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Posts posted by bid

  3. Posted · Report reply

    My son is older and at a Special School, so I'm afraid I can't really give you any advice, just lots of >:D<<'> >:D<<'> >:D<<'>

     

    I'm so sorry you are feeling so down :( and that everything is such a battle.

     

    There is sure to be someone along soon who will be more help :blink:

     

    Take care,

     

    Bid :wacko:

  5. Posted · Report reply

    Hi Loulou,

     

    My son was put on Ritalin when he was 8 by the specialist centre we have spoken about via PMs.

     

    It was introduced in conjunction with a very intensive behavioural therapy programme, with a Child Psychologist visiting us at home to work with us. This Intervention Programme cost the Health Service several thousand pounds I believe, and when the prescribed number of visits were finished we were referred on to a specialist at CAMHS who continued to work with us.

     

    We carried on the therapy for many years, adapting it as my son got older.

     

    When he was 14 he decided he didn't want to take Ritalin anymore, and he came off it with no return of his extremely hyperactive behaviour.

     

    It might be worth asking if you could have some kind of behavioural therapy to use with the Ritalin. For my son it seemed to give him the 'mental breathing space' to take in the therapy that he wasn't able to access before.

     

    It's hard, I know, and last summer we took the difficult decision to take him off Sertraline as we felt it was not helping him at all. There were no adverse side effects, and now he is in a specialist environment he is doing so well without any meds. I'm so glad I listened to my instincts over this.

     

    Good luck,

     

    Bid :wacko:

  6. Posted · Edited by bid · Report reply

    Hi Viper >:D<<'>

     

    You could try contacting your son's consultant or the people who diagnosed him to back you up with written evidence on this issue. They will be aware that it is nothing to do with you!

     

    My AS eldest was clean and dry very young, but my youngest (waiting for Child Development Check) was well over 3 before I got him out of nappies and at coming up for 4 still wears them at night. :(

     

    He just would not do anything on the loo...you can make a child sit there, but there is no way you can make them produce anything! His record was 12 hours without a nappy, refusing to go :hypno:

     

    Then just when I was in despair, he suddenly did it...so there is hope >:D<<'>

     

    Good luck, and it is not 'you'!!

     

    Try and get as much written stuff as possible from his consultant/EP, etc before trying for a statement ...LEAs in my experience only listen to them, not us parents :(

     

    Bid :wacko:

  9. Posted · Edited by bid · Report reply

    This is a difficult issue. :(

     

    My son was on different meds from the age of 8 until he was 15...essentially I now believe to 'enable' him to muddle through in mainstream.

     

    Even with heavy duty meds he finally had a complete breakdown and came out of school. During the 6 months he was at home we made the difficult decision to take him off all medication.

     

    He is now at a specialist residential school for AS, achieving and very happy...and still on no meds.

     

    It makes me extremely sad, and angry, because I believe my son was given these meds to make him 'cope'. Now that he is in the right environment he doesn't need them.

     

    But I am equally angry that we have just been fortunate enough to get this school place. For reasons that I still don't understand our LEA gave him this support while other youngsters in the same LEA in near identical situations have got nothing. :(

     

    It is an absolute lottery, and I feel we are often put in a position where we feel medication is the only option...simply because we can't get the right provision for our children :(

     

    I now wish I had fought harder when he was younger to get the right provision, rather than accepting the advice of the(well-meaning and caring) professionals who saw medication as the only option.

     

    Bid :wacko:

     

    I really hope I haven't upset or offended anyone by this post. I am just talking about our situation, not making any judgements about anyone else :(

  11. Posted · Report reply

    Auriel Update! :dance:

     

    I'm so proud!

     

    After just 4 weeks at his new school, Auriel has already completed the first module of his GNVQ in ICT! He had his exam on Monday.

     

    His is also now doing a full range of GCSEs, to be taken this summer and next summer.

     

    :thumbs:

     

    Bid :wacko:

  12. Posted · Edited by bid · Report reply

    Oh Beverley >:D<<'> >:D<<'>

     

    I'm so sorry.

     

    What if there aren't any specialist day placements in your area?

     

    Everything I can think of to say seems totally inadequate >:D<<'>

     

    Thinking of you and Ryan,

     

    Bidxx

  13. Posted · Report reply

    After thinking about this issue :blink: it seems to me to be more discrimination, in the sense that Autistics are being denied ownership of Autism.

     

    In other words, the 'experts' decide who is 'allowed' to be 'Autistic'.

     

    It is more of the same refusal to listen by the professionals. :angry:

     

    Bid :wacko:

  15. Posted · Edited by bid · Report reply

    Welcome to the forum Adam :)

     

    You will find that there is loads of excellent advice and support here!

     

    My son is 15, and was diagnosed with Aspergers, ADHD and Dyspraxia when he was 7. He started at a specialist residential school for AS just before Christmas, and it has been like a dream come true for him. He is finally happy.

     

    Keep on posting!

     

    Bid :wacko:

  16. Posted · Edited by bid · Report reply

    Hi :)

     

    As far as homework goes, my son (15) always believed school work was for school, home for relaxing!

     

    At his specialist residential school for Aspergers they do not have homework. There is a 20 minute slot at the end of the day to 'finish off' any work, but that is it.

     

    The evenings are full of activities to develop social skills, confidence and self-esteem. :)

     

    So that SENCO is just displaying her ignorance!

     

    I just wish every youngster with AS had the option of going to a specialist placement, perhaps a Base attached to a mainstream school.

     

    Bid :wacko:

  23. Posted · Report reply

    There is a flurry of sparkley spangles and Fairy Godmother#2 sidles onto the stage.

     

    She teeters slightly on her Emma Hope silver velvet embroidered kitten-heel mules, and adjusts her big knickers unobtrusively (wot, no thongs??).

     

    Her Amanda Wakely(?...it's late, I've been on the gravy...Running Gag 4) silver, bias-cut sateen dress swirls delicately around her shapely ankles, and the strains of 'I'm evryyyyy womaaaannn!' billow forth :blink:

     

    Cinders, I'll help you get to the ball

    But it won't really help at all

    You may get off with Prince Charming

    But I know something quite alarming

    When you are clad in just your trousseau

    Charming will obscure the view so

    You can't see (and here's some shockers)

    'He' has got a pair of...

     

     

    CURTAIN DOWN

     

    (Can I just state that this last piece of doggrel had nothing to do with me at all!!!! Thank you Jesty!)

     

    The Female Inquisitor :wacko:

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