondary even with a unit omg someone believes me waheyyyyyyyyyyyyyyyyyyyyyyyyyy -
yes you can.two children on its own is a good enough excuse
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i too have a big family. On my mums side there is possibly 2 on the spectrum poss. as. On my dads side ......... here we go
my grandad we suspect was on the spectrum and defeintly his sister (she spent the family fortune on gambling 
and it was a massive fortune) , my dad (although he would NEVER admit it), my dads eldest brother defeintly was and dyspraxia to boot his son has adhd and asd, my brother has adhd and mental health problems although he wouldnt let anyone assess him he has been a nightmare. my second cousin has adhd and as. Js dad i now no has some sort of asd and his mother. -
happy birthday
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I too struggled with my lad getting a diagnosis(asd) and it took alot of shouting and stamping to get it. We are now fighting to get him statemented hang in there it is tough but everyone here is so friendly and a wealth of information and will help you every step f the way
<'> -
We are in the middle of the process for statement. J said someone came in to school today to do his reading and writing and she had a county council badge. Are they allowed to do this without me knowing? plus the fact j likes to know whats going to happen(which the school know about) which is probably why hes been in a funny mood tonight (tearful) or because we are in the process he/we should just accept it? thanks in advance and i hope it makes sense lol
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<'> >< <'>
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i use a toddlers strawberry flavoured one for j. Dentist said it was fine as long as he was cleaning them.
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I think this is a great thing to happen in general for all children with disabilities. The only problem I have faced in mainstream is the insistance for inclusion even when it is not in the childs best interests. Last term, at my daughters school her year group were doing a term of swimming. My daughter endured over 2 years of swimming in her old school and got so distressed she had a fear of swimming pools. We tried private swimming lessons, but it took a lot of effort just to get her in the water. When they told me she would be doing swimming my heart sank. I did not want my daughter getting distressed again for the sake of one term. Well because of schools insistance on inclusion she did go, and what did she learn? Nothing that's what. It was all they could do to get her in the pool. Sometimes the rules put in place to help can hinder sometimes to. I just wish schools did not generalise instead of treating the child as an individual. its about time but......................J started swimming last year with the school i have never pushed it with him from an early age because he hates baths never mind a swimming pool. Anyway school insisted he had to go as it was part of the "curriculum " (sp) and have frightened him to death in the process. His meltdowns never happen in public he stores them till he gets to a place of safety and the school are insisting that he really enjoyed them
if they had seen him on the morning of swimming and after they would change their minds. Now they want him to go after easter he didnt learn how to swim in the last block, he has no intention of ever lifting his feet off the swimming pool floor he is pooping himself and they have frightened him into thinking that he HAS to do them. Yes they should treat every child as an individual, they should listen to them and ask THEM what they want to do. -
thanks everyone. No js not a happy bunny at all at home but i suspect he hasnt said anything at school. He has 2 hrs a week "play buddies" with an lsa and hes not getting it. you can really tell on the playground cause this is a program for socialization where they take a small group of nt kids and j and teach j to take turns etc and teach the nt to accept him the way he is, but as hes not getting that at the moment the kids have changed around him and hes on his own on the playground once again
Explaining Autism in the Classroom
in Education
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Js class had someone come in from children and young persons services called an autism outreach worker who talked to the whole of the class about autism. May be worth asking your ep (who put me in touch) they also do a thing called play buddies which helps their confidence.